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  1. Dr Hart will fix you

    Dear Susan,

    I was stunned to read your update, and feel so bad for you. I really do know how disappointing it is to suddenly be faced with broken rods and starting back to square one with...
  2. Hi, You can ask your surgeon to put you in...

    Hi,

    You can ask your surgeon to put you in touch with other patients who have had similar thoracoplasties done by him. Then get in touch with them and ask them for their experiences. I did this...
  3. I know you directed your question to Linda, but I...

    I know you directed your question to Linda, but I wanted to chime in. I am sure a sacral fracture is extremely painful, so I would consider that a big problem. They can require surgery to stabilize...
  4. Linda, I am kind of surprised to read the high...

    Linda,

    I am kind of surprised to read the high rates of reoperation, pseudoarthrosis, and infection: Forty-one percent (n = 19) of the unilateral cases and 50% (n = 13) of the bilateral cases...
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    Sharon, That is shocking. Do you know what...

    Sharon,

    That is shocking. Do you know what happened to her?
  6. Hi there, I am glad to hear how well you are...

    Hi there,

    I am glad to hear how well you are doing! And a very good 6-week report. I had a single side iliac screw. The purpose of the iliac fixation is mainly to prevent sacral fracture, and...
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    Do you know about their pediatric partner, Scott...

    Do you know about their pediatric partner, Scott Luhmann? That was Leah's surgeon.
  8. Replies
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    922

    Hi there, Great advice above, and I especially...

    Hi there,

    Great advice above, and I especially agree with PeggyS that maybe you should only plan on graduation at the end of the year. I also think you may be too tired and sore, not to mention...
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    Hi Sharon, the little "wires" you see are skin...

    Hi Sharon,

    the little "wires" you see are skin staples.

    The article mentions she has had many spine surgeries, starting at 6 weeks of age…I guess I don't understand then why she wasn't fused as...
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    how is your balance?

    Hi Ed,

    That is pretty cool, it looks so beautiful where you are in the photo. Very tropical looking. I wonder how your balance feels up on the horse? I am not a rider, but I got on a mountain...
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    Hi Fifa (Rhonda), Have you tried Miralax? It...

    Hi Fifa (Rhonda),

    Have you tried Miralax? It doesn't produce the liquid effect that Milk of Mag produces. I stayed on it for awhile once I was off pain meds and it was just right.

    It sounds...
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    Hi there, will your fusion be T4-S1? Many...

    Hi there,

    will your fusion be T4-S1? Many here have that fusion and can speak to how they feel after. I wore a brace in jr high, and found that more restrictive than my T8-sacrum because the...
  13. I want to second what green m&m said about...

    I want to second what green m&m said about getting your post-op pain meds filled---I had surgery at a large university hospital 2 hours from our house. My husband was turned away by the Safeway...
  14. Hi there, those are great questions to ask...

    Hi there,

    those are great questions to ask about pain control. It is frequently helpful to have a family member or friend who can advocate for you when it comes to pain control.

    I am...
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    Hi Jess, Have you ever tried TENS? ...

    Hi Jess,

    Have you ever tried TENS? (Transcutaneous electrical nerve stimulation). Some PT's use it as an adjunct to very tight or spasmed muscles. My insurance bought me a TENS unit several...
  16. Thread: Update

    by leahdragonfly
    Replies
    103
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    8,982

    Hi Kara, I'm glad you had a nice Christmas,...

    Hi Kara,

    I'm glad you had a nice Christmas, and that your recovery is going well. One month down in the wheelchair, hopefully 2 more to go then you'll be on your way! It must be nice to get out...
  17. Linda, I am fused T8-sacrum and can wipe from...

    Linda,

    I am fused T8-sacrum and can wipe from the back without any aids. I think a lot depends on shoulder flexibility.

    I agree with Melissa that there a lot of things and movements I can do...
  18. It's really difficult to evaluate this info...

    It's really difficult to evaluate this info without reading the whole publication…But, I have to note, in the description the authors state the subject curves ranged from 6 degrees to 120 degrees. ...
  19. Dear Sarah, That is wonderful to hear, and I...

    Dear Sarah,

    That is wonderful to hear, and I am so glad everything worked out well with the delivery of your daughter! I thought about you and wondered how everything went, but I know how busy it...
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    Hi Jess, I am really sorry to hear how baby...

    Hi Jess,

    I am really sorry to hear how baby Sparky is struggling right now…have you tried melting butter into chicken broth or beef broth? Maybe that will entice him.

    I hope he is a bit better...
  21. Hi, This question is frequently asked and...

    Hi,

    This question is frequently asked and everyone is different in what they need. The usual advice from Linda is to wait until after surgery and see what you need. I wouldn't worry one little...
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    Hi, One comment made me pause…your surgeon...

    Hi,

    One comment made me pause…your surgeon said you "should" have enough less that pain that you should be able to stand up straighter…If you have bad enough flatback you need a PSO so that you...
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    Hi Maria, That sounds very promising. Do you...

    Hi Maria,

    That sounds very promising. Do you know what they do to the area that had discectomies? Probably can't just leave them without a disc??? or it would seem likely to cause pain. Or...
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    I think feeling cold all the time is pretty...

    I think feeling cold all the time is pretty common. Many have mentioned it here. Do you have any fevers?

    I remember having sweats when I was weaning down my oxycodone doses.

    How are you...
  25. I flew to SF and back last spring…first time...

    I flew to SF and back last spring…first time since surgery. I set off the alarm in the phone-booth type scanner, and they briefly patted down my back. I offered to show my scar and they were quick...
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