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    Thanks, Jackie! I am very careful not to go...

    Thanks, Jackie!

    I am very careful not to go over 3,000mg of Acetaminophen. I can't use ibuprofen as it interferes with my heart rhythm. I use naproxen sodium. I stay well within the recommended...
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    Just an FYI: My pain is no worse now than when I...

    Just an FYI: My pain is no worse now than when I had been on the narcotics. In my case, they seem to lose a lot of efficacy after about a month. Then chemical dependence kicks in. Once you get past...
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    Narcotics are definitely a touchy subject....

    Narcotics are definitely a touchy subject. Weaning is very painful. The best help I found was to exercise when I could and keep myself distracted. There are individuals that seem to manage better on...
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    I'm on OTC painkillers now. Nothing stronger than...

    I'm on OTC painkillers now. Nothing stronger than Tylenol and Aleve. As some of you know I was on very STRONG opiates for many years. I struggled more then with pain management than I do now. It...
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    Thanks for the welcome back Ed and Linda! ...

    Thanks for the welcome back Ed and Linda!

    Things could be worse. They didn't expect me to live to see 50 and I'm 51! I'm seeing a neurologist every three months right now so he can get my meds...
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    Thanks, Pooka! I will try to post here again, now...

    Thanks, Pooka! I will try to post here again, now that I have a computer. I've missed the discussions, but honestly haven't been physically well. I am grateful that my progression has been stable....
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    JScoli91, My apologies. I must have read...

    JScoli91,

    My apologies. I must have read another post and put it together with yours in my mind when I replied. You mentioned nothing of pain. I hope you are pain free!
    I was looking at Ed's...
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    Hello, I have a neuromuscular disease that...

    Hello,

    I have a neuromuscular disease that could be a contributor to my scoliosis. I have muscle tension in places like my neck (I get Botox injections for that) and muscle weakness in other...
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    Hello - I'm back and developed osteopenia

    Hello everyone,

    I'm back after several years of not having a computer. I'm posting in this section because I've opted not to pursue surgery. I have developed osteopenia and my curve has been...
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    Gayle, This is just a thought, but there could...

    Gayle,

    This is just a thought, but there could be quite limited knowledge about true JIS, thus fewer articles on the subject. I say this because unless the JIS curve/s are large enough to catch...
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    Gayle, It appears that curve patterns can...

    Gayle,

    It appears that curve patterns can change over time. Like I mentioned earlier, my son's scoliosis completely disappeared. Those curves are so small that the right curve isn't even...
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    Flerc, To be fair I haven't read any other...

    Flerc,
    To be fair I haven't read any other comments on this thread. I read the article and looked at her pictures.
    She obviously still has a significant deformity. Many people live with their...
  13. Any continuation of this topic could be a hot...

    Any continuation of this topic could be a hot mess. It speaks for itself.
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    I hope you enjoy your stay. I've been to NY once....

    I hope you enjoy your stay. I've been to NY once. I found it to be a beautiful state. I love pine forests, though. I stayed away from the city. We were near Saratoga which is famous for it's...
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    Hello, Burdle. I'm the queen of "high...

    Hello, Burdle.
    I'm the queen of "high thoracic"...LOL No, it's not funny just ironic. I've yet to meet anyone with a high thoracic. Why do they say that the thoracic and the lumbar are the...
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    Kathy, I will PM you as I don't want to derail...

    Kathy, I will PM you as I don't want to derail Mike's thread. :-)
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    Mike, that would be my "hope" as well. That is...

    Mike, that would be my "hope" as well. That is being off of all narcotics. My situation just doesn't lend for that. I have a very painful muscle disease so my only goal would be to get straightened...
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    Mike, Since I've been seeing Tribus for such a...

    Mike,

    Since I've been seeing Tribus for such a long time I can tell you that he definitely has always had a good bedside manner and, at least with me, had a deep concern for making the right call...
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    Wow, Mike! I've seen that doctor for the last...

    Wow, Mike!

    I've seen that doctor for the last 16 years! He's nice, but has been a bit wishy washy with me as my curve is borderline. Let me know how it goes with him. I'm supposed to see a Dr....
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    Okay, I called Dr. Fogelson's office in...

    Okay, I called Dr. Fogelson's office in Rochester, MN. They haven't called me because I am on a very LONG waiting list to get in to see him. The receptionist looked at what they have for me and she...
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    Richard, I have not had surgery, but do have a...

    Richard,

    I have not had surgery, but do have a pretty large rib deformity under my left scapula. I also know people who have had surgery.

    Just something to remember; you don't have that much...
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    Thank you both for your kind words. It's...

    Thank you both for your kind words. It's appreciated! My dad outlived his "life expectancy" by about five years. In fact, months before he died they kicked him out of the hospice he was on because...
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    It's Official

    My dear scoli friends,

    Like the title of my topic, it's official that my downward spiral is speeding up. I may not be strong enough to survive a surgery. I haven't heard from Dr. Folgeson's office...
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    Ed, That upper back and neck pain is horrible....

    Ed,

    That upper back and neck pain is horrible. I never expected to have lower back pain as my problem has been upper back and neck pain with arm involvement since I was about 12 which really took...
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    Wow! That's one big fish. Do you ever watch...

    Wow! That's one big fish. Do you ever watch "Wicked Tuna"? I never realized how big tunas really are.
    I hope your pain is better. I don't remember mentioning those things. I used to live eerily...
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