I was wondering how you and your daughter were doing with the Boston brace. My daughter (Syd) gets a 30 degrees down to 13 degrees correction in the brace. This is in the thoracic region. She was getting a 30 degrees down to 18 degrees in the SpineCor brace. Syd was hoping that we could get the SpineCor down to 13-15 degrees so she could wear only the SpineCor. It is definitely much more difficult for her to wear the Boston brace. It is not so much the primary pressure on the ribs but what bothers her the most is the pressure on the front of her chest at the top of the brace.
I talked with Syd the other night, we discussed the potential outcome (rods/fusion) as well as the VBS hybrid/growing rod as well as the VBS with staples only. I asked her what she wanted to do and she said "surgery" instead of having to wear the brace for the next 6-7 years. But she did say "no rod". So she understands that she needs to get down to 25 degrees consistently for at least 6 months to be considered for staples only. Right now Dr. Betz and Dr. Durrani are both suggesting VBS/Hybrid Rod.
I am sorry to hear your daughter is having issues with both the SpineCor and Boston brace. It is so tough for them to wear it. It would be hard to wear the Boston brace if the correction is better in the SpineCor brace. Syd now thinks the SpineCor brace is great compared to wearing the Boston brace. She wears the SpineCor to school and for after school activities and wears the Boston brace when she is at home and at night.
I hope you get some good news on getting scheduled for surgery sooner. We are still waiting for a response from Dr. Durrani to see if our insurance will cover it.
Good luck
Michael
I talked with Syd the other night, we discussed the potential outcome (rods/fusion) as well as the VBS hybrid/growing rod as well as the VBS with staples only. I asked her what she wanted to do and she said "surgery" instead of having to wear the brace for the next 6-7 years. But she did say "no rod". So she understands that she needs to get down to 25 degrees consistently for at least 6 months to be considered for staples only. Right now Dr. Betz and Dr. Durrani are both suggesting VBS/Hybrid Rod.
I am sorry to hear your daughter is having issues with both the SpineCor and Boston brace. It is so tough for them to wear it. It would be hard to wear the Boston brace if the correction is better in the SpineCor brace. Syd now thinks the SpineCor brace is great compared to wearing the Boston brace. She wears the SpineCor to school and for after school activities and wears the Boston brace when she is at home and at night.
I hope you get some good news on getting scheduled for surgery sooner. We are still waiting for a response from Dr. Durrani to see if our insurance will cover it.
Good luck
Michael
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