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  1. Replies
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    I am a "scoli mom" and I thought this thread was...

    I am a "scoli mom" and I thought this thread was interesting because in the summer of 2009, when my daughter was diagnosed, I developed shingles on my upper legs. I am also outside all the time and...
  2. Hello! I agree, the diary is an excellent...

    Hello!

    I agree, the diary is an excellent idea. At the very least, be sure to bring a notebook to write down instructions, questions, etc. Someone here recommended that to me and it was absolutely...
  3. I was a mess during my daughter's surgery. I...

    I was a mess during my daughter's surgery. I think I could have benefited from some valium or something, and have heard from other parents that they were unable to calm down in the days leading up to...
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    Hello: I finally had time today to read...

    Hello:

    I finally had time today to read through this thread some more and I think you are definitely doing the right thing, looking around for an ortho that you can work with. My daughter's...
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    Hello: Hope your daughter is okay!? My...

    Hello:

    Hope your daughter is okay!? My daughter had her followup with her surgeon just yesterday (she is about 5 months post-op) and he cleared her for just about everything except situps (he knew...
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    Hi! Just wanted to chime in and say it sounds...

    Hi!

    Just wanted to chime in and say it sounds like your son has a great attitude and that is a LOT of the battle. Most kids do just great with this surgery. And from the posts I read from adults...
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    It sounds like this definitely varies from...

    It sounds like this definitely varies from surgeon to surgeon. My daughter was called in early for surgery, and we happened to have a cleaning scheduled about a week prior. Our surgeon said to go...
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    Take a deep breath . . .

    Hello:

    I can truly relate to your feelings. We learned in March that my daughter was definitely in the surgery zone, had scheduled surgery for August, but then just when I was making myself nuts...
  9. Hi again: Yes, I should have said I did call...

    Hi again:

    Yes, I should have said I did call the nurse practitioner and after talking with her we both thought this was "normal" healing pain and it did go away. I think this kind of pain coupled...
  10. I hope this turns out to be a minor blip in the...

    I hope this turns out to be a minor blip in the healing road for Chey.

    My daughter also complained of very sharp pains near her right shoulder, and it seems like this was several weeks out from...
  11. I want to second Leahdragonfly's recommendation...

    I want to second Leahdragonfly's recommendation for Dr. Luhmann.

    My daughter had fusion surgery this summer at Children's Mercy/KC and had an awesome outcome and we loved her doctor and team, but...
  12. Hi again. My daughter's right scapula protruded...

    Hi again. My daughter's right scapula protruded quite a bit after surgery. It is definitely resolving and looks much better. (She is also very thin, like Cheyenne, so I think everything probably just...
  13. So glad Cheyenne is doing so great!

    My daughter didn't have that type of bandage. She had the dressing covered by a wide piece of tape, which the nurse took off 10 days post-op. Then, all was held together with surgical glue, which...
  14. Hello: Welcome to this forum. You will learn a...

    Hello:

    Welcome to this forum. You will learn a lot and hopefully find great support here, too.

    I have two daughters and the youngest had fusion surgery this past summer. I have always, in the...
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    Tall and thin link to scoliosis?

    Had to chime in. Our daughter's orthotist (last year, before her fusion, obviously) said he sees a lot of tall and lean kids. I thought that was interesting and certainly describes her to a T.
    ...
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    Hi everyone: My daughter is the one who is...

    Hi everyone:

    My daughter is the one who is participating in this pain management study - when it is published I will be sure and share the info.

    I just wanted to clarify that I certainly don't...
  17. Thanks for posting, been wondering!

    I agree, your daughter is such a pretty girl. Fun to see all the pics. Her back looks amazing.

    I hear you on having trouble getting her to move around much. We set some goals right after returning...
  18. Yay! So happy for all of you. You will all be so...

    Yay! So happy for all of you. You will all be so glad to get home!

    I keep saying this but I truly believe it . . . most of these kids are resilient and heal exceptionally well.

    Go Cheyenne!
  19. Oh no! On top of everything, she DOES have a...

    Oh no! On top of everything, she DOES have a bladder infection. You know that has just got to be making her even more uncomfortable. What a bummer, I just sincerely hope she turns a corner soon.
    ...
  20. I really hope all is a little better in SLC...

    I really hope all is a little better in SLC today. Have been thinking about all of you. This is a really rough surgery, no doubt, and it is hard on the whole family.

    Hang in there Gryffindor, it...
  21. Oh, I am so sorry about all this. Wanted to share...

    Oh, I am so sorry about all this. Wanted to share that my daughter had a very rough day in the hospital at day 4. She also had what appeared to be a UTI, but was not(sample tested negative.)...
  22. Aw, the memories!:rolleyes: My daughter wasn't...

    Aw, the memories!:rolleyes:

    My daughter wasn't crabby, per se, but she did have a day in the hospital when she was really down and crying (very unusual behavior for her; she is pretty stoic) about...
  23. I was SO GLAD to log in and see that everything...

    I was SO GLAD to log in and see that everything went well with Cheyenne's surgery. My daughter ran a slight fever and was just VERY WARM the whole time she was in the hospital. She wanted the air...
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    I agree with jsully! My 14-year-old daughter had...

    I agree with jsully! My 14-year-old daughter had spinal fusion about 8 weeks ago, and she did great getting in and out of the van. It was much easier for her to get in and out of the front passenger...
  25. Didn't have a chance to post on all the...

    Didn't have a chance to post on all the excitement at Cheyenne's school on Friday. Wow. Again, though, a "nice" distraction (ha):rolleyes:

    Anyway, woke up this morning thinking about all of you....
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