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    Trying to figure out tight sacral pain

    I am fused T1 to sacrum with pelvic fixation x 6 years ago with a few revisions. Of recent, especially after a lot of walking [I use crutches as I am a partial paraplegic.....long story], my sacral...
  2. Thread: Broken neck

    by susancook
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    1,648

    Jackie, Hoping that you find some peace with...

    Jackie,
    Hoping that you find some peace with your pain and disability. I think that both of us are the biggest nightmares of anyone considering spinal cord surgery. I continue to try to have a...
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    Thank you Jackie, Linda, and Ed. Unsure what I...

    Thank you Jackie, Linda, and Ed. Unsure what I will do. Bummed.
    Susan
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    Anyone have a spinal stimulator?

    Dr. Bob Hart suggested a spinal cord stimulator for my R leg chronic pain, recently diagnosed as CRPS. Anyone have an experience with a spinal stimulator?
    Susan
  5. Thanks Jackie, good advice. I am further...

    Thanks Jackie, good advice. I am further hampered by my Partial Paraplegia [I use Canadian crutches and wheelchair] , so I need both arms to get in and out of bed.
    When will this madness stop? I...
  6. Thread: Broken neck

    by susancook
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    6
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    1,648

    Oh Jackie! Wow, what a survival story and all on...

    Oh Jackie! Wow, what a survival story and all on Tylenol!
    I hope that you can find an acceptable quality of life and that "fixes" do not add more problems.
    You are due Good Karma.
    Thinking of...
  7. Ed, thanks for the info. I thought that I...

    Ed, thanks for the info. I thought that I patented the quick kick to roll over.
    Unsure when I will have a shoulder replacement. I meet with the surgeon on the 29th July. Her PA said that most people...
  8. Anyone w/ full back fusion had a shoulder replacment and can still roll out of bed?

    OK Folks....strange question, I know, but I need your collective help!

    I have ZERO cartilage in my R shoulder. Yikes! So, I saw an orthopedic shoulder surgeon who said that post op of a total...
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    Ed, Call Dr. Menmuir and ask him to come out of...

    Ed, Call Dr. Menmuir and ask him to come out of retirement and help me and Rita!

    Susan
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    Rita, I hear: - that you are in a lot...

    Rita,

    I hear:

    - that you are in a lot of pain
    - you heard Dr. Lenke look at the xrays and say, "Well, I can see why you are in such horrible pain...look at this right here..."
    ...
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    Have you seen a physiatrist or Pain Management...

    Have you seen a physiatrist or Pain Management doc? Maybe she/he could help pinoint the problem with procedures?????

    Susan
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    Rita, So sorry about all of your pain. I may...

    Rita,

    So sorry about all of your pain. I may not have read all of the postings above, so forgive me if I suggest something that you have already said.

    I suggest that you call Dr. Lenke's...
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    Not-a-roasted-chicken

    To Not-a-Roasted-Chicken,
    Where do you live? I have not had a problem with doctors not taking Medicare.
    Susan
  14. I was 4' 10" before surgery and thought that I...

    I was 4' 10" before surgery and thought that I might qualify for Little People of America club. I gained about 3" with surgery.
    Susan
  15. The only choice that you have is your attitude

    Yes, Ed is so correct! Attitude is everything. I was a paraplegic in rehab sitting in my new wheelchair crying saying to myself, "I don't deserve this. I don't want to be here in rehab as a new...
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    Hi Pam, Sorry that your pain is so limiting. ...

    Hi Pam, Sorry that your pain is so limiting. Where do you live? Is there another pain management doctor that you can see? You, Linda, Jackie, and I are the poster patients for surviving problematic...
  17. Hello Jenson, I am not on the forum much...

    Hello Jenson,
    I am not on the forum much anymore, but will add a few cents of advice.
    Bras are over rated.
    Most spine postop units control pain well. My first surgery was at UCSF and I barely...
  18. Leanne, First of all, stop, stop, stop reading...

    Leanne, First of all, stop, stop, stop reading the stories of the "Sorry that I had surgery". I read and reread them also before surgery and it did little to help my attitude.

    I had surgery at...
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    Only the tough survive!

    Oh my, Jackie! I do not check the forum very much.....but I need to send you get well wishes and hope for decreased pain and increased mobility in the future. The reason that I shy away from the...
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    Ginger, Do you have a secondary insurance to...

    Ginger,
    Do you have a secondary insurance to Medicare?
    The ambulance that transported me from UCSF to ??? St. Francis for rehab was paid by Medicare.
    I cannot think of anything that wasn't...
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    Hello Maria, Please let us know what your doctor...

    Hello Maria, Please let us know what your doctor wants to be about your "discitis". I have had a post operative infection of my spinal hardware, but I understand that you have not had any surgery...
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    Hello. I am not on the forum much. I had...

    Hello. I am not on the forum much. I had scoliosis and then a T4,5 SCI from a pedicle screw "indenting" my spinal cord.
    Yes, I had the same experience with the headrests hitting my head. Irina,...
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    Hello Ginger! I occasionally browse the Forum...

    Hello Ginger! I occasionally browse the Forum and thought that I would respond to your request for info. I am fused from T1-Sacrum. I started at T3-Sacrum but with each thoracic surgery, the next...
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    Thanks Marianne, I had a cervical radio-frequency...

    Thanks Marianne, I had a cervical radio-frequency ablation done on Monday in hopes that I can get some pain relief. Hope that Spring is starting to bloom in your neck of the woods.
    Susan
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    Marianne, I am so-o-o-o-o-o much better without...

    Marianne, I am so-o-o-o-o-o much better without staples. Yikes, they hurt! Apparently that is the closure of choice for the Spine Fellow. Never again! The surgery was really a piece of cake...
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