Search:

Type: Posts; User: Mom37; Keyword(s):

Page 1 of 7 1 2 3 4

Search: Search took 0.07 seconds.

  1. Replies
    23
    Views
    15,056

    You can PM me if you want as I am not on the site...

    You can PM me if you want as I am not on the site much. My daughter did have to have both CM and fusion surgery too. We were advised it probably wouldn't stop curve, but one can only hope we are...
  2. Replies
    23
    Views
    10,903

    Titanium

    My daughter had titanium rods put in so they could do MRI to monitor other condition requiring a MRI for best results.
  3. Replies
    7
    Views
    13,868

    My daughter went through similar situation!

    Have you had surgery yet? I found this website on Chiari Malformation and Syringomyelia helpful www.asap.org . I Private Messaged you my email as this times out quickly. Also I am not on this site...
  4. Replies
    18
    Views
    12,117

    Certainly seek as many opinions as you need to

    I am sorry she is having to go through pain. We went to a third opinion before an MRI was recommended and it was needed. It keeps timing out on me after I finish so I am sorry this is being...
  5. Replies
    8
    Views
    12,394

    See the website www.asap.org for SM/CM, if you...

    See the website www.asap.org for SM/CM, if you haven't already, as it is a valuable tool. My daughter had scoliosis also and we understood it was due CM/SM, so large long fluid pockets, SM...
  6. Thread: spinecor

    by Mom37
    Replies
    3,919
    Views
    1,136,847

    MRI could be recommended

    Jill P-I agree that an MRI to rule out any spinal cord issues is something that I would certainly ask your doctor about, and see if it is a consideration. If they order one then it sure won't hurt...
  7. Replies
    5
    Views
    6,767

    Glad to hear of her quick recovery. Just wait...

    Glad to hear of her quick recovery. Just wait until 6 months. It is so wonderful. It is great to be moving on after Chiair and Scoliosis take over. My duaghter was 12-13 and now we are not on...
  8. Replies
    5
    Views
    6,767

    My daughters scoliosis progerssed rapidly too

    I was told that my daughters curve had progressed too much and too fast and that it would only continue to get worse so we had spinal fusion. It is now 2 years later and my daughter expressed she is...
  9. Replies
    4
    Views
    6,255

    They are the best!

    Yes we go there and I cannot speak highly enough about it! We have been to Cook Children's Hospital also, and Shriner's. Scottish Rite was our third opinion and the first to do an MRI to see if...
  10. Replies
    12
    Views
    25,836

    My youngest daughter was 3 and had an MRI and was...

    My youngest daughter was 3 and had an MRI and was sedated with general anesthesia for just a head MRI. That was done rectally and she didn't like wearing a pull up as they can loose their bowel...
  11. Replies
    6
    Views
    6,623

    If you still need any if

    You can private message me and I will give you my email as easier to write back and forth if you want. I am very infrequent on the forum now. Send any questions if I can help. My daughter's severe...
  12. Thread: syrinx

    by Mom37
    Replies
    4
    Views
    4,838

    My daughter had Syrinx

    You can private message me and I will give you my email as easier to write back and forth if you want. I am very infrequent on the forum now. Send any questions if I can help. My daughter's severe...
  13. Replies
    16
    Views
    8,109

    My daughter was back at school in 2 1/2 weeks...

    My daughter was back at school in 2 1/2 weeks with restrictions. She was probably quicker than some. She was off of medication for pain by then too. She was encouraged to do a lot of walking, even...
  14. check Scottish Rite or Shriners Hospitals no cost

    We went to both Shriner's and Scottish Rite for 2nd and third opinions and they did not charge anything. We did land up doing spinal fusion at Scottish Rite. They were excellent. We went to a...
  15. Thread: Should I swim?

    by Mom37
    Replies
    15
    Views
    8,759

    update

    My daughter started back to competitive swimming at her high school team in August and is having no problems with diving, flip turns, or swimming. She has difficulty with flexibility for butterfly,...
  16. Replies
    51
    Views
    22,900

    How did it go?

    I haven't been on the forum in a long time. It is a great source of information. I know how hard it is with a teen and their emotions in this difficult time. My daughter was very emotional and...
  17. Replies
    11
    Views
    7,297

    That is what we wondered, that maybe the high...

    That is what we wondered, that maybe the high curve was the reason she didn't do well with the butterfly. Well take care and best wishes.
  18. Thread: spinecor

    by Mom37
    Replies
    3,919
    Views
    1,136,847

    We had that happen and we had to have the strap...

    We had that happen and we had to have the strap replaced. Someone else mentioned to us they replaced the snap on the body. They can wear out. It was our major strap that had the most pull. Best...
  19. Replies
    7
    Views
    5,038

    I wish you the very best outcome possible. I...

    I wish you the very best outcome possible. I suggest taking pictures of the brace on, in front, and back. If needed take notes on where the straps go if the doctor doesn't give you a step by step. ...
  20. Replies
    18
    Views
    8,559

    I wish you both the best! We too felt Spinecor...

    I wish you both the best! We too felt Spinecor was the best option for bracing too. We too were concerned over muscle atrophy with the Boston Brace. We found out later that our daughter had other...
  21. Thread: spinecor bracing

    by Mom37
    Replies
    4
    Views
    2,550

    Shriner's in Erie, PA is an orthopedic using Spinecor

    At least they are still listed on the Spinecor site and they were doing when we went in 2006. They are masonic funded so if they do it it is at no cost to you. We had brace before we went there for...
  22. Replies
    11
    Views
    7,297

    Check with your doctor. My daughter is 14 and...

    Check with your doctor. My daughter is 14 and just started back on the swim team this month. She is 1 year post op. She had a high curve, and high incision, so she is able to have more flexiblilty...
  23. Thread: Should I swim?

    by Mom37
    Replies
    15
    Views
    8,759

    My daughter is 14, but she swam before and after...

    My daughter is 14, but she swam before and after spinal fusion, and we feel it has been very beneficial and have very positive feedback from doctors. She was able to swim after her incision heald...
  24. Replies
    53
    Views
    34,016

    Spinecor

    Just an FYI Spinecor is used by Shriner's Hospital in Erie, PA, as one of their braces if recommended by their orthopedic surgeon there. We got a second opinion there, but was not treated there. I...
  25. Thread: spinecor

    by Mom37
    Replies
    3,919
    Views
    1,136,847

    Shriner's Hospital,In Erie, PA, still does Spinecor

    Just an FYI if you look on the Spinecor website, (I just checked), and shriners Erie, PA still uses Spinecor. It is under US, then under PA, then shows the hospital. I would think they would take...
Results 1 to 25 of 160
Page 1 of 7 1 2 3 4