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Thread: Pain is so bad

  1. #1
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791

    Pain is so bad

    As many of you know, my surgery was canceled on March 11 because my BS # was very high. Well, yesterday my pain level has increased so much that I am now walking with a cane.I do not have a new surgical date as of yesterday when I called and spoke with my surgeon's scheduling nurse. She has told me end of April /beginning of May. I have 3 different pain pills depending on level of pain and what I am doing. The lower level pain pills -Ultram which I have been taking for a while have really stopped working for me. I have Davocet but That puts me to sleep as does loratab so I can only take those at night.

    I am not asking a question just looking for some sympathy

    Melissa
    Last edited by mbeckoff; 04-02-2010 at 10:21 AM. Reason: spelling

  2. #2
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Melissa--
    You've come to the right spot. I'm so sorry you are dealing with this as you wait for a surgery date. I'm sure not knowing makes it all the more difficult & more stress & more pain. I had pain but not nearly what you are experiencing prior to surgery. Any relaxation tapes help at all? I know just to ease my apprehensions I used the Peggy Huddleston book and tape to get me ready for surgery. You've probably already seen that suggested on here. I'm afraid I don't have any answers but certainly have good positive thoughts and prayers coming your way for an end to your pain very soon. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  3. #3
    Join Date
    May 2009
    Posts
    3,745
    oh melissa....i am so sorry you are in such pain!

    i never got anything off ultram or most of that stuff...for me it was oxycontin til it got me too exhausted, and now i am back to my original hydrocodone...but i know the feeling of taking stuff and waiting for it to work and realizing it is not going to help! i am in pain all the time....with and without meds....so you have all my sympathy...

    does a hot shower do anything? i stay in til prune-dom...
    also, moist heating pad might help a little...? do you have one? it helps my pain somewhat...just enuf to stop the tears sometimes!

    i wish there was some way to speed up your surgery date...keep telling yourself that this pain is not forever, that it will be gone eventually...and that you will survive it!

    i dont know what else to say but to send you an air kiss and hug...and thoughts and prayers for some relief!

    jess

  4. #4
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    424
    Dearest Melissa,
    Please hang in there. I know exactly what you are going through. My pain level prior to my surgery was getting so bad along with muscle spasms - many times waking me during the night. It's hard to endure that much pain day to day, all day. But, you just have to find a way to cope. You too will make it to the other side one of these days and you will be so proud of yourself. You are strong and I have no problem believing you ca do this. Please lean on people on this forum any time you feel the need. I would not have made it through all this if not for this forum for sure.
    Hang in there.

  5. #5
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Awh Melissa Honey,

    I'm so sorry your pain is so bad today. I second the suggestion for moist heat--yes it's temporary but it sure feels good.

    ((Hugs))
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  6. #6
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Thanks everyone for the suggestions and most of all the hugs and the friendship

    Melissa

  7. #7
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
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    Heat pad was my best friend prior to surgery. When we traveled anywhere I took it with us. I remembered it before anything else.

  8. #8
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    So sorry to hear of your pain, Melissa. Like Janet, I suspect the stress is making it worse. Vent here any time you like. We do understand. I just hope you get your surgery date before too long. The sooner the better. It sounds like it's not far off.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  9. #9
    Join Date
    Oct 2008
    Location
    Northern Virginia
    Posts
    156
    Melissa -

    I'm sorry you're in pain. If ever there was a group of people who understand pain, specifically back pain, it is us. Most of us have been where you are which is why we had surgery or are considering surgery. You can talk about it here when no one else gets it - We Do!

    Have you considered 'Drink Therapy?' My hubby and I have a 'Little Black Book' of cocktail recipes that we get out sometimes for the fun of it when we need a new idea. Maybe that wouldn't work so well if you're on pain medication but it relaxed me a bit sometimes when my back muscles were screaming.

    Just an idea
    Julie - 51 yrs old

    Dx'd 1973 - 43* thoracic curve / rotation
    Wore Milwaukee brace 1973 - 1979
    Pre-surgery: 63* thoracic / 52* lumbar curves


    Surgeries: P - March 16, 2009 - Fused T3-S2 with pelvic fixation
    A -April 14, 2009 - Fused L5-S1
    Achieved +70% Correction
    Dr. Khaled Kebaish, (and team) Johns Hopkins Hospital, Baltimore


    Standing x-ray
    New Spine 03/19/2009
    New Spine Lateral 03/19/2009

  10. #10
    Join Date
    Nov 2009
    Location
    Colorado
    Posts
    390
    Melissa,

    I hope tomorrow is a better day for you. I hope your surgery will be scheduled for you very soon.

    You should be so proud of yourself for doing what it takes to get your blood sugar numbers down....When I first read your post about diabetes, I really worried that it would take a long time, but here you are.

    Sending cyberhugs...

    P.S. One more suggestion. I was just lying on the couch unable to get comfortable (sciatica), and a goofy movie came on the TV. My daughter and I were laughing and now I feel great. Well, almost great, but do you have any funny DVD's you can watch and just relax?
    Amy
    58 yrs old, diagnosed at 31, never braced
    Measured T-64, L-65 in 2009
    Measured T-57, L-56 in 2010, different doc
    2 lumbar levels spondylolisthesis
    Exercising to correct

  11. #11
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,958
    Melissa

    Im sorry about your pain. I always hopped in a hot bath tub. I did the hot water therapy for many years...and followed with a massage.

    If you are on meds, I would not suggest a mix with alcohol. Remember Karen Quinlan.......Besides, you donít need the sugars.....

    Hang in there
    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  12. #12
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Are you feeling any better Melissa?
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #13
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Thanks to the suggestions.

    The drinking sounds good but with all the drugs I did not think it really was a good idea.

    I have used the heating pad and it does help. Thanks for the suggestion.

    Yes overall I am feeling better

    The pain seems to have gone down to a 5/6 which I can live with.

    Thanks for asking

    Melissa

  14. #14
    Join Date
    Oct 2008
    Location
    Northern Virginia
    Posts
    156
    Hi Melissa -

    I'm glad you didn't take the 'Drink Therapy' suggestion seriously...I was trying to inject a bit of levity here - I didn't mean to offend anyone and I certainly was not negating your feelings...dealing with relentless pain is no joke and I completely understand it and sympathize with you.

    Hope you're continuing to keep the pain at bay...
    J.
    Julie - 51 yrs old

    Dx'd 1973 - 43* thoracic curve / rotation
    Wore Milwaukee brace 1973 - 1979
    Pre-surgery: 63* thoracic / 52* lumbar curves


    Surgeries: P - March 16, 2009 - Fused T3-S2 with pelvic fixation
    A -April 14, 2009 - Fused L5-S1
    Achieved +70% Correction
    Dr. Khaled Kebaish, (and team) Johns Hopkins Hospital, Baltimore


    Standing x-ray
    New Spine 03/19/2009
    New Spine Lateral 03/19/2009

  15. #15
    Join Date
    Jan 2010
    Location
    Georgia
    Posts
    241
    Melissa -- So sorry to hear you've been in so much pain. Glad it is a bit better. Will be praying you have surgery date and relief soon.

    Glenda
    Glenda
    Age 66 Georgia (63 at time of surgery)
    Bi-lateral laminectomy 2006
    Kyphoscoliosis, approx 38* lumbar scoliosis, stenosis, disk herniations, lower back and hip pain, w/radiating pain, stinging and numbness in legs.
    A/P fusion (T10-S2) 5/17/10 and 5/20/10
    Dr Yoon, Emory Orthopaedic and Spine Hospital, Atlanta, GA
    Pleased with outcome

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