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  1. Thread: Ehler-Danlos

    by SalsMom
    Replies
    11
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    15,827

    Another EDS/Scoli patient

    Hi Bendy Folks!

    I'm so glad to have found this thread! I was hypotonic at birth, to the point where my parents were told I would not survive and were not allowed to see me for a week. I'm still...
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    Follow-up

    Hi,

    I called the specialist's office to make sure he's still here. We have a medical school and as a result specialist/professors are sometimes here only for a certain length of time. He's still...
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    Thank you!

    Thank you so much!

    Though I grew up in the US I married a Canadian and have lived in Canada for many years. Insurance is not a problem, as we have provincial Blue-Cross coverage which covers most...
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    3,710

    What specialty do I ask to see?

    I had physio and some brief bracing as I recovered from paralytic polio (aged 11 - 55 years ago) when my scoliosis developed. Once I was in my 30s I sought help for pain in right hip and leg and back...
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    I went through a period several years ago when I...

    I went through a period several years ago when I couldn't tolerate lying down, I got one of the "zero-gravity" lawn chairs and slept in it for two years. Then I was okay for a couple of years, now...
  6. Has anyone tried the Lycra Orthosis Compression Suit for adult scoliosis?

    Hi,

    I'm new here, certainly not new to scoliosis, which I've had since I had polio at age 11. Idiopathic scoliosis runs in my family, mother, uncle, cousins, some of whom had fusions. Mine was...
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