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    OMG, how horrible. I am so sorry to hear this...

    OMG, how horrible. I am so sorry to hear this news and will keep her family in my thoughts.
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    Lauren, Are you referring to Dr. Luhmann, the...

    Lauren,

    Are you referring to Dr. Luhmann, the pediatric surgeon Gayle was asking about? I just want to be sure because Dr. Luhmann performs VBS/VBT - and I belong to another group (for parents of...
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    Of course, I'm not trying to tell anyone how to...

    Of course, I'm not trying to tell anyone how to run the forum, but I do think that most times it is unintentional when this happens and I'm not sure it can be completely avoided.

    Many times we...
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    Poor boy - I will keep hoping he catches a...

    Poor boy - I will keep hoping he catches a break!!!

    No, Jackie does not like the cold. We take her for short walks on days when it hasn't been too cold - but on the really biting cold days, we...
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    Oh, Jess - I have not been on the forum in over a...

    Oh, Jess - I have not been on the forum in over a week and I am SO sad and upset to read what you and Sparky are going through. I know his problems make yours worse by causing so much tension and...
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    Poor baby bunny is right!! :( Jess - what, if...

    Poor baby bunny is right!! :(

    Jess - what, if anything, will they have to do to treat this cyst? or don't they know yet? This poor little guy really has to catch a break soon - it's not fair!
    ...
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    Aw, that poor little guy!! I was not on here in...

    Aw, that poor little guy!! I was not on here in a while and was hoping for good news about Sparky. Do you know how much longer they'll need to do this??

    And your story about the vet tech made me...
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    I thought I recalled another thread on this topic...

    I thought I recalled another thread on this topic a while ago - maybe worthwhile to do a search for it. Seemed to vary a little by doctor, but 6 years seems like a long time. Did the GI doc say why...
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    Hang in there, Jess!! I keep hoping Sparky...

    Hang in there, Jess!!

    I keep hoping Sparky will turn a corner real soon and start to feel better (you too)!!!!!

    Please keep us posted - I came on tonight specifically to see how he was doing -...
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    And I would give him people kisses right back...

    And I would give him people kisses right back :-)))))
  11. Replies
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    You must be a wreck with worry, Jess - hang in...

    You must be a wreck with worry, Jess - hang in there. I am hoping the little man comes home in time for Christmas!!!!
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    Please keep us posted!!!!

    Please keep us posted!!!!
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    I am so sorry to hear this news, jess. I will...

    I am so sorry to hear this news, jess. I will have you both in my thoughts. Fingers crossed that they can get this poor little guy some relief and you can both catch a break!!!!

    Xoxo
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    Hi Gayle, You would probably understand more...

    Hi Gayle,

    You would probably understand more about this than me, but the mom who explained it described it as a cushion where 40-50% of the stuffing is removed. She said she did not fully...
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    Improvements to VBT (tethering)

    I learned from another parent (confirmed to me by Dr. Betz) that kids who might not have been VBT candidates before might now be able to opt for tethering rather than fusion. Some larger curves,...
  16. If you would like to research Vertebal Tethering,...

    If you would like to research Vertebal Tethering, I can offer some suggestions. The link in my signature refers to vertebral stapling, but that group has actually branched out to include many...
  17. I would try to get a consult with a surgeon who...

    I would try to get a consult with a surgeon who performs tethering - if for no other reason, than for peace of mind that you did all you could to help your daughter avoid fusion. Please let me know...
  18. Happily, those results are not that uncommon. ...

    Happily, those results are not that uncommon. There are several patients that were in similar situations who have had great results as well.

    Another positive part of the whole...
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    Yes, i love that face!! He looks like he is...

    Yes, i love that face!! He looks like he is doing great!!

    Jackie sends doggie hugs!!!!!!!!!!!!!
  20. Fifa - Absolutely NO apology necessary - that's...

    Fifa - Absolutely NO apology necessary - that's why I put my email address out there and I was happy if I was able to do anything to help you.

    Karen - I never realized the "contact us" link went...
  21. Linda, Just a thought (because I really feel...

    Linda,

    Just a thought (because I really feel for these people waiting a long time for access to the forum), but these folks reach out to me because I posted my email address. If Joe doesn't want...
  22. Linda, I haven't had much luck in the past...

    Linda,

    I haven't had much luck in the past contacting Joe (or getting a response from him), but if you prefer I don't go through you, I will certainly honor your wishes. I get that all you can do...
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    Hi Tim, I'm no doctor, but for what it's worth...

    Hi Tim,

    I'm no doctor, but for what it's worth I agree with everything you said. My theory is that since we don't know what works for who, and when, if your child can tolerate something like...
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    Indeed, congratulations! It is so nice that...

    Indeed, congratulations!

    It is so nice that your determination and hard work (and Nalina’s) are paying off. My best wishes for continued success!!
  25. Two More Members Needing Assistance

    Hi Linda,

    Two more folks have contacted me by email with similar problems - one registered back on August 11 and is still waiting to be approved. She said she sent an email to 'scoliosisadmin'...
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