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  1. Replies
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    After going through all the posts I am disgusted...

    After going through all the posts I am disgusted by the negativity that some posters put up (and by claiming you are blunt is no excuse for parent bashing. Parents have to make choices for their...
  2. Thread: Bragging a bit

    by ecnw
    Replies
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    5,383

    The only way to show children who have scoliosis...

    The only way to show children who have scoliosis and their parents that they can have normal lives is by bragging about our kids. And it's great that her squad understands her limitations and...
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    It is very hard for some parents to see what is...

    It is very hard for some parents to see what is going on with their children. They might be in denial because the child has other problems and this is just one more thing or maybe because it will...
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    Thanks guys, I know our situation is different...

    Thanks guys, I know our situation is different because many people only staple and never deal with the rods. I believe we are one of the few that her doctor was seeing the progression from growth...
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    3,800

    The doctor felt that we could do the staples...

    The doctor felt that we could do the staples after growth rods because we were still within the perimeters. He just kept the rods in for six months longer to make sure the staples were set before...
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    Trouble with Stapling

    I was just wondering if anyone who had chose stapling over a fusion has experienced any trouble with it.

    My daughter had the staples put in a year ago after almost four years of growth rods. The...
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    11,606

    I am a parent of a child who did the growth rod...

    I am a parent of a child who did the growth rod treatment and one who is just braced. Being that your daughter is so young I wouldn't rule it out as a possibility. Yes there are more surgeries with...
  8. Thread: ccs or medical

    by ecnw
    Replies
    2
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    18,893

    I have both. What's your question?

    I have both. What's your question?
  9. I wish I knew that they pin the head down, well...

    I wish I knew that they pin the head down, well maybe I didn't need to know that, but it explained the bloody clumps on the head. I thought my daughter had hit her head the day before and didn't say...
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    Ok, I know this isn't skiing/snow boarding, but...

    Ok, I know this isn't skiing/snow boarding, but we went sledding on the weekend using a saucer and now my neck has been hurting. I think I bent it back too much when the saucer would turn and I'd go...
  11. First, thank you for summarizing those papers, I...

    First, thank you for summarizing those papers, I can never get through them (the one thing I don't have patience to do).
    I do think that the paper you mentioned has results that are skewed, major...
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    It's too bad that they're only testing on girls,...

    It's too bad that they're only testing on girls, and at age 9. I would think most parents who would be interested in having it done would be those who have a family history, in which case it can...
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    The first doctor you saw may be a good surgeon,...

    The first doctor you saw may be a good surgeon, but he is stuck in surgical proceedures from 50 years ago. Most people would be worried if a doctor didn't take x-rays, or care to talk to them. And...
  14. Thread: ~Social Issues

    by ecnw
    Replies
    8
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    3,892

    Working at a school, I suggest that you contact...

    Working at a school, I suggest that you contact the principal and talk to her to express your feelings. I think filing a formal complaint would be over the top unless this is an on going issue....
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    So, have you used the pass yet? Of course you...

    So, have you used the pass yet?
    Of course you know all us mom's would say no. It's scary to think all that you go through, and then potentially you can wind up in the same spot because you couldn't...
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    Just a reminder with the cathater, when they take...

    Just a reminder with the cathater, when they take it out be ready incase of an accident. My daughter was on the pain meds and was still a little loopy. Accident #1, she awoke once from sleep a few...
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    VBS Surgery Recovery

    Shelby had her surgery on Sept. 18. They first lengthened the rods and the added 7 staples T5-T12. Everything went fine during surgery, but the next afternoon she was having trouble breathing, her...
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    Our VBS is schedueled for Thursday the 18th....

    Our VBS is schedueled for Thursday the 18th. Shelby has been closing her ears if we dare mention the "S" word (that's what she's been calling it). I'll let you know what her recovery is like. She's...
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    My daughter goes in for stapling on the 18th. I'm...

    My daughter goes in for stapling on the 18th. I'm planning 5 days in the hospital with a total of four weeks out of school. She just started 7th grade.
    We always have her independent study for...
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    It's good to have an optomistic view of what is...

    It's good to have an optomistic view of what is going on with one so young. When mine had their MRI's, they put them to sleep so they would stay still during it. They woke up very cranky and loopy. I...
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    I had my surgery when I was eleven, had my first...

    I had my surgery when I was eleven, had my first child at 22, and my second at 24.
    I found out a week before my daughter was due that she was breech. I had a vaginal delivery, and they made sure to...
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    Sometimes doctor's talk more to parents than the...

    Sometimes doctor's talk more to parents than the kids as not to worry them, but you're old enough to hear it. If your doctor doesn't explain things more to you, think about trying to get a second...
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    You are definitly under a lot of stress & pain. I...

    You are definitly under a lot of stress & pain. I have heard success stories of people who contact there representatives, they put you in touch with someone in the office who deals with these...
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    We know it is hereditary, but I don't think it is...

    We know it is hereditary, but I don't think it is known exactly who will get it or to what degree. It was noticed in my great-grandmother's imediate family, skipped two generations, I got it, and...
  25. Thread: 504 Plan or IEP??

    by ecnw
    Replies
    8
    Views
    13,538

    We start school tomorrow, and thanks for the info...

    We start school tomorrow, and thanks for the info on the 504, I might need that one.
    In elementary, I just talked to the PE teacher, explained the situation for each child, and it was no problem....
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