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    I rather have scoliosis than polio.

    I rather have scoliosis than polio.
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    Sorry to hear about your pulmonary issues. Wow,...

    Sorry to hear about your pulmonary issues. Wow, I didn't know you could have spinal fusion so early. I had to wait until I was full grown. I was just born with scoliosis but have pulmonary issues...
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    How old was Linda when she passed. Very sad to...

    How old was Linda when she passed. Very sad to hear.
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    MRI ruled out Necrosis...Yay

    Hi All:

    Finally got to see a hip specialist and had an MRI to check on Necrosis in my hips. No Necrosis, just mild osteoarthritis. SO NOW I KNOW ALL MY PAIN IS FROM MY BACK. PROBABLY SI JOINTS!...
  5. Looking for a good hip replacement surgeon in St. Louis

    Hello:

    Looking for any hip replacement surgeons or doctors with experience with necrosis in the St. Louis area. I really would like one that is very familiar with scolosis too. My last xray with...
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    My first surgery (back in 1969) was a stainless...

    My first surgery (back in 1969) was a stainless steel rod. One wuth a few hooks. Now it's three, different sizes with cages and screws by the multitudes. In 1969, I was fused T4-L4... Probably...
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    Thanks, Linda! Good luck with your issues too. ...

    Thanks, Linda! Good luck with your issues too. Not that I want anyone else in pain but it sometimes helps to talk to people that really understand scoliosis and everything that goes with it. Plus...
  8. Hi: I had just posted one about my newly...

    Hi:

    I had just posted one about my newly diagnose necrosis in my femoral heads, hips. Heard it was not uncommon for us older lifetime scoliosis crew. Knock wood, only my hips (plus both groin...
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    Hi Linda: May I ask you why Dr. Gupta removed...

    Hi Linda:

    May I ask you why Dr. Gupta removed your titanium and replaced it with stainless steel?

    Karen
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    Ed: You must be a writer. Your analogy is...

    Ed:

    You must be a writer. Your analogy is spot on and entertaining at the same time.

    I guess you're telling me I must keep up with the PT. (I will try the blueberries). The PT is always...
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    Anyone having hip problems

    Hi all:

    I was just wondering if any other post surgical scoliosis friend has had any hip issues. The last few years I have been increasing having groin pain. Both legs, not at same time. ...
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    Wow. I was taken by ambulance to rehab for 15...

    Wow. I was taken by ambulance to rehab for 15 days. But you what, I would have rather gone home. You don't get any care at night in rehab. You should have PT, OT, and a nurse come to your house...
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    True. I agree. I do that everyday. In fact,...

    True. I agree. I do that everyday. In fact, been doing that for over 50 years now.
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    I guess I don't get the humor. Pain isn't funny...

    I guess I don't get the humor. Pain isn't funny right now, sorry to be a debbie downer. My pain just keeps getting worse every year.
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    Ed. Very nice words. You must be a writer (or...

    Ed. Very nice words. You must be a writer (or should be).
  16. Looking for any St. Louis Shriner's 1969 alumni (Scoliosis Surgery patients)

    Hello:

    Just thought I would check to see if anyone I briefly knew in St. Louis Shriner's in 1969 & 1970 was on this forum.

    Wanted to say hi.

    Karen
    Scoliosis surgery in Oct 1969.
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    Yes I have asked about illiac scew removal and my...

    Yes I have asked about illiac scew removal and my doctor at that time (Dr. Lenke) was against it. He said I could have swaying problems. ??
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    10years Post-Op Still Having Pain

    Hello:

    I am 10 years post op my second scoliosis surgery. First was T4-L4 in 1969. Last was T3-Sacrum with Illiac Screws, etc. in 2006. Ever since day 6 which was the first time I sat up, I...
  19. 10 Years Post Surgery & Still Having Many Problems

    I had a revision surgery, T3-Sacrum, almost 10 years ago. I am still having many of the same pain.

    Any time I sort of lean over I get a sciatica pain which lasts forever.

    Also having pain in...
  20. About broken rods

    I am assuming everyone that breaks a rod is usually fused through sacrum. Correct? Are you bending during the breakage or what should us that have not had broken rods be most concerned with. I...
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    Reply

    I agree that is too many surgeries for one doctor. Sort of scary.

    My last visit with Dr. Lenke here in St. Louis, I waited 5 hours and 15 minutes. Yes you read it right....5 hours & 15 min. It...
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    Dr. Gupta

    So how is Dr. Gupta? I am assuming I will see him also since Lenke left. I am not planning on having anymore surgery, (two in a life time is plenty), but just in case, (God Forbid), I have to, I...
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    Reply to Biily

    Well what happens is the disc's of the non fused vertebrae over time wear out. Which then causes various painful problems. Ie: Stenosis, sciatica, etc. Then the doctor will tell you the only way...
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    Most pain is sugeries fused to sacrum

    Bill...glad to hear you are doing ok.

    But most severe pain post surgery patients, I believe, have been fused all the way down to sacrum.

    My first surgery 40 years ago was down to L3.

    Was ok...
  25. Reply

    Not sure which one is Melissa. But thanks for the info. My problem is more than pain. I have walking & sitting limitations also. Which I'm sure are familiar with other scoliosis friends fused to...
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