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    Good news

    Hey all,

    Surgery went well! The rod came out easily and the docs said we could go home today. Yea!! (Apparently they think we know how to handle post op issues well enough on our own that we...
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    slipped stitch

    Melissa,

    Yes we know what happened. It actually happened during Spencer's spinal fusion surgery. His vertebrae are very fragile and when Dr. D'Astous was placing the last stitch the vertebrae...
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    Surgery Date

    Aahh, good to hear from you Renee and Maria. Hope things are well with you. The surgery is tomorrow (3-11), though I don't know the time yet. Nor do I know if it's outpatient or if we will stay...
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    More surgery for Spencer

    Hi all,

    Been a while since I've been here, but I see the forum is as helpful as ever. What a great place to share our anxieties, fears, frustrations and good news with others that understand...
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    Good luck

    Good luck with your upcoming surgery. We will keep you in our thoughts and prayers. Keep us posted.
  6. Shriners Hospitals

    Deanna,

    Welcome to the forum. I'm sorry to hear about your daughters setbacks. I know how hard it is to always be waiting, but hang in there. You are doing great. Just remember to breathe when...
  7. Thread: My son

    by Spencer's Dad
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    Doctors

    Akire,

    I'm sure that you can find suitable doctors in Europe, but you will probably have to do some research on your own. There are many people here from the UK who seem to have had good doctors....
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    Measuring curves

    Hi. I'm sure you will get others more knowledgeable about this than me posting to you, but for now, welcome to the world of inexact medicine.

    At least based on my observations, measuring curves...
  9. Generalities

    Ah, yes, Maria and Carmell, I know about these rules, but thought it would be simpler to speak in general rules for Natalie's sake since her daughter is already 20, and presumably not an existing...
  10. Thanks for the encouragement

    Natalie,

    Thanks for your encouraging reply. I never give up hope that Spencer will walk one day, and my faith lets me know that someday he will. Unfortunately, Spencer's condition is progressive...
  11. With heartfelt sympathy...

    Welcome to the forums. First of all, I just want you to know how sorry I am your daughter's curve is progressing, but also that you are not alone. There are a few of us here who have severely...
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    Opinions are like ....

    Two different doctors and two different opinions? ... LOL, imagine that.

    Sorry, hope my sarcasm doesnt upset you, but frankly, it is likely that you will get a different opinion from every doc...
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    Post Op Fever

    Hiya,

    Spencer had a fever post op for about a week. The docs said it was due to the blood loss and replacement that happened during surgery. His fever never got above 100.5. 101.5 is the...
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    Pain management

    Although I don't have scoli, I do have a herniated disk that causes me continuous sciatic pain all day everyday. I remember starting to have pain about 1995, so I've lived with it for a long time. ...
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    Thanks for the poster

    Amber,

    Thanks for taking the time to make this poster. I put it up in my office during scoli week and it really generated a lot of discussion. I am amazed at how little most people know about...
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    Congrats!!

    Maria,

    Congratulations on the anniversary. It is a big thing and definitely worthy of acknowledgment.

    It's sad that scoli is what has brought all of us here together, but at the same time...
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    Bad then good news for Spencer

    Hi all,

    Just wanted to update you all on Spencer. We noticed he was acting kind of funny this week and so we called his hip ortho, Dr. Carrol, at Shriners SLC and she ordered x-rays. Yep you...
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    GI issues

    Once again, I agree with Carmell. I'm sure that scoli affects the GI tract, although you will be hard pressed to find a GI doc who will admit or confirm that. Spencer's GI issues have calmed down a...
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    Good luck

    Stacey and Cole,

    I'm glad the docs took time to give you a thorough explanation. I have found over the years that when a doc takes the time to explain his reasoning, even if they don't have all...
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    Movin' right along

    Sounds like Heather is right on track for a great recovery. Tell her everyone here is pulling for her and give her our best wishes. We are thrilled that things are going so well.
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    I understand your point, but....

    Ok, look, I think you you probably are over reacting just a little bit here for several reasons which I will explain.

    First, with respect to this person publicizing MS over scoli, the truth is MS...
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    Hooooorah Heather!!!!

    We are so glad Heather's surgery went so well today. You all have been in our thoughts and prayers. It is so hard to see these little ones in such vunerable and helpless states. Dont worry about...
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    Surgery today?

    Thinking of Heather and her family today during surgery. Keep us posted.
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    Red spots

    Ken,

    Glad to read that the brace is helping so much. It sounds like you have a lot to be proud of. It's hard for these little guys having to deal with so much grown up stuff so soon. I laughed...
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    Hmmmm....

    Never thought much of chiro's to begin with, but If I were you I think I'd at least try to find a new one.
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