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  1. Spine surgeons get perspective from patients...

    Spine surgeons get perspective from patients several days a week. :-)
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    Unfortunately, I think all of the Pittsburg...

    Unfortunately, I think all of the Pittsburg experts are peds specialists.
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    Hi Liz... Your bone quality could definitely...

    Hi Liz...

    Your bone quality could definitely be a concern. If possible, a surgeon who does a lot of revision surgery on older patients, will be your best bet. Regardless of whether you have...
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    Sorry, but it's been far too many years since I...

    Sorry, but it's been far too many years since I heard about them. I can tell you that I'm relatively certain that I heard about them on the old MIT list (the predecessor to this forum). If you do a...
  5. I'm guessing, but I bet if they look at the same...

    I'm guessing, but I bet if they look at the same patients again in another 20 years, there will be a big switch in those numbers.
  6. Progrression of 35-50 Degree Curves with 20 Year Follow-Up

    From the SRS meeting:

    74. Minimum 20-Year Radiographic Outcomes for Treatment of Adolescent
    Idiopathic Scoliosis: Preliminary Results from a Novel Cohort of US Patients
    A. Noelle Larson, MD;...
  7. Sheila... Your surgeon can put you in touch with...

    Sheila... Your surgeon can put you in touch with a patient or two who have had a PSO. If they can't, run the other way.

    --Linda
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    If you're concerned, you should mention it to...

    If you're concerned, you should mention it to your surgeon. Unless you've been recruited for a study, or if you're having new symptoms, there's really no specific reason to take xrays on the regular...
  9. Looks to me like he's been approved. If he's...

    Looks to me like he's been approved. If he's still having trouble, please have him contact Joe directly. Thanks.
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    There are different methods of closing, and I...

    There are different methods of closing, and I thin it may depend on the size of the fat layer.

    I can't really tell from your description, what you're seeing.

    --Linda
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    Jackie... I'm unclear of what the problem is. ...

    Jackie...

    I'm unclear of what the problem is. If you're concerned that your doctor is taking less x-rays, you shouldn't be. That's a very good thing. There has been discussion among the...
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    Gardenia... What you're seeing is completely...

    Gardenia...

    What you're seeing is completely normal. When they change the shape of your spine, the soft tissues also change. The fact that you've had a recent weight loss probably makes it more...
  13. Glad the outcome wasn't MUCH worse.

    Glad the outcome wasn't MUCH worse.
  14. Hi Maria... Unfortunately, while I can...

    Hi Maria...

    Unfortunately, while I can moderate posts, I have no control over member status. His status is showing up as awaiting moderation. I think Joe O'Brien is the only one who can approve...
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    I think I've only seen the diagnosis a handful of...

    I think I've only seen the diagnosis a handful of times. I'm really curious whether it's that patients aren't getting diagnosed or if those who have CMT don't look to have their scoliosis treated. ...
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    Rohrer... Has anyone talked to you about cervical...

    Rohrer... Has anyone talked to you about cervical myelopathy? I don't know if your hand weakness issues are normal for CMT, but it's definitely normal for cervical myelopathy.

    --Linda
  17. In order to post a LINK, you would need to put...

    In order to post a LINK, you would need to put the photo up on a website. I suspect that what you want to do is to include a photo with your post. To do that, you'll want to send the photo from...
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    I'm surprised to read that 1 in 2,500 people have...

    I'm surprised to read that 1 in 2,500 people have CMT. We actually have very few patients with the diagnosis. Maybe there's a whole bunch of people who haven't been diagnosed.
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    Hi Rohrer... Glad you have a definitive...

    Hi Rohrer...

    Glad you have a definitive diagnosis, but sorry it's CMT. Your scoliosis would now be considered neuromuscular.

    Linda
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    Hi Ronee... Welcome, and don't take this the...

    Hi Ronee...

    Welcome, and don't take this the wrong way, but my advice would be to go away from here for awhile. You're still in what would be considered the early recovery period from a big spine...
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    Hi Becky... Falls are super common after big...

    Hi Becky...

    Falls are super common after big back surgeries. I fell down a flight of stairs when I was <6 months postop. My feet went out from under me, and my back hit the front of a step. It...
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    I don't think it's anything to worry about. The...

    I don't think it's anything to worry about. The paper was published in 2008, so the surgeries were from the 90's, when they didn't use BMP and didn't know everything they know today.
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    I think the return of the rib hump is actually a...

    I think the return of the rib hump is actually a relatively rare thing, at least in people who got good correction originally. I can't imagine what would cause it to occur in a small subset of...
  24. Try Sam Bederman at UC Irvine.

    Try Sam Bederman at UC Irvine.
  25. Hi... It's definitely a dilemma. What does...

    Hi...

    It's definitely a dilemma. What does your current surgeon want to do? Before you commit, I'd encourage you to get another opinion, to see if it might be possible to do a limited fusion. ...
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