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  1. Daughter 16 has syrinx & needs scoliosis surgery...anyone with syringomyelia too?

    My daughter has a rare condition called syringomyelia. Diagnosed at 7 yrs old. Scoliosis began prior. Now she is 16 and will be 17 in august. Syrinx is the worry. I cant seem to find any teen out...
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    Sticky: daugher 15 syringomyelia/scoliosis surgery needed

    please help. does n e body know n e teenager with scoliosis who has or is having surgery that also has a spinal condition called SYRINGOMYELIA???? THANK YOU, I WOULD SO APPRECIATE N E HELP. WORRIED...
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