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  1. Replies
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    marfan syndrome

    our daugther has Marfan syndrome... and has just had growth rods inserted to correct her scoliosis...

    http://uk.youtube.com/watch?v=KANauFWe8y8
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    growth rods

    hi there - our 7 yr daughter had growth rods inserted 3 weeks ago...

    weve put something on You Tube to help others facing this..
    http://uk.youtube.com/watch?v=KANauFWe8y8
  3. 1st surgery is over

    the first major one is over.. but she will have 10/12 more operations over the next 4/5 years and then spinal fusion... we havent found any other folks having growth rods as most seem to have surgery...
  4. we hope this will help you...

    Hi - our 7 yr old daughter has just had surgery to correct her scoliosis.. Check out this You Tube video.. if you are awaiting surgery we hope it will help and inspire you.....
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    our 7 yr old daugther has surgery 2 weeks ago at...

    our 7 yr old daugther has surgery 2 weeks ago at Stanmore, north of London.. not sure where you may have your operation... There were 5 girls in the adolescant ward, all of them so proud and pleased...
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    You Tube Video - Scoliosis

    Hi - our 7 yr old daughter has just had surgery to correct her scoliosis.. Check out this You Tube video.. if you are awaiting surgery we hope it will help and inspire you.....
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