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  1. Replies
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    I hate to add to the list of issues here, but I...

    I hate to add to the list of issues here, but I had severe bleeding during the surgery, losing over 5 liters of blood. My kidneys shut down and I was in the ICU for 9 days (don't remember much)....
  2. Thread: One year!

    by ksmom0611
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    Fantastic Cathy! I'm so glad to hear this. I knew...

    Fantastic Cathy! I'm so glad to hear this. I knew you'd have an amazing recovery. I hope the summer is everything you want it to be!
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    Thank you so much for your response! I have...

    Thank you so much for your response! I have followed your experiences on here, but wasn't sure about the original cause for you. I'm so sorry you had to go through all of that. I appreciate you...
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    Thoracic rod removal?

    I'm frustrated to be writing in the "Revision" section, but it is what it is....

    I had my surgery in January 2015 (fusion T3-sacrum with pelvic fixation). Overall, I'm doing well, but am having...
  5. There are other certified, experienced Schroth...

    There are other certified, experienced Schroth therapists on Long Island. One is Jeanann Maguffin at Scoliosis Care Physical Therapy. She is wonderful. Try contacting her. She also knows other...
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    I hope everything turns out ok!! Let us know. K

    I hope everything turns out ok!! Let us know.
    K
  7. Replies
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    I had this concern too. Fused T3-Sacrum a year...

    I had this concern too. Fused T3-Sacrum a year ago. We still haven't quite figured it out completely, but we are working on it! Lol. I'd be happy to answer any questions privately. Basically, it can...
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    Happy Birthday to my back!

    It has been exactly one year since I was fused T3-sacrum. What a year! The first 6 months were really tough. I have come so far. Had to re-learn how to stand, walk, sit, shower, etc and now I am...
  9. Thread: Sex

    by ksmom0611
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    4
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    2,577

    I cleared it now. Thanks.

    I cleared it now. Thanks.
  10. Thread: Sex

    by ksmom0611
    Replies
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    2,577

    Thank you so much to Susan and the other PM's I...

    Thank you so much to Susan and the other PM's I received.

    Susan, I'm very impressed that you are still intimate with your husband despite all of your setbacks. The medical saga for you is...
  11. Thread: Sex

    by ksmom0611
    Replies
    4
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    2,577

    Sex

    So, here goes....

    For those of you who've had the surgery (as I have), were any of your partners afraid of hurting you during sex? That seems to be an issue for me. My sweet husband can't forget...
  12. Good news about your dr! Improving your...

    Good news about your dr!

    Improving your cardiovascular health is great, but I'd also work on strength training for your arms and legs. You end up using them A LOT after surgery. I wished I had...
  13. Any experience/knowledge of Dr. Barsi in Stonybrook, NY

    This might not be the right place to post this, but I feel most comfortable with the people in this forum.

    My almost 9 year old daughter has been diagnosed with scoliosis (18 degrees). As you can...
  14. Hi Nancy, You and I could be twins! Except I...

    Hi Nancy,

    You and I could be twins! Except I have 2 kids....but that's enough! Our levels are/were the same, as are many of the degrees and curvatures. I had the surgery in January and would be...
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    A question/thought about your knee pain. Could it...

    A question/thought about your knee pain. Could it possibly be from your oleotibial muscle? There is an ilio tibial band syndrome which can cause horrible knee pain and is apparently common with scoli...
  16. I saw both Dr.Errico and Dr. Schwab for...

    I saw both Dr.Errico and Dr. Schwab for consultations. Have you met them both? I have heard that Dr Ericco is the top specialist there, but that's hearsay. You might want to meet each one, since...
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    I'm so sorry to hear about your pain and worry. I...

    I'm so sorry to hear about your pain and worry. I have been on a Medrol pack a few times over the years. It usually takes me 3-4 days before I start to feel better, so hopefully this will kick in for...
  18. Thread: New body

    by ksmom0611
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    3,527

    Thank you for all the support and kind words. All...

    Thank you for all the support and kind words. All of you made many good points. The continued pain, the current muscle limitations are things I forget will get better with time. When you're stuck in...
  19. Thread: New body

    by ksmom0611
    Replies
    6
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    3,527

    New body

    How do people come to terms with their new body? My fusion of T3 -sacrum with pelvic fixation was in January. I still feel like my body is not mine. Every move I make is different than before. Plus...
  20. Sorry about my previous post, guess I should have...

    Sorry about my previous post, guess I should have read the ones right before what I posted! That's what happens when I do this at night! Lol.
  21. This was a huge issue for me before surgery. I...

    This was a huge issue for me before surgery. I worried a lot about it but wasn't going to cancel the surgery just for this. I had my fusion (t3-sacrum) in January (2015) and I still use the assistive...
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    I have no idea if or how this would work, but...

    I have no idea if or how this would work, but would it be worth it to contact a healthcare attorney?
  23. I'm 6 months post fusion from t3-sacrum, with...

    I'm 6 months post fusion from t3-sacrum, with fixation. I don't think I have a robot walk unless I'm really tired or in a lot of pain.but that just keeps getting better. PT is a huge part of...
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    Thanks for sharing your info. I will now begin my...

    Thanks for sharing your info. I will now begin my arm lengthening exercises....lol.
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    Any other ideas on this issue? It's actually...

    Any other ideas on this issue? It's actually starting to upset me to think that for the rest of my life I will need to use a tool to help me wipe myself in the back! It's a constant reminder of the...
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