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  1. I am really surprised that Dr Zeller is in a...

    I am really surprised that Dr Zeller is in a hurry to do her surgery but every case is different. If my memory is correct my sons curve was at 68 when Dr Zeller told me there was no hurry to do his...
  2. I found that the more my son learned about...

    I found that the more my son learned about scoliosis the better it made it for him. Although he didn't ask many questions I know he was listening when I talked about it. Learning about the pros and...
  3. If your willing/able to go to Toronto try Dr...

    If your willing/able to go to Toronto try Dr Lewis. I believe he is at Toronto Western. He does kids and adults and will be my sons next doctor as he is now 18. I can't give my opinion as I have not...
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    Hi Renee I think it was more he felt the...

    Hi Renee
    I think it was more he felt the instrumentation was enough to hold him in check. And it is true that the instrumentation hasn't moved at all. I did make the surgeon aware at the time that...
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    Hi Renee I remember talking to Patricks...

    Hi Renee

    I remember talking to Patricks surgeon about anterior surgery becasue of the size of his curve and his lack of maturity but he felt in his case it wasn't necessary. In hindsight maybe I...
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    Hi Del, Guess I missed some of your posts along...

    Hi Del,
    Guess I missed some of your posts along the way and didn't realize till now what your daughter has been going through painwise and another upcoming surgery!!! I am so sorry for her and your...
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    I think whats most important right now is to find...

    I think whats most important right now is to find out from a qualified orthopedic surgeon what his true curves are and see what the progression has been and go from there.

    Regarding bracing, and...
  8. although I had packed a novel I was able to do...

    although I had packed a novel I was able to do little more then leaf through magazines. I sat, wandered the halls, felt numb, cried, waited, tried doing crossword puzzles. But I think the thing that...
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    just wanted to comment too that the bus ride for...

    just wanted to comment too that the bus ride for my son was also too much initially and I ended up having to drive him to school for a couple months. The worst part of school was the uncomfortable...
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    Chris43 Interesting thought on the German decent...

    Chris43
    Interesting thought on the German decent as my son is of german decent. Don't imagine there is anything to it beyond coincidence but wonder what the statistics are on scoliosis and race.
    ...
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    It will get better. And he does it to you because...

    It will get better. And he does it to you because he knows you can tolerate it and still love him for it. I think its like a release of anger/pain whatever. At any rate just know you aren't alone. My...
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    My son would get so angry with me in the...

    My son would get so angry with me in the hospital. I couldn't do anything right for him. He doesn't really remember any of that. Apparently it's very common for the child to vent in this way and it's...
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    I just wanted to mention that Sickkids hospital...

    I just wanted to mention that Sickkids hospital in Toronto uses this low dose x-ray for the past 2 years that my son has gone there....
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    One thing I'd like to point out that you don't...

    One thing I'd like to point out that you don't hear very often but your husband might like a heads up before hand, is that she will be very swollen, especially her face. My sons eyes were so swollen...
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    My son's surgery was done when he turned 15,...

    My son's surgery was done when he turned 15, posterior only and he has crankshafting. His curve was beyond 80. I may not know the reasons why your surgeon wants to do the surgery sooner then later...
  16. My son had his surgery just after turning 15 at...

    My son had his surgery just after turning 15 at which time his curve was beyond 80*. He was skeletally immature but had only the posterior surgery. He has since developed crankshafting and his...
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    My son has the same winged scapula as you...

    My son has the same winged scapula as you describe. He has idiopathic scoliosis for which he has had surgery. He inherited the winged scapula from his father and my daughter also has this condition....
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    Even when my sons curve was at 68 his surgeon...

    Even when my sons curve was at 68 his surgeon felt there was no urgency to go ahead with surgery. It gave us some time to seek more opinions. And because he was still growing, even with a severe...
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    It's good when they start talking about it. But...

    It's good when they start talking about it. But don't be fooled when they don't because they surely are thinking about it. For the longest time Patrick didn't talk but he told me after his surgery...
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    By now Tammy will already be out of surgery, I...

    By now Tammy will already be out of surgery, I know how scary and long this day has been for you and my thoughts are with you. Wishing Tammy a speedy recovery!!
    Ramona
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    Next week we go to my sons last checkup (3 years)...

    Next week we go to my sons last checkup (3 years) at Sick Kids hospital...he's 18 now. We have felt so safe with Patrick's surgeon and yes it is sad to be leaving and kinda scary. Just hope we will...
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    Hi Trav86 I don't see others talk about their...

    Hi Trav86
    I don't see others talk about their ribhumps returning so I am thinking it is less common. I think it has to do with the crankshafting. I'll see if I can explain it. Basically with...
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    Everyone is different but in my sons situation...

    Everyone is different but in my sons situation when he first saw his surgeon at about 68* the surgeon said yes he needs surgery but there is no immediate hurry. As he had a fair bit of growing to do...
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    My son fused T4 to L1 (posterior only) went into...

    My son fused T4 to L1 (posterior only) went into surgery at 8 am, surgery complete at 4pm so 8 hours but this includes that he was put into traction during surgery
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    Hi Becky Glad to hear everything is going well...

    Hi Becky
    Glad to hear everything is going well with your DD. I think it's good for parents contemplating this surgery for their kids to hear from people like yourself.
    My son Patrick is doing well...
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