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  1. Replies
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    I haven't posted in a couple years...

    For those of you who are are in the early onset JIS world, my daughter is almost 13 and while she is not at maturity yet, it appears bracing has been a success for her. Her 35* curve at age 7 has...
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    OK, forget it. You guys make this very hard. ...

    OK, forget it. You guys make this very hard. For the record, my post does not offer any opinion one way or the other as whether bracing in this case is a good idea, and I mentioned absolutely...
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    8,477

    Oh please, of course I didn't mean ignore the...

    Oh please, of course I didn't mean ignore the emotional issues--I would appreciate it if you would refrain from jumping all over people who are trying to help. I simply was trying to address the...
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    Hi Denise, 12-13 is a tough age to start the...

    Hi Denise,

    12-13 is a tough age to start the brace. Kids are so much more self-conscious at that age. Emotional issues aside, however, I am wondering about your comment that the night-time is...
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    Hi, our daughter was diagnosed at about 7 yo and...

    Hi, our daughter was diagnosed at about 7 yo and her curve quickly increased from 25* to 35* despite night-time bracing. We did consider VBS at Shriners but, as you can see from my signature,...
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    G was sedated with gas. Very easy. Only thing...

    G was sedated with gas. Very easy. Only thing is they can't eat prior to sedation so try to get an early appointment--G's wasn't until the afternoon because they had to squeeze her in and she was...
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    3,902

    Couple more things

    Hi Kat, I would also advise you to take what you see on the internet with a grain of salt. When I have looked at photos of the type of brace my daughter has, they look NOTHING like her brace, which...
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    Hey Gayle, hope things turn out OK. What a...

    Hey Gayle, hope things turn out OK. What a terrible time of year for things to take a painful turn (not that there's any good time). I'm sure your family will take good care of you while you are...
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    3,902

    Hi Kat, I would say we are one of the "good...

    Hi Kat,

    I would say we are one of the "good stories". Search my screen name and you can see my posts about my daughter's experience so far. She was diagnosed at almost 7. Even when she was...
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    Hi John, I have no idea what I am doing on your...

    Hi John, I have no idea what I am doing on your thread other than that I'm a Mom with a kid who used to throw up a lot... :) Veggies are not the sensitive stomachs friend so be careful there. Your...
  11. Just FYI, there are no appropriate shields...

    Just FYI, there are no appropriate shields available at the National Children's Medical Center department where we go. If there aren't any there, it is probably not that uncommon. Our doctor had no...
  12. I bought a lead half-apron, maybe a child size,...

    I bought a lead half-apron, maybe a child size, not sure, which works fine from a medical supply company. Did it online. It has a velcro strap that holds it in place. It needs to be positioned...
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    Thanks, all. I feel like she now has made it...

    Thanks, all. I feel like she now has made it safely through the growing rods minefield, and we go on now to adolesence and whatever that will bring. Our next hope is to get her safely to maturity...
  14. I had to talk to the doctor about the shielding...

    I had to talk to the doctor about the shielding issue. She now writes it on the order so there is no dispute when we get to x-ray. However, I had to purchase and bring my own shield, as they don't...
  15. Thread: Spam Attacks

    by mamandcrm
    Replies
    82
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    35,924

    Sticky: New spam member today...

    can tell by the nonsense name. Maybe can zap before it gets started?
  16. Replies
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    11,743

    More Good News

    Hi All. G just had a new x-ray (it's been a year), and her curve is measuring at 10*. She has continued to wear the Rigo-Cheneau brace 10-12 hours a night. I don't keep close track of her height...
  17. Thread: Spam Attacks

    by mamandcrm
    Replies
    82
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    35,924

    Sticky: Looks like there are a bunch more...what a waste...

    Looks like there are a bunch more...what a waste of everyone's time!
  18. For what it's worth, and every insurer is...

    For what it's worth, and every insurer is different, when my daughter was first diagnosed we were in the midst of changing from a group/corporate policy to basically an independent policy...
  19. Thread: Spam Attacks

    by mamandcrm
    Replies
    82
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    35,924

    Sticky: Thank you for your efforts. These posts seem so...

    Thank you for your efforts. These posts seem so senseless, there are not even links in them, just random. I do see them being approved as members. When I looked today we were welcoming some new...
  20. Thread: frustrated

    by mamandcrm
    Replies
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    11,054

    Hi, I realize it's probably about 4 hours from...

    Hi, I realize it's probably about 4 hours from you but we have had a good experience with the Virginia annex of the National Children's Hospital in DC. They have pediatric scoli specialists who...
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    Hi Melissa, it sounds like from the posts you are...

    Hi Melissa, it sounds like from the posts you are wearing a hard brace in prep for surgery? If it's a heat rash, my kid used to get that frequently in the summer wearing her hard brace for all kinds...
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    Well, as I said, we never had the problem and...

    Well, as I said, we never had the problem and she's always just done what she wanted, and always wore her hard brace for sports when she was in it full time--lots of sports work the core muscles. ...
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    For whatever it's worth, our surgeon has always...

    For whatever it's worth, our surgeon has always told us that our daughter can do whatever sport she wants to do. That there is no real evidence that any particular thing helps or hurts. Fitness is...
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    Glad you had a good experience and the curves are...

    Glad you had a good experience and the curves are stable!
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    Go for the holes. The shirt is made of...

    Go for the holes. The shirt is made of breathable material. The holes will help.
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