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  1. PJK: proximal junctional kyphosis PJF: ...

    PJK: proximal junctional kyphosis
    PJF: proximal junctional failure
  2. Dearest Susan, I have been beyond busy this...

    Dearest Susan,

    I have been beyond busy this week with work/kids/visiting relatives, but I just got caught up on your posts… I never made it to the two year mark after my original surgery either,...
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    Linda, Can you recommend any revision surgeons...

    Linda,

    Can you recommend any revision surgeons near Pittsburg, PA?
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    Hi, As Linda mentions you would be best seen...

    Hi,

    As Linda mentions you would be best seen by an experienced scoliosis revision surgeon. I see you are in Northern CA, would it be possible to be seen at UCSF? Linda works there and could fill...
  5. Dear Susan, I have been too busy to post, but...

    Dear Susan,

    I have been too busy to post, but I read your posts every day if possible and I can't say enough how tough you are. Everyone above posted such kind, eloquent words so I would just...
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    Hi there, It sounds like you are doing really...

    Hi there,

    It sounds like you are doing really well for 5 weeks! I know what it is like trying this recovery with young kids at home. I can't tell you how much reading aloud I did to my kids...
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    Hi tableone, Thanks for posting that abstract...

    Hi tableone,

    Thanks for posting that abstract - seems like interesting info. One sentence was a little chilling: Pseudarthrosis was seen in 24% of the patients, only 25% of which were detected...
  8. Dear Ed, You are quite right about trying to...

    Dear Ed,

    You are quite right about trying to avoid being pressured back to work in order to pay the bills. This happened to me, although I could have tried to hold out longer strictly for the...
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    Hi Jackie, Best of luck in the coming days - I...

    Hi Jackie,

    Best of luck in the coming days - I hope you can get all the financials dealt with and get the surgery done. You have waited so long to get some relief.

    Please let us know how...
  10. Hi Susan, I'm glad you got to Stanford so...

    Hi Susan,

    I'm glad you got to Stanford so quickly and had the hardware repaired. Pretty incredible and worrisome that OHSU didn't pick that up on your scans.

    Hang in there, rest and I hope...
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    Hi Sheila, I am glad to see you are getting a...

    Hi Sheila,

    I am glad to see you are getting a second opinion. I think it is always a very good idea before this type of major surgery. Each doc may have a slightly different approach to your...
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    When I had my revision for broken rods I also...

    When I had my revision for broken rods I also asked Dr Hart to take out the single pelvic screw I had. That left SI or screw area had bothered me since surgery. Since I was about 15 months post-op...
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    Hi Martha, Robert Hart at Oregon Health and...

    Hi Martha,

    Robert Hart at Oregon Health and Sciences University (OHSU), Portland, Oregon http://www.ohsu.edu/xd/health/services/providers/index.cfm?personid=314

    Here is a link: ...
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    I am shocked all over again at how badly you have...

    I am shocked all over again at how badly you have been treated by this physician's office. The recent imaging exams (CT, MRI, x-rays) should be readily available from the radiology department where...
  15. Hi Susan, I'm so sorry to hear about this...

    Hi Susan,

    I'm so sorry to hear about this set-back. You were doing so well…do the docs/neuro's have any idea what is going on?

    Take care, and let us know when you have some news.
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    Hi there, I think it is really common for the...

    Hi there,

    I think it is really common for the curves to "settle" a little and the appearance of the back to change somewhat over time. It doesn't mean anything is wrong with the fusion or the...
  17. Thread: Update

    by leahdragonfly
    Replies
    18
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    1,828

    Hi Kara, Wow, that's great news that you don't...

    Hi Kara,

    Wow, that's great news that you don't need foot surgery.

    I hope your foot is hurting you less!

    Are you doing any art this summer?

    Take care,
  18. cutting toenails: T8-sacrum

    I am fused T8-scarum, and at 4 months I thought for sure I would never be able to cut my toenails. I even posted that very question at some point during the first year.

    I gained a lot of...
  19. Hi Mark, Hang in there - this is the tough...

    Hi Mark,

    Hang in there - this is the tough part.

    At 12 days I think I was taking oxycontin (long-acting) 10-20 mg twice a day, plus oxycodone 40 mg every 4 hours around the clock, plus...
  20. Hi Rise, Ahh, I feel your frustration and...

    Hi Rise,

    Ahh, I feel your frustration and impatience and I see myself in you. Ed laid it out like it is, there is no hurrying this recovery, it is not a choice how long it takes. And it does...
  21. Hi Susan, Bummed for you…..why is it so hard I...

    Hi Susan,

    Bummed for you…..why is it so hard I wonder to get them to inject the screw area? Didn't Dixie also go in for a screw injection and they ended up trying/failing to do a lower lumbar...
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    Dear Jenee, Like the others I am so surprised...

    Dear Jenee,

    Like the others I am so surprised and sorry to hear of your flatback and pain now. You made all of us a little jealous with your easy recovery (just kidding but you know what I mean)!...
  23. Thread: Update

    by leahdragonfly
    Replies
    18
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    1,828

    Hi Kara, Sorry your foot is still so bad. I...

    Hi Kara,

    Sorry your foot is still so bad. I was hoping the cast would help you.

    I wonder if Shriner's discharged you because they knew UC Davis would be the best place for you to have surgery...
  24. Hi Rise, You sound so very much like me (and I...

    Hi Rise,

    You sound so very much like me (and I had a similar length fusion, T8-sacrum), I recognize myself in your post!!! I know you feel impatient now, but my friend you have a LOOONG way to...
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    Hi Susan, Thanks for updating! Please send my...

    Hi Susan,

    Thanks for updating! Please send my best wishes to Mark and Ethel from another of Dr Hart's patients. Mark and I corresponded by e-mail several times before his surgery.
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