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    Thank you, dear friends, for your heartfelt...

    Thank you, dear friends, for your heartfelt messages. They are a balm of sorts to an aching soul. I appreciate your friendship and your caring so much. This has always been my favorite spot online to...
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    To my friends/scoli bros and sisses

    I think I have come to a point where I will at least take a long break if not just plain leave. I didn't want anyone (would there be?) wondering what happened to me. I am griefstricken with the...
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    Thanks for the response, rohrer! Yes, I've read a...

    Thanks for the response, rohrer! Yes, I've read a lot about CMT in the MD site, but had not even noticed the change in the "D" word! I think CMT was originally included because even though it is...
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    Dear Jackie - I am so sorry about your continued...

    Dear Jackie - I am so sorry about your continued problems. I am praying for you and that this will be the end of the surgeries-- with a good outcome and maybe the recovery time won't be as bad as...
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    Since Sharon said she hoped some other adults...

    Since Sharon said she hoped some other adults would chime in, here I am! Spitfire- love your name! So sorry about the difficulties you are having. I was never DXd as a teen with scoli (slipped...
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    Thanks for the suggestion, Ed. I went to the SRS...

    Thanks for the suggestion, Ed. I went to the SRS site and noted the doctors (just 4), most of whom seem to be neurologists. I did send some info on to her and she will ask her rheumatologist in March...
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    Scoli docs in Seattle area?

    My sister has been told she has a pretty bad case of scoliosis by another of her doctors... I told her she needs to see a scoliosis specialist to do at least a baseline study. Does anyone have...
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    Cathy - so glad to hear that "all is well" with...

    Cathy - so glad to hear that "all is well" with you. Take care.
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    I'm SO SORRY about the rotten deal with your...

    I'm SO SORRY about the rotten deal with your father. Yes, you needed to share that with us. It is so unfortunate when people are viewed more as objects. It must have been very difficult for all of...
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    It's so good to hear from you again, Rohrer. I am...

    It's so good to hear from you again, Rohrer. I am so sorry about your pain, but it's good to know the SI joint injections helped. Ah, yes, thrush... I developed a bad case of it back in college when...
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    Thanks so much, Rohrer, for the informative post....

    Thanks so much, Rohrer, for the informative post. So sorry to read about your niece-- so busy and with so many problems. I read about people who are terribly afflicted with their CMT in this facebook...
  12. Rohrer - I responded already in your timeline,...

    Rohrer - I responded already in your timeline, before I saw this one... sending my best, Susie
    Here-- I decided to cut and paste so things could be together...

    Dear Rohrer - I appreciate the...
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    Dear Rohrer - I appreciate the update and want...

    Dear Rohrer - I appreciate the update and want you to know you're in my thoughts and prayers. How good of you to warn others about awareness of hypokyphosis and its possible complications, all in the...
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    Hi SewBzzzy! Welcome to the forum! I don't know...

    Hi SewBzzzy! Welcome to the forum! I don't know if what I say may be a help or not, but I'll go ahead. I had my surgery, T2-L4, when I was 56. I was the elementary school librarian, and I'm sure my...
  15. Susan - that sounds like you are doing remarkably...

    Susan - that sounds like you are doing remarkably well - 20 steps! I'm impressed. As Dorothy said, "There's no place like home..." and I'm so glad you are there now. It sounds like you have a good...
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    It is so hard to set that date and go for it! Now...

    It is so hard to set that date and go for it! Now you have a definite hope and goal, and that seems like a pretty good Christmas gift. I'll be praying for a very successful surgery and for your...
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    Dear Ginger - I'm absolutely delighted to hear...

    Dear Ginger - I'm absolutely delighted to hear your update and I'm sure it will benefit many who wonder... I am 8 years out and able to do much, with some limitations, plus CMT. Enjoying life to the...
  18. Ditto here. Hooray for the cancellation! Your...

    Ditto here. Hooray for the cancellation! Your bright red nails will draw attention to your feet... (if that's all you're wearing!) But not really. Praying for you!
  19. Susan- sending love and prayers. I am so glad you...

    Susan- sending love and prayers. I am so glad you feel you can share with us ALL of your thoughts. Just think if you (and Linda, Melissa, Jackie and others) didn't discuss your difficulties, others...
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    Linda is correct-- we are all different. I am not...

    Linda is correct-- we are all different. I am not fused to the sacrum but have to be cautious of my lower two vertebrae (fused T2 to L4). I still cannot clean the tub without it literally (almost)...
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    Yes, Ed. Thanks for sharing. All 3 episodes were...

    Yes, Ed. Thanks for sharing. All 3 episodes were very interesting. (smile) Quite a life! Extraordinary man!
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    Hi Delta! I don't know if this suggestion would...

    Hi Delta! I don't know if this suggestion would help you or not, but thought I'd throw it out there in case. I used one of these for about six years at my job at a school, and had my passenger van...
  23. A resounding "Amen!" to that, Jackie. Susan- each...

    A resounding "Amen!" to that, Jackie. Susan- each day I have opened up this thread and each day I have been at a loss of what to say. You are my dear scoli friend and I am numbed by the unfairness of...
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    Hi Rohrer! I've thought about you often and...

    Hi Rohrer! I've thought about you often and wondered how you are doing! It sounds like you have had some major difficulties plus the progression, and I am so sorry. Thank you for posting the update....
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    I like the way Susan put that! Too many battles!...

    I like the way Susan put that! Too many battles! On to recovery! You are a trooper! So sorry for the problems of going home too soon and subsequent consequences. That's the pits. How on earth did Ed...
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