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Thread: The Book! eeeK

  1. #1
    Join Date
    Jun 2009
    Location
    Whitinsville, MA
    Posts
    131

    The Book! eeeK

    This is for all your ladies and gents that are about to undergo your operation..I remember reading on here about people bragging about the "Scoliosis Surgery" written by someone that had under gone..Well I went out and purchased it spent the whole day reading it and I swear I think it did worse damage for me..I had to end up having my anxiety meds up because I wasn't sleeping and having horrible panic attacks.. Anyways if there is anyone who is interested in this book I would love to just give it to you and get it out of my sight. I guess I just dont want to know in details what they are going to do to me..Now that I am on the otherside I'm ok lol .. But if you are scared and want to know details about what they do this is the book for you..Seriously let me know I will ship it out ASAP. Otherwise I throwing it to goodwill But I would rather see someone on here that is about to have surgery find some good use =) I hope I didnt scare anyone lol

    xox megz

    27 year old female
    Upper Curve 110 degrees
    Lower Curve 90 degrees
    Surgery with Dr. Wood at MGH 1/11/10 && 1/14/10
    Fused T2-Pelvis
    Back looks amazing and no more Hump! ^_^

  2. #2
    Join Date
    May 2009
    Location
    Adelaide, Australia
    Posts
    424
    Can't comment yet, haven't finished it!
    Stay tuned.
    Vali
    44 years young! now 45
    Surgery - June 1st, 2009
    Dr David Hall - Adelaide Spine Clinic
    St. Andrews Hospital, Adelaide, South Australia
    Pre-op curve - 58 degree lumbar
    Post -op - 5 degrees
    T11 - S1 Posterior
    L4/5 - L5/S1 Anterior Fusion

  3. #3
    Join Date
    Jun 2009
    Location
    Whitinsville, MA
    Posts
    131
    omg let me know how you liked it..What do you think so far?!

    27 year old female
    Upper Curve 110 degrees
    Lower Curve 90 degrees
    Surgery with Dr. Wood at MGH 1/11/10 && 1/14/10
    Fused T2-Pelvis
    Back looks amazing and no more Hump! ^_^

  4. #4
    Join Date
    Feb 2010
    Posts
    140

    The book...

    I guess everyone has their own perspectives on these things, but I LOVED the book. I want to know as much as I can about what they are going to do to me....heck, if I can get someone in the OR take a picture of my back all opened up so I can see exactly what it looks like with all the rods and screws in there, I'd love it! Guess that's why I'm a geek...I love to know the details and understand everything as much as I can. It makes me feel better to know, and see, what it really looks like.

    If you want a lot of detailed info in layman's terms, its a great book. If you'd rather now know the details, as megz says, stay far away from the book.

  5. #5
    Join Date
    Sep 2006
    Posts
    143
    MegZ, I agree, and I think I'd rather read something interesting and relaxing than scare myself with the gory details. I trust that my surgeon, Dr. Lonner, knows what he is doing. I've been hesitant to get the book, and now I know why. Best, Joy

  6. #6
    Join Date
    Feb 2010
    Posts
    460
    Nitram - I'm a lot like you. I have to know every detail of what they are doing to me, I've even watched real surgeries of fusions on the internet. For some reason when I know what's going to happen I feel better, just because I'm aware. I know everyone is different, and can totally understand why some people would prefer not to know. I'm just a massive researcher when it comes to anything I'm going to do or anything that happens to me. When I first got pregnant years ago, I think I read every single pregnancy book on the market . Anyway I thought that the book "Scoliosis Surgery" was excellent by David Wolpert, but only for people who really want to know every single detail about the surgery and what happens to you in the hospital pre-op and post-op etc.
    Lynette - 44 years old.

    Pre-surgery thoracic 55 degrees
    Pre-surgery lumbar 85 degrees

    Post-surgery thoracic 19 degrees
    Post-surgery lumbar 27 degrees

    Surgery April 1st 2010.

    Posterior spinal fusion from T9 to sacrum.
    Dr. Cronen at University Community Hospital - Tampa, FL.

  7. #7
    Join Date
    Nov 2007
    Location
    Houston, TX
    Posts
    1,757
    Quote Originally Posted by Nitram View Post
    I guess everyone has their own perspectives on these things, but I LOVED the book. I want to know as much as I can about what they are going to do to me....heck, if I can get someone in the OR take a picture of my back all opened up so I can see exactly what it looks like with all the rods and screws in there, I'd love it!
    I did have mine photographed ... and am SO glad I did. Like you, I wanted the details.
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  8. #8
    Join Date
    Jun 2009
    Location
    Whitinsville, MA
    Posts
    131
    Quote Originally Posted by txmarinemom View Post
    I did have mine photographed ... and am SO glad I did. Like you, I wanted the details.
    do you actually have the pictures to view?! It would be neat to see since its now done and over with.

    27 year old female
    Upper Curve 110 degrees
    Lower Curve 90 degrees
    Surgery with Dr. Wood at MGH 1/11/10 && 1/14/10
    Fused T2-Pelvis
    Back looks amazing and no more Hump! ^_^

  9. #9
    Join Date
    Nov 2007
    Location
    Houston, TX
    Posts
    1,757
    Quote Originally Posted by megz View Post
    do you actually have the pictures to view?! It would be neat to see since its now done and over with.
    Yes ... email me (in my sig) for the password.
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  10. #10
    Join Date
    Jun 2009
    Location
    Whitinsville, MA
    Posts
    131
    Quote Originally Posted by txmarinemom View Post
    Yes ... email me (in my sig) for the password.
    emailed =)

    27 year old female
    Upper Curve 110 degrees
    Lower Curve 90 degrees
    Surgery with Dr. Wood at MGH 1/11/10 && 1/14/10
    Fused T2-Pelvis
    Back looks amazing and no more Hump! ^_^

  11. #11
    Join Date
    Feb 2010
    Posts
    140
    Quote Originally Posted by txmarinemom View Post
    I did have mine photographed ... and am SO glad I did. Like you, I wanted the details.
    Nice! Did it help you to see it afterward to know what was in there?

    I haven't talked to the surgeon yet about the pics...but I intend to next week. I'm really hoping he'll have someone do it. I have a list of questions to email him...need to make sure that's on the list.

  12. #12
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    I'm a control freak, so I do better knowing what is ahead. I studied those 2 books like crazy.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  13. #13
    Join Date
    May 2009
    Posts
    3,745
    could someone name the author of the book written by a patient...i've only read the ones written by scoli surgeons..?

    wow...you guys must have really strong stomachs! i wouldnt be able to see pix of anybody opened up like that...even without blood (?) i would just about faint! most times i want to know exactly what is going to be done to me...but the scoli surgery...i would want general, and only general details...til afterwards...then i might want specific details...i think if they gave me the specifics ahead of time...i would faint first, wake up, and say "See 'ya later!!".... I cant even watch when the vet has to do anything to my little puppy!

    jess

  14. #14
    Join Date
    Feb 2010
    Posts
    140
    Quote Originally Posted by jrnyc View Post
    could someone name the author of the book written by a patient...i've only read the ones written by scoli surgeons..?

    wow...you guys must have really strong stomachs! i wouldnt be able to see pix of anybody opened up like that...even without blood (?) i would just about faint! most times i want to know exactly what is going to be done to me...but the scoli surgery...i would want general, and only general details...til afterwards...then i might want specific details...i think if they gave me the specifics ahead of time...i would faint first, wake up, and say "See 'ya later!!".... I cant even watch when the vet has to do anything to my little puppy!

    jess
    David Wolpert wrote the book I read named "Scoliosis Surgery: The Definitive Patient Reference""....he had the surgery himself and wrote the book for others going through it.

  15. #15
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Quote Originally Posted by jrnyc View Post
    could someone name the author of the book written by a patient...i've only read the ones written by scoli surgeons..?


    jess
    I also read The Scoliosis Sourcebook, by my surgeon. I read and re-read both these books prior to surgery. They helped give me a sense of peace--for me, knowledge does that.

    http://www.amazon.com/Scoliosis-Sour.../dp/0737303212
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

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