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  1. Susan- Bless you and your situations! I am always...

    Susan- Bless you and your situations! I am always amazed at the calm way you update us and are able to throw humor in even though the situation is anything but funny. So sorry for the pain you...
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    So sorry, Melissa -- I'm sure it seemed like the...

    So sorry, Melissa -- I'm sure it seemed like the hair on the camel's back in terms of frustration. I'm glad Ed was here to see your post and provide a little humor as well. Radiologists taking...
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    Not that it matters, but I am sure that I...

    Not that it matters, but I am sure that I remember Karen did not have hardware to begin with. I think I remember because she is like a friend of mine... they had their surgeries before hardware was...
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    Whoo hoo! I bet you are doing the Happy Dance!...

    Whoo hoo! I bet you are doing the Happy Dance! And so are many of us! So happy for you, Melissa. Big smile!
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    I am so sorry, Melissa. How discouraging for you....

    I am so sorry, Melissa. How discouraging for you. Take some deep breaths and remember that you are a fighter and have taken it one day at a time and made it through so many catastrophes. You can do...
  6. Mark- let us know how your appointment goes. I...

    Mark- let us know how your appointment goes. I was always anxious about mine, but they were always fine. (So far!) Ha ha! I have discovered in my 8 years post-op that this recovery thing is a bit of...
  7. You guys crack me up... this has been so...

    You guys crack me up... this has been so entertaining! Mark just needs some lessons on how to hold onto his money - ha ha ha. (BIG SMILE). Or he can send it to any number of us instead... I still go...
  8. Great job posting those x-rays! They look pretty...

    Great job posting those x-rays! They look pretty good. Now to see how you are feeling in a bit. What a long journey it's been and you have been such a trooper. I am so proud of you and your...
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    Jackie-- you're in my thoughts and prayers. We...

    Jackie-- you're in my thoughts and prayers. We will all be so happy to hear from you once you feel up to it, but don't rush things. Rest up and know we care! Gentle hugs from this friend, too.
  10. Thread: 8 wewks

    by Susie*Bee
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    Hi guys! Here I am, reporting in. Have been on an...

    Hi guys! Here I am, reporting in. Have been on an epic road trip, and am not quite home yet... haven't checked the forum for a few weeks due to internet problems.

    I will try to write a little (ha...
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    It's funny how meds affect people differently....

    It's funny how meds affect people differently. Tramadol doesn't affect me at all. It barely does anything any different than tylenol. I suppose it depends on how much you took??? Glad you enjoyed The...
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    I'm pretty sure it was Chrissanne I was thinking...

    I'm pretty sure it was Chrissanne I was thinking of... she had a blog and I have a perfect image of her in my mind. Going through the whole surgery and having a neck brace. She was doing pretty well...
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    So what we need is the SRS or someone to push the...

    So what we need is the SRS or someone to push the AAP to change their position on school screening. SRS meets Sept. 30 - Oct. 2 in Minneapolis. But I doubt that they would be able to mention it.
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    I fell through the cracks too, Ed. I know what...

    I fell through the cracks too, Ed. I know what you mean. It's a total injustice by the pediatricians to the children and their parents. They should have the ability to KNOW the condition is present...
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    Interesting video

    I ran across this, and I'll let it speak for itself. I wanted to share it as I think some of you might find it interesting.

    https://www.youtube.com/watch?v=E8umFV69fNg
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    The only caveat for walking outside that I could...

    The only caveat for walking outside that I could see was the "living in a remote desert area" word. I know when we lived in the high desert of southern California, it would usually (often) be 110 or...
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    As I see it, the problem is getting the American...

    As I see it, the problem is getting the American Academy of Pediatrics to retract their findings based on the new techniques: growing rods and titanium ribs, VEPTR, VBS, and VBT, etc. (There may be...
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    Maria - I am sure money has something to do with...

    Maria - I am sure money has something to do with it, but mostly the fact that the AAP said it was not necessary. Would you, then, put time and money into something if a trusted entity said that? Our...
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    I know it's no longer a law in Indiana, ever...

    I know it's no longer a law in Indiana, ever since the American Academy of Pediatrics said it was not necessary, based on bracing studies that came out several years ago. What a terrible decision......
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    Donna- that is wonderful! It sounds like you are...

    Donna- that is wonderful! It sounds like you are doing fantastic! Kudos and all that sort of celebratory exclamations to you! Four years is a milestone marker. I am so glad you checked in to share...
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    Thanks Melissa, Jackie, Peggy, and Ed! Yes, it's...

    Thanks Melissa, Jackie, Peggy, and Ed! Yes, it's been a long journey. I've enjoyed my recovery, even with a few ups and downs and wondering if I'd ever "get there" at times. (big smile). Yes, Ed. We...
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    8 years ago today!

    Hooray! Today is the 8th anniversary of my surgery date. It's funny how you can still conjure up those surgery memories and emotions at the mere thought! Yikes! So glad to have it behind me and the...
  23. Thread: Hip pain

    by Susie*Bee
    Replies
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    867

    Cathy-- I think different surgeons prescribe...

    Cathy-- I think different surgeons prescribe different meds and different dosages. The strongest pain med I was on after surgery was hydrocodone 10/325. I also took valium. After I started getting...
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    Dear Melissa-- How very nice of you to let us all...

    Dear Melissa-- How very nice of you to let us all know that you are "moving on" and not just disappear without a word. Yes, you have had a very difficult time in so many ways. I will miss your posts...
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    Dear Fifa-- it sounds like you have really come a...

    Dear Fifa-- it sounds like you have really come a long way in these two months! I'm so proud of your dedication at keeping your diary of everything! How clever of you to track it all! At the time, I...
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