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I’ve been through the 12-1/2hour full fusion surgery and it was no walk in the park. Be strong. Lean on your support staff set up. I wouldn’t have made it without my husband! Please keep us posted....

How did u come to find out your pelvic screw is loose?

Well, seeing as the past 16+ hours I have spent in bed these past couple days I did a lot of thinking about this pain issue and scoliosis. It seems if u have surgery and a good surgeon, have no...

Oh Kathy,
I cannot tell you how bad the pain is! I just can bearly make it. The pain is so bad and just disabling. I’m almost to the point I can’t stand it. I’m missing work. I come home from work...

I’d be all for that as I really suffer tonite. And, when your dr doesn’t return your call, what’s the alternative supposed to be?

I have just tonite read all the followups on this thread. You guys are ALL the best. Because as I lay I on my bed dying in pain because I’ve been determined to do something that turned out to be too...

Jackie,
Can I ask where this DrYoung is located?

And,sometimes we don’t have a choice. I know something is not right. I should not be in this much pain all day every day.

pS Ed, I didn’t receive your last message. All I got was a blank page.

I just wish it was that easy.
I’m gonna have to see someone soon because my hands are numb and tingly now..why I’m dropping so many things.

Susan, I have a call into speak with Dr Lenke, or at least a request.dr Lenke requested I send him a ct and bone scan then I get to,she doesn’t want to see me. Sounds kinda wonky to me!

Thank you Ed. I enjoyed our talk and appreciated your information. I will definitely keep you posted. Came home from work at 10am with severe pain and muscle spasms, breathing problems... not fun!...

The bad news ....Dr lenke said he had nothing for me..or his assistant who called me. I was shocked! He told us in the room he would be glad to take care of me and he could see what the problem was....

Hello Susan. I can’t tell u how disappointed and heart broken I was when Dr Lenke’s nurse called me after all we did to see him,,,expense in flying there, not to mention the bone scan and ct scan he...

Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind up going home to bed. Im nearly to end of my rope!

Thanks.

Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind bbn up going home to bed. Im nearly to end of my rope!
...

Hi there. So..im still in dying pain. Tears sometimes and i have a high pain tolerance. Went to NY saw Dr Lenke and he said to us in person he could see why im in so much pain. Said he would take...

You know, we spent most of the day in new york the day I saw DrLenke. I did xrays, pulmonary function test. But,inasmuch pain as I have, I didn’t care how long it took. This amount of pain is just...

Saw Dr Lenke week in NY. He’s just as wonderful as I remember. He said he’s pretty sure, from my description, sounded like something is loose down low back. The pain! He’s ordered a bone scan and ct...

I should add...I went to ER a week ago for breathing problems. All I got from them was I didn’t have a blood clot and I did have elevated BP,which is why I was having breathing problems....

I have appt with my surgeon next week. Remember I had 2 rods replaced that were broken two years ago. After an extreme lengthy surgery, I thought everything goin ok then started having excruciating...

I took you all’s advice and called Dr Lenke’s NY office today. I’m getting X-rays done ASAP and sending to him and I’m set up with tentative appt to see him on Apr 4th in his NY office. But he’s...

I tried calling Dr Lenke office but it was closed today due to holiday. I called dr Guptas office and left a message to see if they can move my appt up at all. I’m hopeful they’ll get back with me...

I’ve had a couple incidences where the pain is sooo bad that it’s almost like a lung deflates. Is that even possible? If a rod is broken can it impinge on a lung? Because at that particular time it...

Yes, I didn’t relish the idea of traveling to NY, expensive trip. And, then you’d have to go back for the surgery. And, not to mention, after surgery how do u get home when u can barely walk.

I’ve tried otc patches but not Fentanyl. I’m going to call Dr Lenke tomorrow and see if he will see me. I really liked him. I just can’t imagine having sx in NY, ie how to get home. But, worry about...