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  1. Dr. Hu has been out of town and just returned to...

    Dr. Hu has been out of town and just returned to Stanford. I had faxed her the CT result last week and requested that they immed send her a disc of my CT Myelogrm w/contrast. She saw the report and...
  2. Patience my ass, I'm going to kill something

    I have been laying low....hoping for a miracle that has not come yet. I am in a Skilled Nursing Facility, alias for "Nursing Home". I remember the bumper sticker, "be kind to your children because...
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    Sugar water injections

    "Sugar water injections"..... Be afraid be really afraid. You did what you needed to do, which was check it out before you do it. It is also reasonable to ask you MD to "send you to the medical...
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    Wow! I hope that this does it. It is...

    Wow! I hope that this does it. It is frustrating to tell someone that you have pain and they cannot figure out where it is coming from.
    Susan
  5. Temporary paralysis of fibromyalgia

    Thanks everyone for your kind words.

    Bottom line: all of the tests (CT with contrast; spinal tap; various tests on spinal fluid; MRI; EMG, lots pf blood work) done were not abnormal to explain...
  6. Tis a mystery to me! Had tests today, but...

    Tis a mystery to me! Had tests today, but results have not come back yet....to me at least. The spinal tap was painless after small lidocaine injection. Lady Neurologist w/ "Better hair day" came...
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    Sheila, do you know if after your revision...

    Sheila, do you know if after your revision surgery and a recup period if you will be permanently disabled?
    Susan
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    Melissa, Scoliosis comes in many forms with...

    Melissa,

    Scoliosis comes in many forms with many etiologies. Since my scoliosis was secondary to multiple degenerative/ stenotic processes in my spinal vertebrae, my surgery was to alleviate...
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    There is no guarantee concerning the alleviation...

    There is no guarantee concerning the alleviation of pain with fusion surgery. There are statistics about patients after scoliosis fusion that have more, less, and the same pain. I do not remember...
  10. I was laughing so hard that I don't remember if I...

    I was laughing so hard that I don't remember if I got the wax job or not? Oh, you're talking about a Brazilian wax. Just checked....guess that I didn't.
    Susan
  11. Thanks Everyone, I am numb about today and both...

    Thanks Everyone, I am numb about today and both looking forward to and fear tomorrow. Little compares to my experience of being a paraplegic....if only for a couple of very long hours today. My...
  12. "It was the best of times, it was the worst of times...."

    Thanks, Spring chicken for your supportive note.

    Short note...ended up not to be so short....

    The Cliff's Notes version:
    Saw Internal Med at OHSU for appointment for 2 weeks of progressive...
  13. Rohrer, wishing you the best as you go through...

    Rohrer, wishing you the best as you go through the diagnosis process. Mess just about describes it. It is frustrating for me to try to send the signal to my leg to raise up, only to observe it...
  14. Another day at the hospital and balance/strength...

    Another day at the hospital and balance/strength in legs is about the same. No answer yet and will hopefully have a Neuro consult tomorrow as the docs that are working with me have just about ruled...
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    I hope that they have experienced your wrath and...

    I hope that they have experienced your wrath and frustration at everything being "lost". Actually, in this day and age, nothing is really lost as everything is on an electronic system that has...
  16. Peg, I just read your entry and you made my...

    Peg, I just read your entry and you made my smile. I need a smile right now (see post above this one)... You made my day. Hunky trainer is still at the gym....unsure what he would say now about me.
    ...
  17. 1 year 5 months out from surgery....and now???

    Short story....I am at OHSU hospital in Portland, OR. I was fine 2 weeks ago, then had some difficulty with stairs and balance, did OK for another week, then this week progressively had difficulty...
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    My kyphosis was pretty much resolved by the...

    My kyphosis was pretty much resolved by the surgery, but I now have a kyphosis in the cervical area. I do not like how it looks, but so far I have little discomfort.

    Susan
  19. Thread: Update

    by susancook
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    ...or 80-85% that do heal well. Susan

    ...or 80-85% that do heal well. Susan
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    “Monday morning bright and early I received a...

    “Monday morning bright and early I received a telephone message from Dana--Dr. Arlet's PA and assistant...

    She stated that Dr. Arlet was not going to perform my surgery. She said "it is too...
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    How do you decisde which surgeon is the "right one" for you?

    Martha, Your question about how do you know that your surgeon is the right person? Like you, I do a lot of homework before I even see a doctor. Where did he/she go to school? How many years in...
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    Martha, I hope that you are finding your way...

    Martha, I hope that you are finding your way around the scoliosis surgery world. I do not know anything about the East Coast, but the 2 spine surgeons that I saw, Dr. Robert Hart in Portland, and...
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    Maybe "to the pelvis" and "pelvic fixation" mean...

    Maybe "to the pelvis" and "pelvic fixation" mean something else in Dr. Pashman's language. Just starting, #6, 9, 11,12....and many others when he says that he is going "to the pelvis" or "pelvic...
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    Ed, First, sorry about the loss of your friend. ...

    Ed, First, sorry about the loss of your friend. I am sure that his/her family was glad that you had tried to help, but sometimes, help just isn't enough. Glad that you tried.

    I looked at Dr....
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    Cutting toenails?

    Cutting toenails? I personally would not recommend that anyone try this until 1 year post surgery. Gayle made an interesting comment that she thought that her back bends a little now. Well, I am...
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