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  1. Replies
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    Renee, I am sure that you made the right...

    Renee, I am sure that you made the right decision. Regrets and second guessing...and I am the Queen of both right now are non-productive. Sounds like your surgery was very successful. So, now is...
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    Angie, awesome 2 year visit! I just tuned 68,...

    Angie, awesome 2 year visit! I just tuned 68, and am planning on finding the New Susan at 70. Keep walking. You are amazing and a great role model!
    Susan
  3. Home tomorrow!

    Home tomorrow! I started this journey on August 7th when I walked into my Internal Med MD office with leg weakness. The summer has passed me by. Bummer. I can walk 75 feet with a walker and...
  4. Linda, thanks for your information and support. I...

    Linda, thanks for your information and support. I am slowly finding an outlet for my anger and am beginning to redefine myself. There is a part of me that wants to change my entry from the "glad"...
  5. Linda, thanks for your encouragement! You have...

    Linda, thanks for your encouragement! You have always been a hero to me.

    Thanks for the info on 18 months. Guess that I am here for the long haul. I thought that I was on the 2 year recovery...
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    Liz, welcome! My thoughts: Dr. O: ...

    Liz, welcome!

    My thoughts:

    Dr. O: ?????5 hour myelogram? I had a spinal tap, CT with myelogram with dye for my entire spine and it took about 1 hour. Unsure about the 5 hours????

    Dr....
  7. Maybe like a "snail on steroids"? I am walking...

    Maybe like a "snail on steroids"? I am walking with a walker with progressively decreased stumbling. I have carbon fitted leg orthotics which help. An acupuncturist is coming today....of course,...
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    Jackie, glad that your pain is slowly decreasing....

    Jackie, glad that your pain is slowly decreasing. If you are like me, I want it now! Patience is not one of my virtues. I am learning that it takes a while for things to "settle down". I hope that...
  9. Sheila, best of luck with solving your pain. My...

    Sheila, best of luck with solving your pain. My suggestion is to find a very experienced surgeon and a second opinion surgeon and maybe another if you need it. No spinal surgeon will give you a...
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    Rohr, you are never alone, we are here for you. ...

    Rohr, you are never alone, we are here for you. You are not asking for trouble having genetic testing done.

    Do whatever you want with the following advice. Your mom has her own guilt problems...
  11. Roarer, thanks for sharing your similarity in...

    Roarer, thanks for sharing your similarity in walking with me. I imagine that my postings scare some people wondering if their screws will become loose and they might also suffer a SCI. I remember...
  12. Thanks to everyone for your support. Melissa, I...

    Thanks to everyone for your support. Melissa, I wish that I could inspire myself.
    Susan
  13. I walked in the walking frame today and basically...

    I walked in the walking frame today and basically came back to bed and slept soundly for 2 hours. Later when using the commode, I did a "controlled slide to the floor". Crap. Nothing hurt but pride. ...
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    So many possibilities! I'm thinking earrings but...

    So many possibilities! I'm thinking earrings but am not quite sure what the screws look like. Might be more appropriate for Halloween!

    Hoping that you pain is decreasing. Remember that the...
  15. Code Blue usually means that CPR is needed but...

    Code Blue usually means that CPR is needed but "Rapid Response" is for chest pain.....or so I understand it.
    Generally, the Rapid Response team is looking for MI or Pulmonary Embolism.
    Susan
  16. Receiving Lovinox and Coumadin and my INR is 1.2,...

    Receiving Lovinox and Coumadin and my INR is 1.2, so I am slowly being anti-coagulated. I was transferred back to the rehab floor yesterday. Heavy duty PT and OT today. Walked with that supportive...
  17. You are too kind. Wonder what part of me was so...

    You are too kind. Wonder what part of me was so "amazing", but I will take the compliment, thank you very much! While I have cried some, and cursed some, I am trying to improve my attitude and...
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    The necklace idea is cute! So, you get...

    The necklace idea is cute! So, you get questions! To most people just say, "I just like it because it is different".....none of their business unless you want to share.

    Sure, you have a...
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    Everyone is chaotic and feels unprepared and...

    Everyone is chaotic and feels unprepared and scared. Reassuring that you are right where you should be!

    Remember, all that you need the day of surgery is to show up buck naked with your...
  20. Thanks everyone for encouragement. Fortunately,...

    Thanks everyone for encouragement. Fortunately, the thromboses (is that pleural for thrombosis?) were limited to L lower lung and all small. My legs were neg for clots per sonogram. I still have a...
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    Jackie, What are you going to do with your...

    Jackie, What are you going to do with your hardware? A collage? I only have 2 screws removed, but I am thinking earrings? My general surgeon says that if nerves are going to grow back, they do so...
  22. Bummer of a day

    A pulmonary embolus at 0700 can ruin your entire day.
    S.
  23. I wrote a long reply and it was not saved. I am...

    I wrote a long reply and it was not saved. I am tired and feel crappy and can't walk and am tired of sitting in this wheelchair.
    S.
  24. Rohrer, I have decided that I would be wasting...

    Rohrer, I have decided that I would be wasting energy on anger and blame that I need for healing. There was about 2 weeks that I wanted to get even. My son said, "mom, if you are expecting an...
  25. Hi Rohrer, nobody messed up the surgery. While...

    Hi Rohrer, nobody messed up the surgery. While Dr. Hu did repair my thoracic kyphosis it created a smaller kyphosis at the top of the repair. I knew it, but the spine was angled so that it...
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