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    up date with more QUESTIONS

    Leila is now 16m. old and weighs 14lb. the doctors think she has Very Long Chain Acyl-CoA Dehydrogenase Deficiency (VLCAD) which they think is the cause of her small size I understand that but what I...
  2. I am seeing if that can sent Leila to the Lucile...

    I am seeing if that can sent Leila to the Lucile Packard area of Stanford she has to go down there any way for a helmet to fix her head
  3. spent 7 days in wallnut creek, ca kaiser hospital...

    spent 7 days in wallnut creek, ca kaiser hospital on peds. floor for evaluation of eating habits.Leila is now on a 27 cal formula bottle and I have been told that if she does not eat a set amount by...
  4. just got the resalts back for the blood test for...

    just got the resalts back for the blood test for muscular disorders it come back normal :) . Her pediatretion said that he has been researching other things because they are running out of ideas and...
  5. thanks for the the thread Krystal no there is...

    thanks for the the thread Krystal
    no there is no bump or inflamed area around her birthmark and the said that the resaults of her spinal cord MRI where that there is no damage or deformity to it,...
  6. Celia & Carmell Thankyou for the response....

    Celia & Carmell
    Thankyou for the response. Leila my dautgher is my second child I allso have a 5yr old son Alek he also has problems but of a differant sort (ADHD and ocular motor aprexia).Yes she...
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    thanks both of you for the info

    thanks both of you for the info
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    8month old 20% in thorasic 30% in lumbar

    I just found out my 8 mth old daughter has scoliosis. 20% in thorasic area and a 30% in her lumbar area.is that a double curve? and if anyone can let me know what to expect for the doctors and...
  9. in need of knowlage,8month old dautghter with scliosis

    I found out a month ago that my dautghter has scoliosis she is only 8mths old
    and has a 20% in her thorasic and a 30% in her lubar. She was checked vissualy at a month old and had no signs of...
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