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Hi Jackie, I am so sorry you’ve been thru hell -can’t imagine going through what you have been through w/o pain Med - Really hope you get better soon Nancy

Jesus Christ Ed - you must have had a death wish to do that type of skiing-ha ha- (sorry couldn’t resist) I know you must miss those earlier years when you could ski - I miss dancing- not such a high...

So anything specific they look for in blood work other than you’ healthy? Which I’m not in the best shape.

I originally saw Dr Gupta 12/17. Now I have my return appt 1/15 ( out of state). If he agrees to approve me for surgery I think he’l want me to return later for blood work, labs, etc. Am I right...

Ed , I really believe that you’re years of skiing & diving made you stronger than the average person. Takes very strong legs to Ski especially at the level you were doing. Plus you appear to have...

Linda I received email from the forum informing me my Inbox was full & stated I had option to “archive” messages. I tried calling last week to obtain info on how to do this but could not get thru.

Tina I tried to send a PM but apparently my inbox is too full-don’t know how to “archive “ ? But thanks for sending pic of Jewett brace -now know what folks are talking about.

I was told by Dr Gupta to do PT to strengthen core etc. Can’t really comment about curvature but over the years was told to do PT. This year it helped me to a certain level then pain continued...

In the book on Scoliosis by a patient, I believe he talked about sometimes a doc will require you to wear a brace. To be fused probably at least mid-Thoracic to sacrum is it pretty common for you to...

Kathy , you look amazing! I had to start using a cane April of this year due to severe sagittal imbalance (about 3 inches off on R leg) plus severe low back pain. I use to be a gym rat up until age...

I have been on Gabapentin aka Neurontin for about 11 years. It was prescribed after bi-lateral hip replacement. I don’t recall if it helped in the early stages but now no relief. It was prescribed...

I don’t understand term “stage” -does that mean surgery is done on same day but at different times or next day? Of course I’m not going to be driving 🤨. Why can’t you discuss having full fusion? I...

Linda I am not stupid. I knew that I would have to shower (already have a shower seat). But just wanted DETAILS. I am alone trying my best to get prepared as much as 1 can. Don’t understand why you...

Ed back in 12/17 my fiancé at the time (mechanical engineer) could only get 1 pic from CD. Any advice as to how to download the other pics from X-Rays taken on computer? There were at least 4-5 films...

Well Ed good to hear from you FINALLY- Per logical thinking I am assuming that I would get the Cervical fused 1st. Don’t know where in the Thoracic spine fusion will start but know it ends at...

I was told 12/17 dr would do anterior & posterior cuts. Since I will be in rehab 2 weeks hopefully will be able to get home by a more comfortable SUV. Have so much to plan for.

Thinking a bigger, newer SUV with electric seats would work? Originally thought about a van but probably don’t want to lie down & have to log roll out (may get stuck) on way home. Thanks Tina

Ditto for what Tina stated. I haven’t read everything but enough for now. Really appreciate the info you shared especially for us 1st timers.

As I am preparing to go out of state to get 1st surgery done I need advice as to what kind of vehicle to get me home “comfortably”. This is about a 6 1/2 hour drive. So I would probably be flying to...

I TOTALLY agree-I can’t believe what the docs get away with- I use to lead Joint Commission Surveys. The drs I have seen were not in compliance on many things including Patient Education.

You haven’t caused my depression as it’s already there (too much pain over too many years). I want to emphasize how helpful it is to receive details of others experiences. This type of info is so...

I really appreciate the details you gave. I NEED the DETAILS vs generalities. I am totally overwhelmed & don’t know how I’ manage 3-12 months after surgery. X is only giving $18,000 towards surgeries...

Don't know how old you were esp in 1998 but given I'm 63 I think it would be wise to go forward w/ full fusion as I do not want to be facing another surgery at age 66 +? Nancy

Linda- Has there been any research or actions in US with this type of bendable rod? If so who/where?

I live in comfort shoes depends on size, etc but I wear 8 1/2 & like Jambu - tried Sketchers but they were 2 small. www.hammacher.com has pair of house shoes that provides the back support I/we need...