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Thread: twisting limitations with full fusion.

  1. #46
    Join Date
    May 2009
    Posts
    3,745
    hi Melissa
    according to Dr Lonner, not much difference...
    i think pelvis is lower down...
    i do know he said i would have more stability (for my individual case) fused to pelvis...or at least with "pelvic fixation"....

    i think of you often and hope things get better for you...
    so sorry you are still in pain!

    jess

  2. #47
    Join Date
    May 2008
    Location
    reno,nevada
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    3,531
    I'm glad that everyone appreciates these pictures. I knew that these pictures would help those who are waiting and nervous about being fused down to the pelvis. I too, was wondering what was going to happen as far as my mobility. Since things were very bad down low, I didnít even question having to have to do my A/P, I trusted my surgeon. Dr Menmuir really did a fantastic job. I will add my x-rays just in case any of you have missed them. The pelvic anchors (Iliac bolts) are the longest I have seen, and have been glancing at boatloads of x-rays all along of scoli constructs. Its Synthes "Pangea system".

    Some links if there are any questions.
    http://en.wikipedia.org/wiki/Sacrum
    http://en.wikipedia.org/wiki/Pelvis

    I do not feel any of my hardware, and I'm pain free.

    If your surgeon wants to go down to the pelvis for support, it is probably a good idea to accept this since it will help support your construct and help guarantee fusion. I donít believe that saving one level, or two is really worth it at age 50. The amount of articulation per level is probably only about 2 degrees. I know I wouldnít want to have a revision and all that pain repeated to try to save that "limited mobility".

    I have adapted, and things are great. I wouldnít change a thing.
    Ed
    Attached Images Attached Images
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #48
    Join Date
    Feb 2010
    Location
    Ohio
    Posts
    200
    OMGoodness, Ed, those ARE long iliac screws! It makes me feel better that your rods are not completely aligned in the saggital plane. They look about like mine. I assume that means we still have rotation in there. is that correct?

    My question for you is, do you ever go a day without thinking about your back? And, if so, about at what point in recovery did that occur?
    Kathy
    46 yrs at surgery, now 50
    71 degree thoracolumbar curve corrected to 34 degrees
    8/2/2010 surgery with Dr. Lenke

    posterior T9 to sacrum with pelvic fixation

    4 osteotomies and 1 cage
    http://s1066.photobucket.com/albums/...athK_08022010/

  4. #49
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by KathK View Post
    OMGoodness, Ed, those ARE long iliac screws!
    That's what ALL the women say.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #50
    Join Date
    Jan 2006
    Location
    near Philadelphia
    Posts
    1,260
    Oh Sharon, you scamp!!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  6. #51
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    Quote Originally Posted by Singer View Post
    Oh Sharon, you scamp!!
    Hey! I don't make the news... I just report it.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #52
    Join Date
    May 2008
    Location
    reno,nevada
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    I've heard that term quite a bit...OMGoodness. LOL It should be added to the dictionary.

    Kathy, Yes, there still is rotation. I have a thread on the subject with posted cts.

    There are days when I donít thing about my back. I have gotten so used to it now. I think it took about 18 months....

    I have to be careful in that respect as I leaned down to look at a piece of machinery last month and my spine reminded me that I'm fused.
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #53
    Join Date
    Jul 2010
    Posts
    74
    Thanks so much for sharing this great info Ed. I will be facing a t-2 to pelvis surgery on 10/25 and one of my biggest questions/concerns is regarding flexibility. You really have helped keeping it in perspective.

    People are always saying to me "can't you get your surgeon to stop at a higher level?" My doc said that if I didn't go the the pelvis there would be a 40% chance that I would be facing extension surgery within 2 years. I love to gamble with cards and video poker, but not with 40% odds on more surgery. I will learn how to cope with my new normal. Again, thanks for sharing .
    Chris, Austin, TX
    age:58
    80 degree thoracic/36 degree lumbar curves
    Surgery 8/2/10, Anterior Cervical Decompression/Fusion
    C4/5, C5/6, C6/7
    New Surgery date 10/25/2010, T-2 to Pelvis, posterior
    Dr. Matthew Geck, Seton Spine and Scoliosis Center

  9. #54
    Join Date
    May 2009
    Posts
    3,745
    hi Chris
    haven't booked surgery...yet...
    but wanted to tell you that my surgeon said the same thing to me...stability wouldn't be sufficient without fusing all the way to the pelvis...

    i wish you a smooth procedure and an uneventful recovery...followed by the pain free life you deserve!

    bes regards...
    jess

  10. #55
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    966
    Ed,

    Can you twist and bend like that without any pain?

    Totally unfused, I can twist about that far, but it sure isn't comfortable! Doesn't help that ribs are bumping into hips, etc.

    Evelyn
    age 44
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke, T4 to S1 with pelvic fixation
    Not "confused" anymore, but don't know how to change my username.

  11. #56
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Yes. I donít have any pain. If anything, I have what I call the "bear traps". The tight feeling of the muscles in my mid and upper back in the area of the spine. This happens when a "winter" storm moves through. I have always wondered if it was due to a combination of moisture, cold, and low atmospheric pressure. I have a thread on this topic. Last year around November 1st, it really hit me, we will see if that happens this year.

    My surgeon told me that itís a common complaint.

    I have permission to lift 100#.
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  12. #57
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Kathy, Here you go.

    http://www.scoliosis.org/forum/showthread.php?t=8622

    You can see the rotation in the cts
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  13. #58
    Join Date
    May 2009
    Posts
    3,745

    Hi TiEd
    many with arthritis...also those with migraines...are human barometers...barometer drops when rain/snow is coming....
    my weather prediction record is much better than the forecasters on TV!!

    100 pounds...wow!
    do you ever do weight machines in gym? i miss leg presses & other lower body weight machines...pain has kept me out of gym for 2 years now...

    glad you can do weights again...
    jess

  14. #59
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Jess

    No, I do not lift weights in a gym anymore. I did buy a ski pass for this season, and skiing can be a workout in itself...It takes me a little while to re-build the "soft tissues" used for skiing, I should be in great shape after about a month of skiing.

    Right now, my body is normalized. I'm not improving much anymore, I think that my full heal took 2 years... 90% in the first year, 10% in the second. The battles with fatigue took a long time, but that has ceased.

    Things are pretty good. Surgery saved my life, it worked. Whew.....
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  15. #60
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160

    How can I cut my toenails?

    Ed, I dug up your old thread because I am dying to know how I can reach to trim my toenails or lace up my shoes. I was fused T8-sacrum/pelvis seven months ago, so most activity restrictions are lifted and I am doing quite well overall. But, although I am a very flexible person, I can't quite manage to reach my feet!

    Any hints you can share, I would appreciate!
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

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