My 16 year old daughter just within the last 3 months has been diagnosed with Scoliosis. She has had Scoliosis screenings at school and has had cheerleading physicals every year, it was never seen before. She started complaining about having lower back pain. Took her to the doctor and they immediately sent us for x-rays and the dreaded "S" word popped into our lives.
We got into the Shriners Hospital and it is already at a 41 and forming an "S". Just within the last 3 weeks shes started complaining about having pain in her upper back and knots have started appearing on her upper back. The doctor at the Shriners said Scoliosis has no pain and she is done growing so nothing is recommended other than some PT she is to do at home. He said that since she is done growing it will not get worse. This he based on the fact that she had reached puberty and had already started her period so shes done growing. She started her period when she was 12 and this has all just shown up with in the last little bit.
I tried telling him this but he kept cutting me off, talking over the top of me. I had taken her x-rays from January and I ask him if there had been any change. He said an insignificant amount nothing to raise a red flag or be concerned about. In my NON MEDICAL mind the first x-ray was taken in Jan. this visit to Shriners was in March. ANY change in just 2 months I'd think would be significant especially if I had just stated to the family it WAS NOT going to get any worse because shes done growing.
I'm at my wits end, I don't understand that diagnosis at all. The Doctor was rude. Kept putting me off every time I TRIED to ask a question. We drove 4 hours and didn't know a bit more when we left than we did when we got there. Do I have a reason to be frustrated or should I just go with his word? He's suppose to be the expert BUT I sometimes think they forget that we as parents are with this child 24/7 pretty much. We know the changes and more about them than they do only having seen them for 15 minutes. That's how long he was in the room with us. VERY FRUSTRATED!!!!!!!!!!
We got into the Shriners Hospital and it is already at a 41 and forming an "S". Just within the last 3 weeks shes started complaining about having pain in her upper back and knots have started appearing on her upper back. The doctor at the Shriners said Scoliosis has no pain and she is done growing so nothing is recommended other than some PT she is to do at home. He said that since she is done growing it will not get worse. This he based on the fact that she had reached puberty and had already started her period so shes done growing. She started her period when she was 12 and this has all just shown up with in the last little bit.
I tried telling him this but he kept cutting me off, talking over the top of me. I had taken her x-rays from January and I ask him if there had been any change. He said an insignificant amount nothing to raise a red flag or be concerned about. In my NON MEDICAL mind the first x-ray was taken in Jan. this visit to Shriners was in March. ANY change in just 2 months I'd think would be significant especially if I had just stated to the family it WAS NOT going to get any worse because shes done growing.
I'm at my wits end, I don't understand that diagnosis at all. The Doctor was rude. Kept putting me off every time I TRIED to ask a question. We drove 4 hours and didn't know a bit more when we left than we did when we got there. Do I have a reason to be frustrated or should I just go with his word? He's suppose to be the expert BUT I sometimes think they forget that we as parents are with this child 24/7 pretty much. We know the changes and more about them than they do only having seen them for 15 minutes. That's how long he was in the room with us. VERY FRUSTRATED!!!!!!!!!!
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