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  1. Replies
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    Hi, Amanda: My shorthand seems to be confusing. ...

    Hi, Amanda: My shorthand seems to be confusing. My scoliosis was discovered when I was age 65, not 65 degrees. My curves were 24*, 36*. My fusion is to the pelvis.

    Dr. Hu did my original...
  2. Thread: Broken Rod

    by susancook
    Replies
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    703

    Tam, Welcome to the "Broken Rod Club". So sorry...

    Tam, Welcome to the "Broken Rod Club". So sorry that this happened to you and somehow hope that the remedy comes soon.
    Susan
  3. When you sit in the car, take a soft pillow to...

    When you sit in the car, take a soft pillow to put behind you.
    Patience.
    Get out of the house....only to sit outside and breathe the fresh air.
    Susan
  4. Welcome, Jana! "Turning points" in recovery are...

    Welcome, Jana! "Turning points" in recovery are so personal, but just getting out of the hospital into "life" as I call it was quite big! Showering made me feel human again....washing off the...
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    Just wanted to say hi and that I wore a brace...

    Just wanted to say hi and that I wore a brace after all of my surgeries. While at times somewhat uncomfortable, it gave me confidence that I was healing in the right direction. Also, when I went to...
  6. Linda, hang in there! I wore a soft neck brace...

    Linda, hang in there!

    I wore a soft neck brace for 3 months after a thoracic redo. Not fun, but "keep your eyes on the prize".

    Find out which anesthetics that were used in your surgery and...
  7. So glad that your daughter is doing well. ...

    So glad that your daughter is doing well.

    Jerky rides? I do not suggest it! She has the rest of her life to do the roller coaster, but this soon after surgery, probably not.

    Memory foam...
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    Yes, yes, yes! Many Spinal Teams have a...

    Yes, yes, yes! Many Spinal Teams have a dedicated pain management person. Do meet with that person before surgery. Explain your story (not unusual), and listen. Write down everything that is...
  9. Ed, you are in my thoughts and prayers. Take...

    Ed, you are in my thoughts and prayers. Take time for yourself. Your brother is lucky to have you as his brother. Blessings, Susan
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    Susie, I am overwhelmed with sadness and want to...

    Susie, I am overwhelmed with sadness and want to give you a big hug. I cannot imagine what you are going through, but I do know that you will get through this. Your daughter needs your love and...
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    Welcome! You are probably in the "Adult Onset...

    Welcome! You are probably in the "Adult Onset Degenerative Scoliosis " group and in general folks in our group are older, have smaller curves, and frequently in more pain. Like Irina, I had Dr. Hu...
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    Trust means letting go and relaxing and believing...

    Trust means letting go and relaxing and believing that your surgeon will do his/her best. I would look at Dr. Hu's picture, take a deep cleansing breath and say out loud, "trust". The morning of...
  13. Replies
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    Glad that something that I have written here has...

    Glad that something that I have written here has helped someone!!!!

    Kathy, you will BE OK. In fact, you will be so-o-o-o-o-o-o much better than that after surgery. In August 2014, I had...
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    Describes pain well! Susan

    Describes pain well!
    Susan
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    Sounds like electrical shocks to me. I have them...

    Sounds like electrical shocks to me. I have them now from my T4,5 spinal cord injury. I take Lyrica, Tizanidine, and Baclofen for nerve pain. My nerve pains have changed some with time and I do...
  16. Love, love, love Dr. Hu! She is awesome! I am...

    Love, love, love Dr. Hu! She is awesome! I am unsure who her current PA is currently, but if the PA/NP works with her, that person is highly competent!
    Susan
  17. Replies
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    Excellent points. I traveled back to SF until I...

    Excellent points. I traveled back to SF until I transferred to OHSU after my spinal cord injury at 16 months postop.
    I guarantee, something will go wrong or will be unexpected.
    Susan
  18. Replies
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    Welcome! Sciatica is a bummer. That was one of...

    Welcome! Sciatica is a bummer. That was one of the 2 pains that initially drove me to surgery (the other being the kyphosis pain). I remember Dr. Hu saying that she was not certain that she could...
  19. Thread: One year!

    by susancook
    Replies
    10
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    852

    Need photos!

    You lost me with the "get the foot on the arm of the chair".
    Send video!
    S.
  20. Thread: One year!

    by susancook
    Replies
    10
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    852

    Congratulations! This summer will be so much...

    Congratulations! This summer will be so much more active for you! Enjoy and stop worrying about a problem cropping up. I'very got that area covered.
    Susan
  21. Welcome! My thoughts: Connect with a great...

    Welcome!

    My thoughts: Connect with a great adult deformity scoliosis surgeon, probably at UCSF. Get an opinion....what happens when you don't do anything? See anything that means need for...
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    Great ideas! Both Neurontin and Lyrica can be...

    Great ideas! Both Neurontin and Lyrica can be sedating, so start out slowly.

    After you have had testing to see just which nerve(s) is/are affected, I believe that there are some nerve stimulating...
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    You should be very proud of yourself for facing...

    You should be very proud of yourself for facing something as scary as spine surgery and having the courage to go through it! Pat yourself on the back!
    Susan
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    So sorry about your foot drop. My only thoughts...

    So sorry about your foot drop. My only thoughts are Lyrica or nerve pain and a lower leg support to decrease the foot drop. You have probably tried this.

    Hope that it gets better with time. My...
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    The good Admiral, is rolling over in his grave....

    The good Admiral, is rolling over in his grave.
    Trooper Susan....still crutchin' along
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