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Thread: newbie here - 14y.o. son with congenital scoli, w/hemivertebrae

  1. #1
    Join Date
    Nov 2011
    Location
    New Albany, Indiana
    Posts
    25

    newbie here - 14y.o. son with congenital scoli, w/hemivertebrae

    Our 14 y.o. son was just diagnosed with a 34 degree scoliosis curve. His right shoulder sits about 4-5 inches higher than his left. The xrays show a triangular shaped hemivertebrae at the T4-T5. Because this happened at the same time the kidneys and heart, our doctor is having that checked out.

    We visited the spine surgeon in Louisville, KY (at the Leatherman Spine Clinic) two days ago. My son is experiencing no pain or neurological effects, thankfully. We are going to do the "watch and monitor" right now, having new xrays and evaluation in three months. We're hoping the progression won't continue as he continues to grow - he's only 5'6" right now.

    Any advice, encouragement, recommendations, etc....we're all ears...I hope to learn a LOT from all of you.
    thanks....
    blessings..robin

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Hi Robin,

    I replied to you on your other thread.

    Keep posting and let us know how things are going.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #3
    Join Date
    Nov 2011
    Location
    New Albany, Indiana
    Posts
    25

    thanks...

    Leah's mom...
    thanks for taking time to reply.
    I will find your reply on the other thread.
    I'm sorry for posting in three different locations, but I wanted to make sure I was reaching out to as many different folks as possible. I know it's not possible for everyone to read every posting, so I figured if at least one person saw our situation - I would be lucky (and eVER so grateful)....
    so thank you!!

    blessings..robin

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