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  1. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Hi Theresa, First of all welcome to NSF you...

    Hi Theresa,

    First of all welcome to NSF you really will find tons of helpful info from parents all over the globe who have a much knowledge on various different treatment options. Unfortunately...
  2. Replies
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    14,546

    I don't post much usually just read but I've got...

    I don't post much usually just read but I've got to say something.

    I'm going on on a limb here because this subject is RIDICULOUSLY STUPID!!!

    Sharon ~ let it go already no one child is exacly...
  3. Replies
    18
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    5,133

    Two different radiologists doing the measurements...

    Two different radiologists doing the measurements ~ I wouldn't worry too much.
  4. Replies
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    5,133

    I agree with Pam on this one. Although...

    I agree with Pam on this one.

    Although radiologists are qualified to measure curves it's difficult to get accurate/consistent readings because each radiologists/ortho/scoli specialits, etc. all...
  5. Replies
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    13,576

    Hi Sharon, I'm glad your daughters appointment...

    Hi Sharon,

    I'm glad your daughters appointment went well and I hope that her upcoming surgery goes well and recovery is smooth.

    Everyone who's joined these group forums has valuable information...
  6. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Hi Christine, Thanks for the update but I have...

    Hi Christine,

    Thanks for the update but I have a few questions/comments.

    1. Is Celia doing okay ~ we have not seen or heard from her in a while and now you are posting updates on Deirdre for...
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    3,161

    For those needing/wanting info on VBS

    Hi Everyone,

    I just wanted to take a quick second to let everyone know that I along with a few other parents (Maria and Cara) have created a new website dedicated to informing parents about...
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    7,817

    Pam, I'm EXHAUSTED just reading about what you...

    Pam,

    I'm EXHAUSTED just reading about what you did. Now please RELAX and enjoy time with your family pre-op. Allow them to pamper you a bit.

    I'm sure you'll do great and soon enough you'll be...
  9. Replies
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    9,937

    Hi Kim, Although I do not have any direct...

    Hi Kim,

    Although I do not have any direct experience with Dr. Gabos at Dupont, Dr. Dormans ~ do know Dr. Betz as well as Dr. Samdani and they are both wonderful surgeons.

    My daughter is a...
  10. Hi Esa, I'm so sorry to hear of the your...

    Hi Esa,

    I'm so sorry to hear of the your "added stress".

    It's difficult and very sad that their opinions do ultimately influence Jasmine's attitude toward future treatments.

    I too have had...
  11. Hi Esa, My name is Amanda and my daughter...

    Hi Esa,

    My name is Amanda and my daughter Lorena has also undergone Vertebral Stapling and is also a Shriners Patient. We see Dr. Betz in Philly and could not be happier with our results so far.
    ...
  12. Replies
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    13,610

    Hi Jane, My daughter who is now 7 wore a...

    Hi Jane,

    My daughter who is now 7 wore a milwaukee brace for 6 months prior to getting vertebral stapling done @ Shriners Philly.

    The brace is difficult to wear and very...
  13. Replies
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    3,247

    NOPE ~ don't mind at all. It would be my...

    NOPE ~ don't mind at all. It would be my pleasure!

    domingo_amandapompa@msn.com

    ~A
  14. Replies
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    3,247

    Sorry I forgot to add ~ that unless the child has...

    Sorry I forgot to add ~ that unless the child has problems/issues the staples do stay in forever.

    To date there has only been 1 child that has had her staples removed because she overcorrected.
    ...
  15. Replies
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    3,247

    Yes, vertebral stapling is being used as an...

    Yes, vertebral stapling is being used as an alternative to bracing (it's an internal brace). This is geared toward younger children with idiopathic scoliosis with a lot of growth left who have very...
  16. Replies
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    3,247

    Hi R, My daughter also had the stapling...

    Hi R,

    My daughter also had the stapling surgery @ Shriners in Philly in June 2006. Like Maria said one of the advantages of stapling is that they maintain full flexibility of their spine with no...
  17. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    This is amazing, I'm offline for 2 1/2 days...

    This is amazing,

    I'm offline for 2 1/2 days and come back to read wonderful and very heart warming posts from various people.

    Adele ~ your post brought me to tears because you just completely...
  18. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Gerbo, How can you say this was a factual...

    Gerbo,



    How can you say this was a factual discussion it was NOT!

    Celia purposely misinformed flowerpower by answering the way she did ~ Celia flat out LIED and I'm tired of her BS I've been...
  19. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Celia, You truly are delusional. I wish I...

    Celia,

    You truly are delusional. I wish I had some time to actually transcribe the question/answer.

    Amanda
  20. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Cheryl, I called her a liar because she is. ...

    Cheryl,

    I called her a liar because she is. Celia's answer was

    Which was a complete lie ~ the questions posed was a hypothetical question involvoing genetic testing (which is still not a...
  21. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    I don't want to edit ~ but I hit the wrong key. ...

    I don't want to edit ~ but I hit the wrong key.

    Stephanie thank you for clarifying what Dr. D'Andrea actually said and Celia once again you don't have a clue what you are talking about so STOP! I...
  22. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Stephanie, You ROCK ~ girlfriend ~ THANK...

    Stephanie,

    You ROCK ~ girlfriend ~ THANK YOU!!!!!

    Adele I believe this is the article you are quoting from ~ and oh my you were 100% on your info ~ go figure. ...
  23. Thread: spinecor

    by amandap
    Replies
    3,919
    Views
    1,119,713

    Celia, I just listened to Dr. D'Andrea (twice)...

    Celia,

    I just listened to Dr. D'Andrea (twice) @ the recent SRS meeing and not once does she that.

    I welcome everyone here to listen:
    ...
  24. Replies
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    44,346

    Just to add a little something ~ There is a...

    Just to add a little something ~

    There is a young lady who has come onto our VBS support site she was the 19th person ever stapled when she was in the 6th grade and is now a SR in high school I am...
  25. Replies
    113
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    44,346

    Two years almost 3 is a long time when it comes...

    Two years almost 3 is a long time when it comes to "medical" studies ~ much of the criteria has changed.

    I agree there is much relevent info for the entire thread to be deleted and aside from my...
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