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    Iíve been through the 12-1/2hour full fusion...

    Iíve been through the 12-1/2hour full fusion surgery and it was no walk in the park. Be strong. Lean on your support staff set up. I wouldnít have made it without my husband! Please keep us posted....
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    How did u come to find out your pelvic screw is...

    How did u come to find out your pelvic screw is loose?
  3. Well, seeing as the past 16+ hours I have spent...

    Well, seeing as the past 16+ hours I have spent in bed these past couple days I did a lot of thinking about this pain issue and scoliosis. It seems if u have surgery and a good surgeon, have no...
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    Oh Kathy, I cannot tell you how bad the pain is!...

    Oh Kathy,
    I cannot tell you how bad the pain is! I just can bearly make it. The pain is so bad and just disabling. Iím almost to the point I canít stand it. Iím missing work. I come home from work...
  5. Thread: spines of steel

    by RitaR
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    3,116

    Iíd be all for that as I really suffer tonite....

    Iíd be all for that as I really suffer tonite. And, when your dr doesnít return your call, whatís the alternative supposed to be?
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    I have just tonite read all the followups on this...

    I have just tonite read all the followups on this thread. You guys are ALL the best. Because as I lay I on my bed dying in pain because Iíve been determined to do something that turned out to be too...
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    Jackie, Can I ask where this DrYoung is located?

    Jackie,
    Can I ask where this DrYoung is located?
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    And,sometimes we donít have a choice. I know...

    And,sometimes we donít have a choice. I know something is not right. I should not be in this much pain all day every day.

    pS Ed, I didnít receive your last message. All I got was a blank page.
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    I just wish it was that easy. Iím gonna have to...

    I just wish it was that easy.
    Iím gonna have to see someone soon because my hands are numb and tingly now..why Iím dropping so many things.
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    Susan, I have a call into speak with Dr Lenke, or...

    Susan, I have a call into speak with Dr Lenke, or at least a request.dr Lenke requested I send him a ct and bone scan then I get to,she doesnít want to see me. Sounds kinda wonky to me!
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    Thank you Ed. I enjoyed our talk and appreciated...

    Thank you Ed. I enjoyed our talk and appreciated your information. I will definitely keep you posted. Came home from work at 10am with severe pain and muscle spasms, breathing problems... not fun!...
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    The bad news ....Dr lenke said he had nothing for...

    The bad news ....Dr lenke said he had nothing for me..or his assistant who called me. I was shocked! He told us in the room he would be glad to take care of me and he could see what the problem was....
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    Hello Susan. I canít tell u how disappointed and...

    Hello Susan. I canít tell u how disappointed and heart broken I was when Dr Lenkeís nurse called me after all we did to see him,,,expense in flying there, not to mention the bone scan and ct scan he...
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    Ed, where are the drs you mention above? I...

    Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind up going home to bed. Im nearly to end of my rope!

    Thanks.
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    Ed, where are the drs you mention above? I...

    Ed, where are the drs you mention above? I cannot do anything or im in horrible pain. At times, i can barely walk at work. Then, i wind bbn up going home to bed. Im nearly to end of my rope!
    ...
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    From RitaR

    Hi there. So..im still in dying pain. Tears sometimes and i have a high pain tolerance. Went to NY saw Dr Lenke and he said to us in person he could see why im in so much pain. Said he would take...
  17. Thread: From Rita T

    by RitaR
    Replies
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    2,887

    You know, we spent most of the day in new york...

    You know, we spent most of the day in new york the day I saw DrLenke. I did xrays, pulmonary function test. But,inasmuch pain as I have, I didnít care how long it took. This amount of pain is just...
  18. Thread: From Rita T

    by RitaR
    Replies
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    2,887

    Scoliosis fullfusion

    Saw Dr Lenke week in NY. Heís just as wonderful as I remember. He said heís pretty sure, from my description, sounded like something is loose down low back. The pain! Heís ordered a bone scan and ct...
  19. Thread: From Rita T

    by RitaR
    Replies
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    2,887

    I should add...I went to ER a week ago for...

    I should add...I went to ER a week ago for breathing problems. All I got from them was I didnít have a blood clot and I did have elevated BP,which is why I was having breathing problems....
  20. Thread: From Rita T

    by RitaR
    Replies
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    2,887

    From Rita T

    I have appt with my surgeon next week. Remember I had 2 rods replaced that were broken two years ago. After an extreme lengthy surgery, I thought everything goin ok then started having excruciating...
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    I took you allís advice and called Dr Lenkeís NY...

    I took you allís advice and called Dr Lenkeís NY office today. Iím getting X-rays done ASAP and sending to him and Iím set up with tentative appt to see him on Apr 4th in his NY office. But heís...
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    I tried calling Dr Lenke office but it was closed...

    I tried calling Dr Lenke office but it was closed today due to holiday. I called dr Guptas office and left a message to see if they can move my appt up at all. Iím hopeful theyíll get back with me...
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    Iíve had a couple incidences where the pain is...

    Iíve had a couple incidences where the pain is sooo bad that itís almost like a lung deflates. Is that even possible? If a rod is broken can it impinge on a lung? Because at that particular time it...
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    Yes, I didnít relish the idea of traveling to NY,...

    Yes, I didnít relish the idea of traveling to NY, expensive trip. And, then youíd have to go back for the surgery. And, not to mention, after surgery how do u get home when u can barely walk.
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    Iíve tried otc patches but not Fentanyl. Iím...

    Iíve tried otc patches but not Fentanyl. Iím going to call Dr Lenke tomorrow and see if he will see me. I really liked him. I just canít imagine having sx in NY, ie how to get home. But, worry about...
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