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  1. Replies
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    Cathy... Not all doctors have their patients...

    Cathy...

    Not all doctors have their patients wear a postop brace. So, don't worry, you don't need one.

    --Linda
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    Need Photo(s) of Teen(s) in Brace

    Hi...

    Elise Browning Miller is publishing a book about Yoga and Scoliosis. She's already published a booklet and a CD by that same name. This is a full length book. She would like to include a...
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    I controlled most of this type of pain by never...

    I controlled most of this type of pain by never spending more than seconds with my chin down (toward my chest). It felt to me like my head was pulling at the top of the fusion whenever I tried to...
  4. Thread: Hip pain

    by LindaRacine
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    Hi Cathy... I think you may be going through...

    Hi Cathy...

    I think you may be going through the same thing I did. As I withdrew narcotics, I actually found myself feeling better and better, with less pain. Not everyone reacts like that, but...
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    I think most surgeons restrict patients fused to...

    I think most surgeons restrict patients fused to the sacrum from bath tubs and sitting on the floor for at least the first 3-6 months.
  6. Thread: Walking

    by LindaRacine
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    Cathy... Since walking is so painful, I'm...

    Cathy...

    Since walking is so painful, I'm guessing that you shouldn't be trying to do more. In general, most people are told that they should be doing about 1 mile per day, with a goal of adding...
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    If something hurts (beyond the usual unused...

    If something hurts (beyond the usual unused muscle stiffness), don't do it.
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    What kind of drug trial would take the place of...

    What kind of drug trial would take the place of spine surgery?
  9. Hi... We see the occasional patient with what...

    Hi...

    We see the occasional patient with what we "chin on chest" disease. Linda, I don't recall your original issue (before your first spine surgery). Did you have a relatively sudden onset of...
  10. Hi Linda... I'm not sure what I can tell you. ...

    Hi Linda...

    I'm not sure what I can tell you. It sounds like proximal junctional failure, but I can't tell without seeing xrays. And, even then, please remember I have no medical training. I...
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    Cathy... I'd like to encourage you to send a...

    Cathy...

    I'd like to encourage you to send a message to Dr. Lonner. Your inability to walk could have a big impact on your recovery. Did he put bolts in both sides of your pelvis? If so, I'm...
  12. I think I've heard of a few kids who had rods...

    I think I've heard of a few kids who had rods break. They're pretty rare. I think, as Ed mentioned, because they 1) tend to fuse fast, 2) the fact that they're putting a lot less stress on the...
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    Hi... Thoracoplasties are very rare these...

    Hi...

    Thoracoplasties are very rare these days. I can only recall one thoracoplasty from our group in the last five years. I'm guessing that the vast majority of younger spine surgeons have never...
  14. Sharon... We talk about whether it's better to...

    Sharon...

    We talk about whether it's better to fuse earlier or later all the time at work. And, I'm sure it's being discussed at the top spine centers all over the world. I think we have no...
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    Hi Melissa... I'm sorry to see you go. I hope...

    Hi Melissa...

    I'm sorry to see you go. I hope you eventually find a way to tolerate living in the body that you've been given. I hope you've already figured out that you'll never been pain free,...
  16. Thread: Hip pain

    by LindaRacine
    Replies
    12
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    559

    Hi... You need to let Dr. Lonner know that the...

    Hi...

    You need to let Dr. Lonner know that the hip pain is severely restricting your walking. Once all of the spine issues have been ruled out, you probably need to be seen by a hip specialist...
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    It's a shame that a relatively small group of...

    It's a shame that a relatively small group of people who sue strictly because they're greedy, who have made our lives significantly more difficult.

    Like you, I would like an option to opt out of...
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    Patients at UCSF used to routinely get their...

    Patients at UCSF used to routinely get their explants. Now, however, I think that the UCSF Risk Management group is no longer allowing Path to release explants. Let me know if you're successful.
    ...
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    Please be careful about talking about lawsuits...

    Please be careful about talking about lawsuits against surgeons without providing more detail. Pedicle screws were off label for many years. The manufacturers and many surgeons were sued regarding...
  20. coolblue... What levels were fused? Would it be...

    coolblue... What levels were fused? Would it be possible to post a photograph of her lateral postoperative xray?

    While I would never recommend that you suggest that your daughter disobey the...
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    Daniel Riew and Ronald Lehman

    Daniel Riew and Ronald Lehman
  22. Thankfully, while BMP has been a problem for...

    Thankfully, while BMP has been a problem for some, the vast majority of patients have benefited greatly from it. I believe the majority of the problems of overgrowth have been in the cervical spine....
  23. I agree. Playing that game is a waste of time. ...

    I agree. Playing that game is a waste of time. One could, after all, had a worse outcome instead of a better one. There's no way to ever know.

    --Linda
  24. Hi Gardenia... Removing the screws is probably...

    Hi Gardenia...

    Removing the screws is probably a good strategy if your pain is over the screw sites. Is Dr. Garfin going to refuse T11-12 and put short rods there?

    --Linda
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    Why AIS is More Prevalent in Females

    http://healthcare.dmagazine.com/2015/04/07/scottish-rite-leads-study-that-finds-first-ever-genetic-clue-to-why-scoliosis-affects-girls-more-than-boys/
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