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  1. Replies
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    Gayle, This is just a thought, but there could...

    Gayle,

    This is just a thought, but there could be quite limited knowledge about true JIS, thus fewer articles on the subject. I say this because unless the JIS curve/s are large enough to catch...
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    Gayle, It appears that curve patterns can...

    Gayle,

    It appears that curve patterns can change over time. Like I mentioned earlier, my son's scoliosis completely disappeared. Those curves are so small that the right curve isn't even...
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    Flerc, To be fair I haven't read any other...

    Flerc,
    To be fair I haven't read any other comments on this thread. I read the article and looked at her pictures.
    She obviously still has a significant deformity. Many people live with their...
  4. Any continuation of this topic could be a hot...

    Any continuation of this topic could be a hot mess. It speaks for itself.
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    I hope you enjoy your stay. I've been to NY once....

    I hope you enjoy your stay. I've been to NY once. I found it to be a beautiful state. I love pine forests, though. I stayed away from the city. We were near Saratoga which is famous for it's...
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    Hello, Burdle. I'm the queen of "high...

    Hello, Burdle.
    I'm the queen of "high thoracic"...LOL No, it's not funny just ironic. I've yet to meet anyone with a high thoracic. Why do they say that the thoracic and the lumbar are the...
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    Kathy, I will PM you as I don't want to derail...

    Kathy, I will PM you as I don't want to derail Mike's thread. :-)
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    Mike, that would be my "hope" as well. That is...

    Mike, that would be my "hope" as well. That is being off of all narcotics. My situation just doesn't lend for that. I have a very painful muscle disease so my only goal would be to get straightened...
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    Mike, Since I've been seeing Tribus for such a...

    Mike,

    Since I've been seeing Tribus for such a long time I can tell you that he definitely has always had a good bedside manner and, at least with me, had a deep concern for making the right call...
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    Wow, Mike! I've seen that doctor for the last...

    Wow, Mike!

    I've seen that doctor for the last 16 years! He's nice, but has been a bit wishy washy with me as my curve is borderline. Let me know how it goes with him. I'm supposed to see a Dr....
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    Okay, I called Dr. Fogelson's office in...

    Okay, I called Dr. Fogelson's office in Rochester, MN. They haven't called me because I am on a very LONG waiting list to get in to see him. The receptionist looked at what they have for me and she...
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    Richard, I have not had surgery, but do have a...

    Richard,

    I have not had surgery, but do have a pretty large rib deformity under my left scapula. I also know people who have had surgery.

    Just something to remember; you don't have that much...
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    Thank you both for your kind words. It's...

    Thank you both for your kind words. It's appreciated! My dad outlived his "life expectancy" by about five years. In fact, months before he died they kicked him out of the hospice he was on because...
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    It's Official

    My dear scoli friends,

    Like the title of my topic, it's official that my downward spiral is speeding up. I may not be strong enough to survive a surgery. I haven't heard from Dr. Folgeson's office...
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    Ed, That upper back and neck pain is horrible....

    Ed,

    That upper back and neck pain is horrible. I never expected to have lower back pain as my problem has been upper back and neck pain with arm involvement since I was about 12 which really took...
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    Wow! That's one big fish. Do you ever watch...

    Wow! That's one big fish. Do you ever watch "Wicked Tuna"? I never realized how big tunas really are.
    I hope your pain is better. I don't remember mentioning those things. I used to live eerily...
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    I'm just updating my thread. I got approval...

    I'm just updating my thread.

    I got approval from insurance company to see Dr. Folgeson in Rochester, MN. Waiting on appointment.
    I also had my first facet joint injections. These were the easiest...
  18. As far as the research I've done, and it's posted...

    As far as the research I've done, and it's posted somewhere on here Chiari Malformations are associated with left primary curves, affecting 40% of those with convect left curves. I'm not going to go...
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    My sister that lost a lot of hair has a short...

    My sister that lost a lot of hair has a short hair cycle. She could never grow it past shoulder length. I lost about 50% of my hair once. I don't know why. It gradually grew back. My hair is too...
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    My insurance accepted the referral request with...

    My insurance accepted the referral request with the stipulations that any tests he wants done have to be done in-house AND warned me that they may charge more than they are willing to pay, leaving me...
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    Burdle, I'm glad your hair will come back. My...

    Burdle,
    I'm glad your hair will come back. My sister started losing hers in her 30's and it never came back. You can see her scalp, so she bleached it a lighter color so it isn't so obvious. My hair...
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    Melissa, If they can get a spinal cord...

    Melissa,
    If they can get a spinal cord stimulator in past your fusion, there is another option. They have a morphine pump that bathes the spinal cord with morphine and eliminates/reduces pain. If my...
  23. So are you fused C2 - pelvis? That sounds about...

    So are you fused C2 - pelvis? That sounds about like Melissa. My neck hurts so bad now, it's probably nothing compared to what you are feeling! I'm glad that part is over with for you. I'm so sorry...
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    So what will be the limitations on using your...

    So what will be the limitations on using your arm, especially since it's your dominant arm? Will it be limited range of motion? Will you risk tearing the muscle graft if you lift your arm too high? ...
  25. I was going to post here, too, until I saw the...

    I was going to post here, too, until I saw the date.
    Ed, I hope everything turned out all right. I've heard of Kleinfelter's Syndrom but never knew anyone that had it or was related to anyone that...
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