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  1. Replies
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    I don't think anyone really knows what happens to...

    I don't think anyone really knows what happens to patients who have scoliosis fusions as adults. I had my original surgery about 22 years ago, in my early 40's. I became friends with several fellow...
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    I think at least one person said they got a...

    I think at least one person said they got a letter. If not, I wonder if it's possible that he's not given access to the list. (As far as I know, the current medical record system at UCSF does not...
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    Susan... I think you're right. I'm thinking that...

    Susan... I think you're right. I'm thinking that we must have changed to A/P when we switched out to low does technology several years ago.

    Ed... Spine xrays look identical regardless of whether...
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    Hi Ed... I don't know. We take all xrays from...

    Hi Ed...

    I don't know. We take all xrays from the back.

    --Linda
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    http://www.ncbi.nlm.nih.gov/pubmed/20681802 ...

    http://www.ncbi.nlm.nih.gov/pubmed/20681802

    http://www.ncbi.nlm.nih.gov/pubmed/18349278

    http://www.ncbi.nlm.nih.gov/pubmed/10954636

    http://www.ncbi.nlm.nih.gov/pubmed/8817782
  6. Thread: 8 wewks

    by LindaRacine
    Replies
    20
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    886

    Hi... I'm not the typical addictive...

    Hi...

    I'm not the typical addictive personality. I found it relatively easy to stop smoking. I also found it relatively easy to stop caffeine. I have never had a problem with alcohol or...
  7. Thread: Cup size

    by LindaRacine
    Replies
    10
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    959

    If you needed exaggerated lumbar lordosis to...

    If you needed exaggerated lumbar lordosis to balance your spine, you may have a permanent belly. It's the price that some have to pay. The alternative would usually be a fusion that goes higher up....
  8. The best surgeons probably have more bad outcomes...

    The best surgeons probably have more bad outcomes than many surgeons. When one takes on the riskiest cases, they're going to have some bad outcomes. Chances are, if you have a bad outcome from...
  9. Cathy... Try to avoid putting stress on your...

    Cathy...

    Try to avoid putting stress on your spine by working with your chin down. For example, don't work on something like knitting, where your head is tilted down. What you're describing is...
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    Masha... I'm glad to hear that you don't have...

    Masha...

    I'm glad to hear that you don't have a tumor. I know it's probably disappointing to not have something concrete that can explain your pain.

    If I were you, I would probably seek a...
  11. Hi... I think you're right, that they don't...

    Hi...

    I think you're right, that they don't get high, but I think almost everyone gets addicted once they've been on narcotics on a regular basis for awhile. Some people become addicted after...
  12. Thread: Cup size

    by LindaRacine
    Replies
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    959

    It's really unusual to not lose at least a little...

    It's really unusual to not lose at least a little bit of weight. And, it's super common when one does lose weight, that they lose it in the breasts. So, if you didn't actually lose weight, I'm...
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    Susan... I think the fact that Masha has a...

    Susan...

    I think the fact that Masha has a pelvic tumor means that she's probably going to have surgery to remove it and rebuild her pelvis.

    --Linda
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    I'm guessing that non-operative care won't be an...

    I'm guessing that non-operative care won't be an option now.
  15. Ed.... There are radiographic ways to look for...

    Ed....

    There are radiographic ways to look for non-unions. Unfortunately, they're all imperfect and I think they all involve large amounts of radiation.

    --Linda
  16. Thread: 8 wewks

    by LindaRacine
    Replies
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    886

    Good Cathy. It's good to get off of narcotics...

    Good Cathy. It's good to get off of narcotics before getting addicted (which happens pretty quickly). You've already proved that you're not addicted, so narcotics on an as needed basis should...
  17. Hi.... If you're solidly fused (and there's no...

    Hi....

    If you're solidly fused (and there's no way to know that for certain), removing all of the implants shouldn't have any immediate effect. If any part of the fusion isn't solid, you'd...
  18. Thread: 8 wewks

    by LindaRacine
    Replies
    20
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    886

    Yes, I think it's totally appropriate. I think...

    Yes, I think it's totally appropriate. I think narcotics can totally screw up our perception of pain, but I don't think that's your problem. Have you tried something other than tramadol? Even...
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    Yes ...

    Yes

    -----------------------------------------------------------
  20. Thread: 8 wewks

    by LindaRacine
    Replies
    20
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    886

    Cathy... I think I've said this before, but I...

    Cathy...

    I think I've said this before, but I think you went off of pain medication too soon. If pain medication would allow you to have a little bit of normality in your life, it would be more...
  21. Hi Pam... I'm really sorry to hear that your...

    Hi Pam...

    I'm really sorry to hear that your pain hasn't improved. Your experience is important. It's very rare, but that doesn't matter at all if you're one of the ~ .5% of people who end up...
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    Yes. It is an amazing move for him. Columbia...

    Yes. It is an amazing move for him. Columbia was willing to do whatever was necessary to get him there.

    --Linda
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    I think 2 pair is the perfect answer. I would...

    I think 2 pair is the perfect answer. I would definitely not spend any amount of time walking around in heels at this stage. I did 2" heels at a party many years after my original surgery. By the...
  24. Thread: Reality

    by LindaRacine
    Replies
    11
    Views
    614

    What you're going through is familiar to a lot of...

    What you're going through is familiar to a lot of us. While you may never get to a place where you're comfortable in terms of both pain and function, I think you'll still see slow improvement for...
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    When I wanted to take less gabapentin, I just...

    When I wanted to take less gabapentin, I just opened the capsules and poured out some of the powder. I also was not warned about stopping gabapentin cold, so I did it, and didn't actually notice any...
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