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  1. Thread: Newly Diagnosed

    by Karen5
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    20,854

    Thank you! It's definitely helpful that he's...

    Thank you! It's definitely helpful that he's been so communicative, and he clearly cares about doing what's best for her. It definitely helps us feel confident we have the right surgeon for the job.
  2. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Thank you so much. Yeah, it's been pretty...

    Thank you so much. Yeah, it's been pretty intense. Double thoracotomy, two ribs removed, discs removed from T6-L3 (T4 and T5 will be taken today and L4 if needed), and anterior fusion of those...
  3. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Thanks so much. He was less optimistic about L3...

    Thanks so much. He was less optimistic about L3 this morning after case conferencing, but he said he'll still see what he's dealing with once he opens her up. She's back now...went back around...
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    Oh my gosh, Fifa, I'm horrified to hear how you...

    Oh my gosh, Fifa, I'm horrified to hear how you were treated after your surgery! It sounds like they discharged you way too early. I hope you can get in with your doctor or an ER and get taken care...
  5. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Well, we're 2 surgeries down, the anterior ones,...

    Well, we're 2 surgeries down, the anterior ones, and they've been pretty intense. Tomorrow is the posterior one where she'll get her hooks, screws, and rods. For the anterior lumbar, the surgeon...
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    Thinking of you today, Fifa, and hoping all goes...

    Thinking of you today, Fifa, and hoping all goes well!
  7. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Well, Girl Child went on her liquid diet today in...

    Well, Girl Child went on her liquid diet today in preparation for surgery tomorrow. Then this evening, the surgeon called, fairly upset, telling us that the hospital informed him there are currently...
  8. Replies
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    Oh no, I'm so very sorry to hear you have that...

    Oh no, I'm so very sorry to hear you have that much more on your plate right now! I'll be thinking of you, especially as we head to the hospital Monday, too. I hope your surgery and recovery go...
  9. Glad to hear the surgery went well! My...

    Glad to hear the surgery went well! My daughter's surgeries start next week, and she'll likely be fused at the same levels, so I'm glad to know someone else whose daughter is going through the same...
  10. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Thank you for your kind words and perspective,...

    Thank you for your kind words and perspective, Crystal. I'll look forward to reading more about your story!
  11. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Well, we've done her pre-op labs (all came back...

    Well, we've done her pre-op labs (all came back fine) and met with the surgeon one last time to go over the plan and ask any last questions. It becomes more real every day, I guess. Dr. Campbell was...
  12. I know, you're almost certainly right. I guess I...

    I know, you're almost certainly right. I guess I just wish there was a way she didn't have to be fused so low, and my brain is still spinning the "what ifs". What if this would correct enough to...
  13. I know I probably shouldn't feel bummed about...

    I know I probably shouldn't feel bummed about that study, and it's a really small sample size without a control group, but I really wish it had been published 3 months ago when we would have tried it...
  14. I'm glad she's doing well, and I hope her...

    I'm glad she's doing well, and I hope her recovery goes smoothly!
  15. Good luck, Peggy!

    Good luck, Peggy!
  16. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Thank you, Kennedy! And yes, we've seen that...

    Thank you, Kennedy! And yes, we've seen that site! There's supposed to be a monthly CG meeting not terribly far from us, but we haven't heard back on when they ended up scheduling it. Hopefully we...
  17. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Yes, I'm working on getting her connected to some...

    Yes, I'm working on getting her connected to some other scoli kids. I've had a couple moms offer to let her speak to their girls, and there's a chapter of Curvy Girls (a scoliosis support group)...
  18. Replies
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    Oh! And to add pictures/your xrays, scroll down...

    Oh! And to add pictures/your xrays, scroll down below the reply box and click on "manage attachments". That will give you a dialogue box where you cilck on "add files" then click "select files" to...
  19. Replies
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    I am well, thank you for asking :) We all have...

    I am well, thank you for asking :) We all have our days and moments, but we're getting through. And yes, I was another one who had trouble getting my account activated. Very frustrating when I...
  20. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    Oh, and I did share this with her; it put a big...

    Oh, and I did share this with her; it put a big smile on her face, thank you!
  21. Thread: Newly Diagnosed

    by Karen5
    Replies
    37
    Views
    20,854

    lol she's actually going as Katniss Everdeen this...

    lol she's actually going as Katniss Everdeen this year, and has been growing her hair out specifically so she could have the braid. But we've joked about her soon to be status of Titanium Girl...
  22. At the bottom of each page is a "Contact Us"...

    At the bottom of each page is a "Contact Us" link, and it gives an email for Mr. O'Brien. That's the email I finally used and got a response from to get my account activated. If anyone else is...
  23. Replies
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    I don't have much I can offer; I'm new to this...

    I don't have much I can offer; I'm new to this myself. But I'm also a new member, and I just wanted to say hey and I hope your surgery gets you relief!
  24. I think I was posting at the same time you were! ...

    I think I was posting at the same time you were! I'm new to all this, but I got the sense that an MRI would be indicated for big/fast progressive curves and/or if there were neurological symmptoms.
  25. Our daughter was just diagnosed in August at...

    Our daughter was just diagnosed in August at 11.5, and she had an MRI, not because of the back pain (which she does have), but because her curves progressed to 84*/91* in a year's time. Our surgeon...
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