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    thank you carmell waiting is horrible but im...

    thank you carmell waiting is horrible but im keeping positive.
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    deshea we are seeing Dr. do but she has discused...

    deshea
    we are seeing Dr. do but she has discused the case with dr. crawford and they both agree that the vepter wouldn't really help the problem there saying that the major issue is the khyposis and...
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    more info on Khyler

    hi everyone
    long time since i was on here last been very busy with Khyler's appts. and my little girl just turned one and she is in everything :) well we got the news that Khyler is not a canidate...
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    the latest on khyler

    hey everyone
    the pulmoligist nurse called me monday to say theat khyler has very little restriction on his lungs and at ther worst they would have to use a mask that forces oxygen into hi lungs...
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    update on khyler

    hey everyone the doctor called me back yesterday after they had spinal conference everyone agreed Khyler is a canidate for veptr but they want to check out his lungs first there going to do a...
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    also yes he was supposed to have traction...

    also yes he was supposed to have traction starting in july trough november but they called to reschedule again and ar putting it off till August
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    thank you everyone for the encouragement...

    thank you everyone for the encouragement sometimes i fell so frustrated that things arn't moving fast enough that i get dicouraged... Khyler has had an MRI but the Doctor who did it can't seem to...
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    thanks for the info deshea i will do that it's a...

    thanks for the info deshea i will do that it's a shame that so many people get the run around i thought it was just us till i got on here it is jjust crazy something needs to be done about...
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    Khyler's cinncinatti appt

    well im not sure if i would say that my appointment went well today or not???? Dr. Do was very nice she awsered all our questions and she was great with Khyler. she said that he was a canidate for...
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    seeing a new doctor

    We are going to see Dr. Do tomarrow at cinncinatti childrens to see if Khyler is a canidate for the veptr procedure. Dr. Lenke's office called me on friday to tell me that they are putting Khyler's...
  11. Thread: New to forum

    by sugs2780
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    Jeff i have to agree to take it from me you want...

    Jeff
    i have to agree to take it from me you want to find the best you can someone who specalizes in infantile scoli. it's hard to get the right awnsers. don't be afraid to ask a zillion questions...
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    i got your message i sent you an email please let...

    i got your message i sent you an email please let me know if you got that :)
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    we have an appt. in cinncinatti june 20 with Dr....

    we have an appt. in cinncinatti june 20 with Dr. Do that was the soonest we could get in. things are still set for dr. Lenke in july too trying to get all the information i can. Dr. Lenke says that...
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    thanks Kate hopefully we are on the right track...

    thanks Kate hopefully we are on the right track now it's funny they seem to take it better than we do........Khyler is so full of energy and zest for life sometimes i envy his out look on the...
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    celia no your not i don't know what the problem...

    celia
    no your not i don't know what the problem is it just seems everywhere we turn there is miss information and khyler just slips through the cracks i just don't know what to do anymore! :(
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    congradulations on the diagnosis it can feel so...

    congradulations on the diagnosis it can feel so good just to finally have a name for everything good luck you and emma are in my prayers
    Corina
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    celia no he's not! because there getting him in...

    celia
    no he's not! because there getting him in right away july 3 is when we go. Dr. lenke said at this point all a brace would do is make him uncomfortable and that it wasn't needed for such a...
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    carmell i went to that site you gave me i see...

    carmell
    i went to that site you gave me i see there are a few different hospitals that offer the veprt we live in ohio about an hour from columbus about three housr from cincinnati so that would be...
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    Khylers St Louis Appt.

    Hey everyone we just got back from seeing Dr. Lenke alot to digest. Khyler's curve has increased since our november visit to akron childrens then his top curve was 95 and bottom was 20 now top is 123...
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    Stacey thanks for the info. alot to digest. we...

    Stacey
    thanks for the info. alot to digest. we have a appt. with dr. lenke on may 4th at st louis childrens. Khyler hasn't had any surgeries yet (except on his cleft pallate) our ortho dr. here in...
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    celia what exactly is serial casting?

    celia
    what exactly is serial casting?
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    thanks chris i did what you suggested there were...

    thanks chris i did what you suggested there were alot of good things said about him.
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    ever heard of this doctor?

    hello-
    My son is 3 he now has a 98 curvature he was first diagnosed when he was 16 months old. We went through countless doctors trying to figure out what was wrong we first started to notice his...
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    i have to agree with the others when i read this...

    i have to agree with the others when i read this it hit a nerve.......yes scoli can be hard to deal with and sometimes you don't know where to turn but trust me the love of that baby is well worth...
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    thanks linda new to this sugs

    thanks linda new to this
    sugs
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