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  1. Replies
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    I haven't posted in a very long time, but I do...

    I haven't posted in a very long time, but I do like to come around periodically and check things out. The good people on this forum who were kind enough to give me reassurance and knowledge of what...
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    11,061

    Hello again! I would set my cell phone alarm to...

    Hello again! I would set my cell phone alarm to make sure my son had his meds all the time, when I was able to sleep. It pained me to have to wake him but the couple times I let him sleep it just...
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    Big hugs to you, this is by far the hardest time...

    Big hugs to you, this is by far the hardest time on this side of the surgery, that first couple weeks coming home from the hospital. My son's surgery was on a Monday, and we were sent home on a...
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    My son had his surgery last year and gained a few...

    My son had his surgery last year and gained a few inches from the surgery. We were told his torso would no longer grow because of the fusion, but that his growth plates were still open and he would...
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    best wishes for a speedy and uncomplicated...

    best wishes for a speedy and uncomplicated surgery and recovery!
  6. Hello! For my son's surgery, I was glad we had a...

    Hello! For my son's surgery, I was glad we had a shower chair and the raised toilet seat waiting at home for us. The toilet seat went away after about a week, but he continued to use the shower...
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    Ramona: Just 10 months ago I was in your same...

    Ramona:

    Just 10 months ago I was in your same shoes. My heart hurts for you remembering how hard it was to get thru those sleepless nights before the surgery, and then the moment when they...
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    3,889

    Just wanted to put in my 2 cents......my son had...

    Just wanted to put in my 2 cents......my son had surgery last July and is now nearly 10 months post op. I researched the heck out of everything, maybe getting too much info, and worried that we were...
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    My son was fused from T3 to L4 and we were...

    My son was fused from T3 to L4 and we were originally told the OR was booked for 6 hours and to expect that the surgeon would need that entire time. THe surgery ended up being just shy of 12 hours,...
  10. Thread: Donating Blood

    by lnetzer
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    2,945

    My son's surgeon said that donating the blood...

    My son's surgeon said that donating the blood would help in the healing process. He donated 2 units of his own and then his dad donated the last one. This all took place in the month before surgery...
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    My son's central line was actually stitched to...

    My son's central line was actually stitched to his neck (and covered with the tape). He has 2 tiny scars where it was. They removed it the day we left the hospital but he had to lie still for a few...
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    Markus: The waiting and worrying before...

    Markus:

    The waiting and worrying before surgery was harder for my son and our family than anything. My son is now nearly 4 months post op and is doing great. He also had 2 curves and was fused...
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    It is a really good idea to keep a detailed log...

    It is a really good idea to keep a detailed log of every single call you make regarding your surgery (date, time, who you talked to). I made 17 calls one week between the insurance, doctors'...
  14. Thread: Blood

    by lnetzer
    Replies
    11
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    6,042

    Lesly: You will not be able to donate your own...

    Lesly:

    You will not be able to donate your own blood. I have Thalessemia as well and was unable to donate for my son but my husband donated the final unit of the 3 our surgeon required. ...
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    Hi! I'm from Upper Michigan, and we had all of...

    Hi! I'm from Upper Michigan, and we had all of our doctor appointments and the surgery done in Green Bay, WI. Milwaukee is just over 3 hours away from us and that was our next choice if we hadn't...
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    Wow, that is great that they paid your bill! I...

    Wow, that is great that they paid your bill! I will never complain again about how much we pay for insurance every week! I just rec'd word yesterday from our insurance company that they'd cut a...
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    That is wonderful to hear that he is doing well! ...

    That is wonderful to hear that he is doing well! For my own son, with the height that he gained, and only being corrected to 40 on the top curve, I was surprised at that. He ended up starting...
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    katblack: Have you ever watched the show on...

    katblack:

    Have you ever watched the show on TLC called Miami Ink? (they might have a website) I think it was a few weeks back a woman who had scoliosis surgery in her teens had a beautiful...
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    Pola: Hi! Yes, even that very first time he...

    Pola:

    Hi! Yes, even that very first time he stood up, he kind of leaned to one side a little. When we had our first post-op appt. 10 days later, the doctor said she considered bracing him since...
  20. Thread: Back to Work

    by lnetzer
    Replies
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    3,206

    Brandi: Sending happy thoughts your way for a...

    Brandi:

    Sending happy thoughts your way for a succesful first day back at work!

    Just wanted to say to everyone, reading thru the different posts and seeing how much adults have to go thru...
  21. Thread: biopsy

    by lnetzer
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    9,062

    Sending prayers and positive thoughts your way. ...

    Sending prayers and positive thoughts your way. Please keep us posted!
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    Hi! My son will be 6 weeks post op tomorrow. He...

    Hi! My son will be 6 weeks post op tomorrow. He still has a couple small spots where there are little scabs (ewww, gross, I know!) but a friend of mine said she used Mederma on her son's scar once...
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    Wow!

    Your scar looks really well healed! My son had his surgery on July 10, so you are about a month ahead of him, but it gives up hope for the future that his will look pretty good soon, too! Did you...
  24. Thread: Back home!

    by lnetzer
    Replies
    6
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    5,117

    blackwidow: Hello! I'm relieved to hear you...

    blackwidow:

    Hello! I'm relieved to hear you are back home and your son is on his way to recovery from the surgery! I was just checking on the older posts since I haven't been on myself for...
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    Successful Surgery

    Katy:

    Hello! I've been not quite as active on the board myself. Josh keeps me pretty busy! As of Monday we are 3 weeks post op. It was the hardest thing we've ever done, but seeing Josh stand...
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