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    Employment

    Hi Twinsmom,

    My professional experience is with disability rights and employment, it is understandable an issue that many of us with a disabilty face more than the so called (TAB) temporarily able...
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    Ssi

    Twinsmom,

    Sure hope and pray that everything is going as good as can be expected for your family, as for disability benefits, their are many non-profits, and organizations that you may not know of...
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    Link.

    Twinsmom,

    I hope you got the address that I sent you through private messaging for the support group and information regarding Klippel Feil Syndrome. I also just wanted to say hello again and...
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    This is a difficult question and a very difficult...

    This is a difficult question and a very difficult decision for any parent, I hear your concerns and feel your worries. My daughter and myself were both born with scoliosis, and both had surgery at...
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    Allograft

    Allograft is a transfer of one's own tissue from one location to another (eg, a bone graft to stabilize a fracture). AN allograft (homograft) is a graft between genetically dissimilar members of the...
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    Not alone.

    Just would like to add my two cents to this forum, first I never had a rod placed for support, if my surgery would have been done at a much later date instead of in 1954 and as an experimental...
  7. Color outside the line.

    This is good news, as a individual with severe scolisosis and a complete spinal fusion, I would and do recommend serious consideration of any proven alternative treatment other then surgery. Which...
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    Scurve83 Never feel that you are alone or that...

    Scurve83

    Never feel that you are alone or that you can not vent here, if anything you are safe and are understood here, so please vent here. We are all individuals with scoliosis issues or...
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    It is great that this forum allows us all to...

    It is great that this forum allows us all to communicate and vent with each other, because we have been there, or soon will be at certain different stages of life with scoliosis. It is an individual...
  10. God Bless you and it is one of the most...

    God Bless you and it is one of the most difficult, most challenging and most scary moments in a parents life, when their child is having surgery, we feel so helpless that words can not describe the...
  11. Hi Tikka's Mom, First I agree with you 95%, my...

    Hi Tikka's Mom,

    First I agree with you 95%, my only concern is with the view that children should be responsible for wearing the brace. It should be a shared responsibility, but the parent must...
  12. Thread: ssi let downs

    by Danite
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    SSDI is bettersweet news, if you receive the...

    SSDI is bettersweet news, if you receive the benefits because of your disability, it is an indication that your not expected to be resonably gainful employed again in your lifetime. Now don't get me...
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    I do not agree that it is always...

    I do not agree that it is always counterproductive to delay treatment, this is a control issue for the individual with the disability or scoliosis. Once a decision is made for surgery, it is no...
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    Good afternoon, As a License Professional...

    Good afternoon,

    As a License Professional Counselor, and an Advocate for people with disabilities I was empowered to write regarding this posting regarding surgery or not. First as many of you...
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    It is a difficult thing that we must do, part of...

    It is a difficult thing that we must do, part of me is very private and all my life I have fought for inclusion and stay highly active in life. Playing hard and fighting to get ahead, financially...
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    Not surprise, glade of the responses and yet...

    Not surprise, glade of the responses and yet angry at our fights, boy do I remember the ugly Milwaukie braces, I wore a couple of them after wearing a plaster cast for almost a year. I too can...
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    Open discussion on PAIN, VENTING.

    Hi Everyone,

    It seems that PAIN and Scoliosis goes hand in hand, after viewing and discussing pain on many different forums. I thought that maybe we could open a new forum on PAIN, how people...
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    It is very frustrating that I can no longer stand...

    It is very frustrating that I can no longer stand long enough to do the dishes around the house or vacuum the carpet without sitting down. But even the sitting will cause me to get back up, my...
  19. Thread: Ssdi

    by Danite
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    Poll: Hi Everyone, Good news, I have just been...

    Hi Everyone,

    Good news, I have just been awarded SSDI, so you can do it yourself and on line. I was blessed, I guess it is bettersweet news in one aspect, I was awarded on my first try and within...
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    Hi Maxxi, I too was born with scoliosis, only...

    Hi Maxxi,

    I too was born with scoliosis, only at age four did it turn real ugly almost lost my life because of it. I had the first spinal surgery in the state of michigan at U of M at four years...
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    Good Evening, I have had great experience with...

    Good Evening,
    I have had great experience with the University of Michigan Hospital in Ann Arbor also St. Marys in Ann Arbor regarding adult scoliosis and surgery. You might try and contact them for...
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    Hi Nutmeg & Jenny, I agree with Jenny, it is a...

    Hi Nutmeg & Jenny,

    I agree with Jenny, it is a very personal decision and it should be, I do understand or feel that most medical models by design sometimes look at surgery as a quick fixs and...
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    Good morning, I had surgery in 1954 to correct a...

    Good morning,
    I had surgery in 1954 to correct a breathing challenge, in fact I was going to die with out it, they fused all of my back except for two lower verts for mobility. They (specialist)...
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    SURGERY IS ALWAY, ALWAYS AN ELECTIVE.

    SURGERY IS ALWAY, ALWAYS AN ELECTIVE.
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    Hi Jenny, Please note that I'm not in favor of...

    Hi Jenny,

    Please note that I'm not in favor of surgery unless it is totally necessary, almost life or death type situation. So my personal opinions will almost always recommend second opinions...
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