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  1. Thread: One month

    by Pooka1
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    286

    Cathy I read your post. I am sure some of the...

    Cathy I read your post. I am sure some of the adult patients will chime in. I can't speak to recovery in adults... I am here as a parent of two fused kids. But people will respond.

    I am really...
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    Hey Ti Ed, We can cure about 75% percent of...

    Hey Ti Ed,

    We can cure about 75% percent of childhood leukemias. Treatment works most of the time. That's why it is important to look for these cancers... the outcome can be changed.

    Until...
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    I assumed the reason they stopped was because...

    I assumed the reason they stopped was because there was no good conservative treatment. So at best you would be finding a few surgical cases. Now with stapling and tethering, that is reason enough...
  4. In re osteoporosis, I thought that the screws...

    In re osteoporosis, I thought that the screws don't hold as well in porous bone which allows some play which results in eventual rod breakage.

    If the fusion occurs in healthier bone, with the...
  5. Ti Ed, How can you get pain at T5? Isn't that...

    Ti Ed,

    How can you get pain at T5? Isn't that section solidly fused?
  6. Maybe and maybe not. If your lumbar straightened...

    Maybe and maybe not. If your lumbar straightened in response to your thorax being straightened you may be okay.



    Did she have a structural L or TL curve that the surgeons choose not to fuse...
  7. Ti ed, thanks so much for contributing these...

    Ti ed, thanks so much for contributing these ideas.

    I guess I am just dismayed at the course of some of the adult surgeries that are discussed here. There is so much suffering and I wish there...
  8. Right those are good points. I am just opining...

    Right those are good points. I am just opining that some of these adults have such large curves with so much ancillary damage and possible osteoporosis issues and just being older. Maybe many would...
  9. Linda wrote:

    Linda wrote:
  10. (moved) How to reduce morbidity in adult scoliosis fusions

    Linda, that was eye-opening.

    I've been wanting to bring up a related issue that is not easy to discuss. That is, how much of the morbidity in the adult deformity surgeries is due to waiting too...
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    Wow I am sorry with how much you are dealing...

    Wow I am sorry with how much you are dealing with. So unfair.

    Just wanted to say PEEK is a plastic.



    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3195819/
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    Kara, Thanks for the report. I am always...

    Kara,

    Thanks for the report.

    I am always amazed how you remember the small details. I went through this twice with my girls and I can't remember a lot of things. Probably the stress and...
  13. High school kid wins Intel with growing flexible spinal system to straighten

    So amazing that a scoliosis project won top prize. He's now a first year student at Tufts. Smart guy.
    ...
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    rohrer thanks so much for checking in. I miss...

    rohrer thanks so much for checking in. I miss you. I am greatly saddened by the laundry list of medical issues you are dealing with. Please hang in there.

    Sharon
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    Jess (jrnyc) gets botox injections in her...

    Jess (jrnyc) gets botox injections in her thoracic back. You can try to PM her for which doctor does that. She has left the forum.

    Good luck.
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    In your professional opinion, is Spinecor a brace...

    In your professional opinion, is Spinecor a brace and does it necessarily cause muscle atrophy?
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    All braces including Spinecor de-activate...

    All braces including Spinecor de-activate muscles. They take over some of the work of the muscles so the muscles decline.
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    We were friends on Facebook. She was a gifted...

    We were friends on Facebook. She was a gifted artist and musician. She had many interests. She was among the most knowledgeable people on the scoliosis forums.

    I never met her in person but she...
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    I know some broad outlines. She had some...

    I know some broad outlines.

    She had some lumps in her breast and a doctor misdiagnosed them as benign. Her cancer metastasized to her liver and she fought it for a few years.

    This did not...
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    The loss of Tonibunny

    I don't know where to put this post.

    The beautiful spirit that was Tonibunny has been lost.

    Life is beyond unfair.
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    Jess, hang in there. That's a lot on your plate....

    Jess, hang in there. That's a lot on your plate.

    I hope the NSAID will keep him comfortable until he clears the infection. Can you cut it up in tiny pieces and mix it into the food?

    This is...
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    Jess I am worried about you and the bunny. The...

    Jess I am worried about you and the bunny. The bad weather is just making things harder unfortunately.

    Is removing the prostate an option?
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    I don't really understand the end game here. And...

    I don't really understand the end game here. And there are others things I don't understand.

    1. If she had 20 operations, why is the only hardware visible the new growing rod? Maybe they took...
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    I hope everyone who is getting snowed on doesn't...

    I hope everyone who is getting snowed on doesn't get buried. Wow. Rough winter.

    Jess I just can't imagine going through a surgery for cysts and and then having to drain another one! What is...
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    Congratulations on your baby! Can you get a...

    Congratulations on your baby!

    Can you get a second opinion? Find out if there is any medical reason to have a Cesarean just because you have a fused back. There might not be.

    Can you go back...
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