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  1. I would suggest tethering as she is just at the...

    I would suggest tethering as she is just at the threshold. I agree with Pooka that there is a time window and it may be shorter than you think.

    My daughter's case was almost the same as yours only...
  2. Replies
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    Karen5, Keeping you in our thoughts. Hoping...

    Karen5,

    Keeping you in our thoughts. Hoping your daughter's fusion does not extend below L3 and wishing for a fast and pain free recovery.

    Do keep us updated. Do remember no matter how long it...
  3. Update

    Hey Guys,


    All your prayers and wishes worked !

    We are back home. Dear daughter is fine and is already moving around albeit with braces. Normal diet ( a bit extra thanks to her protective...
  4. Thanks Linda. Dunno about the laxatives but last...

    Thanks Linda. Dunno about the laxatives but last night they gave her a suppository which did not help much. Anyways have got the doc to prescribe an anema which seems to have helped. She's feeling...
  5. Hey Crystal, Thanks for your good wishes....

    Hey Crystal,
    Thanks for your good wishes. Actually I am the dad but moms been holding up great. Shall give her a hug a desired. :).

    My daughter is feeling constipated today. Any suggestions would...
  6. We are back in the room. Day 2 was very rough....

    We are back in the room. Day 2 was very rough. They had stopped the morphine because if its nauseating side effect. So when my daughter was not writhing in pain she was uncomfortable with nausea....
  7. Surgery Update

    My daughter's had her surgery today. She's fused T4 - L4. Doctor seemed very happy with the correction. Currently she is in the post operative ward and loopy with the sedatives. We hope to have her...
  8. Thank you Gayle, Ed and Sharon. Have sent the...

    Thank you Gayle, Ed and Sharon. Have sent the list of questions to the Doc. Surgery set for 3rd of Nov. Fingers Crossed.

    Can anyone let me know where to find a checklist for both pre-op and and...
  9. Update

    Guys,

    Sorry for the long absence. Since my last post in Feb these we have had two xrays one in Aug and the other in Oct. Both of which are attached here. The lumber curve has increased to 60 and...
  10. Thank you Ed, Polka,Mariaf, Susan and others. I...

    Thank you Ed, Polka,Mariaf, Susan and others. I simply preparing for the worst and hoping for the best. As probably all of us are. Tomorrow the TTS machine is going to come in. Shall try to post...
  11. Meeting with Dr. Lenke

    Here are the excerpts of my meeting with Dr. Lenke last week :

    Surgery looks imminent was his opinion when we met us. He was ok with us waiting and watching while monitoring the progress of the...
  12. Crystal James is the New PAtient intake...

    Crystal James is the New PAtient intake Co-ordinator at Shriners Philly. Have asked him to connect to Dr. Betz.

    A copy of the mail has also been marked to Janet Cerrone and you as well.

    Would...
  13. Thank you Randy. Have sent them an email ....

    Thank you Randy. Have sent them an email . Looking forward to their response.

    Maria - Spoke to Dr. Hey's assistant. She looked at the Xrays and said that the fusion would go down to L4 if not L5. ...
  14. Help Wanted with Dr. Lenke's Appointment

    By some fortuitous turn of events Association of Spine Surgeon of India (ASSI) is organizing the SRS (Scoliosis Research Society) World Wide Conference (WWC) at Kolkata on the 23rd/24th of January...
  15. Thankyou for your thoughts. There could have been...

    Thankyou for your thoughts. There could have been many things that could have gone wrong with our children. Scoliosis is something that people live with after the necessary adjustments. Yes it has...
  16. Okay just to reiterate the sooner than later...

    Okay just to reiterate the sooner than later comment was of the surgeon. infact his exact words were the sooner the better. And this was echoed by all the five surgeons we have met so far.
    ...
  17. Thank you Pooka. Every drop in the ocean counts....

    Thank you Pooka. Every drop in the ocean counts. Lol.
  18. Dear Ed, Pooka and Susancook, Points very well...

    Dear Ed, Pooka and Susancook,

    Points very well taken. Just to explain when I said three month windows is to see the rate of curve progression over these periods. since her growth spurt is nearing...
  19. Just back from the second opinion from the doc....

    Just back from the second opinion from the doc. He too has suggested a full fusion posterior surgery sooner than later. Suggested levels T3/T4 to L4.

    Attached are latest xrays.

    We have decided...
  20. ..None.. Just an armchair economist hoping for a...

    ..None.. Just an armchair economist hoping for a much awaited turn of the curve (pun intended) LOL...
  21. Dear Linda, My questions and observations...

    Dear Linda,

    My questions and observations emanate from the posts in this forum. Cannot express how grateful we (and many other parents like us) are for having such a huge repository of information...
  22. Thank you Sharon. Will keep it in mind....

    Thank you Sharon. Will keep it in mind....
  23. Dear Ed, Thank you for your inputs Will...

    Dear Ed,

    Thank you for your inputs

    Will surely ask the specialist I am seeing next week regarding the neck thing.

    Whilst there are a lot of surgeons in India who are doing scoliosis surgery...
  24. Thank you Pooka for your detailed and timely...

    Thank you Pooka for your detailed and timely response as always. I appreciate that opinions of informed parents like yourselves are just that and cannot be substituted for doctors advise. However it...
  25. 13 year old daughter with a 44 degree lumbar curve

    Our 14 year old daughter has been diagnosed with adolescent idiopathic structural thoracolumbar scoliosis. We are based in India. We had been to Mumbai for consultation with Dr. Bhojraj, a spine...
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