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    So sorry

    Hi Jackie, I am so sorry youíve been thru hell -canít imagine going through what you have been through w/o pain Med - Really hope you get better soon Nancy
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    Were you crazy?

    Jesus Christ Ed - you must have had a death wish to do that type of skiing-ha ha- (sorry couldnít resist) I know you must miss those earlier years when you could ski - I miss dancing- not such a high...
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    Blood work?

    So anything specific they look for in blood work other than youí healthy? Which Iím not in the best shape.
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    Wonder what to expect for return appt

    I originally saw Dr Gupta 12/17. Now I have my return appt 1/15 ( out of state). If he agrees to approve me for surgery I think heíl want me to return later for blood work, labs, etc. Am I right...
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    Your Strength

    Ed , I really believe that youíre years of skiing & diving made you stronger than the average person. Takes very strong legs to Ski especially at the level you were doing. Plus you appear to have...
  6. Thread: 11 years out

    by Scared
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    PM inbox

    Linda I received email from the forum informing me my Inbox was full & stated I had option to ďarchiveĒ messages. I tried calling last week to obtain info on how to do this but could not get thru.
  7. Thread: 11 years out

    by Scared
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    Thanks

    Tina I tried to send a PM but apparently my inbox is too full-donít know how to ďarchive ď ? But thanks for sending pic of Jewett brace -now know what folks are talking about.
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    Pt

    I was told by Dr Gupta to do PT to strengthen core etc. Canít really comment about curvature but over the years was told to do PT. This year it helped me to a certain level then pain continued...
  9. Thread: 11 years out

    by Scared
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    Brace?

    In the book on Scoliosis by a patient, I believe he talked about sometimes a doc will require you to wear a brace. To be fused probably at least mid-Thoracic to sacrum is it pretty common for you to...
  10. Thread: 11 years out

    by Scared
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    Wow!

    Kathy , you look amazing! I had to start using a cane April of this year due to severe sagittal imbalance (about 3 inches off on R leg) plus severe low back pain. I use to be a gym rat up until age...
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    Gabapentin/Neurontin

    I have been on Gabapentin aka Neurontin for about 11 years. It was prescribed after bi-lateral hip replacement. I donít recall if it helped in the early stages but now no relief. It was prescribed...
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    Stage?

    I donít understand term ďstageĒ -does that mean surgery is done on same day but at different times or next day? Of course Iím not going to be driving 🤨. Why canít you discuss having full fusion? I...
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    Really?

    Linda I am not stupid. I knew that I would have to shower (already have a shower seat). But just wanted DETAILS. I am alone trying my best to get prepared as much as 1 can. Donít understand why you...
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    X-Rays

    Ed back in 12/17 my fiancť at the time (mechanical engineer) could only get 1 pic from CD. Any advice as to how to download the other pics from X-Rays taken on computer? There were at least 4-5 films...
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    Suv?

    Well Ed good to hear from you FINALLY- Per logical thinking I am assuming that I would get the Cervical fused 1st. Donít know where in the Thoracic spine fusion will start but know it ends at...
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    Thanks

    I was told 12/17 dr would do anterior & posterior cuts. Since I will be in rehab 2 weeks hopefully will be able to get home by a more comfortable SUV. Have so much to plan for.
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    Perhaps bigger SUV?

    Thinking a bigger, newer SUV with electric seats would work? Originally thought about a van but probably donít want to lie down & have to log roll out (may get stuck) on way home. Thanks Tina
  18. Thread: 11 years out

    by Scared
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    Thank you for returning

    Ditto for what Tina stated. I havenít read everything but enough for now. Really appreciate the info you shared especially for us 1st timers.
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    Advice on Type of Vehicle to get me home

    As I am preparing to go out of state to get 1st surgery done I need advice as to what kind of vehicle to get me home ďcomfortablyĒ. This is about a 6 1/2 hour drive. So I would probably be flying to...
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    I TOTALLY agree-I canít believe what the docs get...

    I TOTALLY agree-I canít believe what the docs get away with- I use to lead Joint Commission Surveys. The drs I have seen were not in compliance on many things including Patient Education.
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    Thanks for sharing

    You havenít caused my depression as itís already there (too much pain over too many years). I want to emphasize how helpful it is to receive details of others experiences. This type of info is so...
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    Donít know what Iím going to do

    I really appreciate the details you gave. I NEED the DETAILS vs generalities. I am totally overwhelmed & donít know how Ií manage 3-12 months after surgery. X is only giving $18,000 towards surgeries...
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    Full fusion vs not?

    Don't know how old you were esp in 1998 but given I'm 63 I think it would be wise to go forward w/ full fusion as I do not want to be facing another surgery at age 66 +? Nancy
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    Any progress with bendable rods?

    Linda- Has there been any research or actions in US with this type of bendable rod? If so who/where?
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    Shoes

    I live in comfort shoes depends on size, etc but I wear 8 1/2 & like Jambu - tried Sketchers but they were 2 small. www.hammacher.com has pair of house shoes that provides the back support I/we need...
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