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  1. Replies
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    I'm SO SORRY about the rotten deal with your...

    I'm SO SORRY about the rotten deal with your father. Yes, you needed to share that with us. It is so unfortunate when people are viewed more as objects. It must have been very difficult for all of...
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    It's so good to hear from you again, Rohrer. I am...

    It's so good to hear from you again, Rohrer. I am so sorry about your pain, but it's good to know the SI joint injections helped. Ah, yes, thrush... I developed a bad case of it back in college when...
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    Thanks so much, Rohrer, for the informative post....

    Thanks so much, Rohrer, for the informative post. So sorry to read about your niece-- so busy and with so many problems. I read about people who are terribly afflicted with their CMT in this facebook...
  4. Rohrer - I responded already in your timeline,...

    Rohrer - I responded already in your timeline, before I saw this one... sending my best, Susie
    Here-- I decided to cut and paste so things could be together...

    Dear Rohrer - I appreciate the...
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    Dear Rohrer - I appreciate the update and want...

    Dear Rohrer - I appreciate the update and want you to know you're in my thoughts and prayers. How good of you to warn others about awareness of hypokyphosis and its possible complications, all in the...
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    Hi SewBzzzy! Welcome to the forum! I don't know...

    Hi SewBzzzy! Welcome to the forum! I don't know if what I say may be a help or not, but I'll go ahead. I had my surgery, T2-L4, when I was 56. I was the elementary school librarian, and I'm sure my...
  7. Susan - that sounds like you are doing remarkably...

    Susan - that sounds like you are doing remarkably well - 20 steps! I'm impressed. As Dorothy said, "There's no place like home..." and I'm so glad you are there now. It sounds like you have a good...
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    It is so hard to set that date and go for it! Now...

    It is so hard to set that date and go for it! Now you have a definite hope and goal, and that seems like a pretty good Christmas gift. I'll be praying for a very successful surgery and for your...
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    Dear Ginger - I'm absolutely delighted to hear...

    Dear Ginger - I'm absolutely delighted to hear your update and I'm sure it will benefit many who wonder... I am 8 years out and able to do much, with some limitations, plus CMT. Enjoying life to the...
  10. Ditto here. Hooray for the cancellation! Your...

    Ditto here. Hooray for the cancellation! Your bright red nails will draw attention to your feet... (if that's all you're wearing!) But not really. Praying for you!
  11. Susan- sending love and prayers. I am so glad you...

    Susan- sending love and prayers. I am so glad you feel you can share with us ALL of your thoughts. Just think if you (and Linda, Melissa, Jackie and others) didn't discuss your difficulties, others...
  12. Linda is correct-- we are all different. I am not...

    Linda is correct-- we are all different. I am not fused to the sacrum but have to be cautious of my lower two vertebrae (fused T2 to L4). I still cannot clean the tub without it literally (almost)...
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    Yes, Ed. Thanks for sharing. All 3 episodes were...

    Yes, Ed. Thanks for sharing. All 3 episodes were very interesting. (smile) Quite a life! Extraordinary man!
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    Hi Delta! I don't know if this suggestion would...

    Hi Delta! I don't know if this suggestion would help you or not, but thought I'd throw it out there in case. I used one of these for about six years at my job at a school, and had my passenger van...
  15. A resounding "Amen!" to that, Jackie. Susan- each...

    A resounding "Amen!" to that, Jackie. Susan- each day I have opened up this thread and each day I have been at a loss of what to say. You are my dear scoli friend and I am numbed by the unfairness of...
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    Hi Rohrer! I've thought about you often and...

    Hi Rohrer! I've thought about you often and wondered how you are doing! It sounds like you have had some major difficulties plus the progression, and I am so sorry. Thank you for posting the update....
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    I like the way Susan put that! Too many battles!...

    I like the way Susan put that! Too many battles! On to recovery! You are a trooper! So sorry for the problems of going home too soon and subsequent consequences. That's the pits. How on earth did Ed...
  18. Praying that this resolves that problem and that...

    Praying that this resolves that problem and that YES, you do not break anything else! Love and hugs, Susie
  19. Dear Susan - how many times do we say "Can't...

    Dear Susan - how many times do we say "Can't believe this has happened to you!" I am so sorry! I, too, am not a member of this elite club but one day I may find myself here, but probably caused by...
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    Dear Susan - We go back several years and I've...

    Dear Susan - We go back several years and I've been wondering whether to say something or not but decided to go ahead. I wish you all the best with your upcoming surgery and am glad you have found a...
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    Dear Fifa- it's so good to hear from you! You...

    Dear Fifa- it's so good to hear from you! You have been very busy! And yes, if you do a search, there have been many people who have had brain fog and memory problems that lasted awhile after their...
  22. Susan- Bless you and your situations! I am always...

    Susan- Bless you and your situations! I am always amazed at the calm way you update us and are able to throw humor in even though the situation is anything but funny. So sorry for the pain you...
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    So sorry, Melissa -- I'm sure it seemed like the...

    So sorry, Melissa -- I'm sure it seemed like the hair on the camel's back in terms of frustration. I'm glad Ed was here to see your post and provide a little humor as well. Radiologists taking...
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    Not that it matters, but I am sure that I...

    Not that it matters, but I am sure that I remember Karen did not have hardware to begin with. I think I remember because she is like a friend of mine... they had their surgeries before hardware was...
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    Whoo hoo! I bet you are doing the Happy Dance!...

    Whoo hoo! I bet you are doing the Happy Dance! And so are many of us! So happy for you, Melissa. Big smile!
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