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  1. I will echo what Gayle just said. I have been...

    I will echo what Gayle just said. I have been following along as well and keep meaning to write... I'm having a little difficulty focusing close up right now due to my cataract surgery, but I always...
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    Thanks for your concern. I have the genetic...

    Thanks for your concern. I have the genetic paperwork from my mom somewhere and should hunt it up. I mentioned it to my neurologist that I see for my migraines and he wasn't concerned at all after he...
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    Rohrer - I was both sorry and relieved to hear of...

    Rohrer - I was both sorry and relieved to hear of your diagnosis. Now you know what you are dealing with, so at least it is not something in "netherland" anymore. My mother was diagnosed with CMT...
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    I am also reading and appreciate that you are...

    I am also reading and appreciate that you are keeping us updated. I am sorry for all that you are going through and want you to know that so many of us care very much about your problems and are...
  5. Susan - I am so relieved that the surgeon was...

    Susan - I am so relieved that the surgeon was able to remove the screw(s) without damaging the spinal cord. Yes, you have every right to be very angry that they did not listen to you to begin with. I...
  6. Susan, I also am so concerned for you and am...

    Susan, I also am so concerned for you and am praying that this can be diagnosed and taken care of soon. I have no suggestions other than it sounds like something is preventing the "message" from your...
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    That just sent red flags up in my mind... I'd be...

    That just sent red flags up in my mind... I'd be careful if I were you. I am with Jess-- my scoli doctor had said when you get to the point when your scoliosis is impacting your quality of life, it's...
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    Although I have read that others had problems...

    Although I have read that others had problems adjusting to neurontin/gabapentin, I had no problems with it and it helped my nerve problems-- I had developed excruciating leg pains about 3 weeks after...
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    I'm praying for you all, Melissa. What a time you...

    I'm praying for you all, Melissa. What a time you are having. I'm so sorry. This sounds very hopeful.
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    I'm so sorry also, Melissa. Praying for all of...

    I'm so sorry also, Melissa. Praying for all of you and that the baby will be alright. What a scary time for you. Let us know what happens in court tomorrow. Hugs...
  11. Jamie-- can't remember how many times I've read...

    Jamie-- can't remember how many times I've read (and written) THAT is the biggest step in the whole process... setting the date. Making the decision. And you aren't the biggest chicken on here. Over...
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    springchicken-- Everyone is so different in...

    springchicken--

    Everyone is so different in their recovery journey. You sound like you are doing quite well. When you are discouraged, just look back and see how far you've come. I am seven years...
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    Sometimes (often) I wish there were "like"...

    Sometimes (often) I wish there were "like" buttons on our posts!
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    I also wanted to say welcome and to say that I...

    I also wanted to say welcome and to say that I did not have any problems after my surgery - T2-L4 (15 vertebrae) but did have a long recovery. I am doing fine now and no pain. (big smile), but not...
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    And I've never heard of anyone not wearing...

    And I've never heard of anyone not wearing anything but stretchy clothing. Maybe that is just one person's preference. Not mine, and I'm sure not others...
  16. Degenerative Scoliosis & XLIF Procedure findings published...

    I don't know if this has been posted somewhere else or not, but ran across it today at my old stomping grounds... getting ready to make my next check-up appointment at Midwest Orthopaedics at Rush......
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    So many different thoughts from people and their...

    So many different thoughts from people and their doctors! Mine really felt I would be better off at home if at all possible. I was in the hospital for 11 days though, and my husband's job was just...
  18. Also, at least at my hospital, they sent me home...

    Also, at least at my hospital, they sent me home with many items that insurance paid for... such as the raised toilet seat with the arms (which I did use-- I needed to push myself up, as my legs were...
  19. Thread: Blood loss

    by Susie*Bee
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    My surgeon wanted my own blood -- 4 units, and...

    My surgeon wanted my own blood -- 4 units, and that is difficult to do in about 3 weeks time (the lifespan of blood). I was able to do so (a lot of times people cannot keep up their iron enough to...
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    Jess-- I don't know if this helps any or not, but...

    Jess-- I don't know if this helps any or not, but I am positive that my scoli caused hip pain for me. I have never been one to wear anything but comfortable shoes past a certain young age (tee hee)...
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    Thinking of you too, Melissa, and praying all...

    Thinking of you too, Melissa, and praying all goes well. Enjoy your time when you can!
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    I could be wrong but I think the data is all...

    I could be wrong but I think the data is all based on medicare patients... So it is very skewed in many regards.
  23. I have nothing to say about discograms... but did...

    I have nothing to say about discograms... but did want to say that I am fused T2-L4 and have not had any problems with that. At my last appt. a year ago (?) all looked well with the lower vertebrae....
  24. Thread: Joe O'Brien

    by Susie*Bee
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    Joe O'Brien

    Your PM box is full. I wanted to send you a message...
  25. Thread: Quackery

    by Susie*Bee
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    I would also like to know why my post was...

    I would also like to know why my post was deleted. I did not say anything wrong or put anyone down. I have been on the forum for 6.5 years. If someone can't calmly express themselves, as I have...
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