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  1. My daughter has also complained about the...

    My daughter has also complained about the tightness of her RSC brace, and would loosen her brace when she would eat. At one point, we had that portion of her brace adjusted, which helped a bit.
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    I hear excellent things about both orthotists. If...

    I hear excellent things about both orthotists. If you would like contact information for a girl who also has double curves (thoracic higher however) and had great success (no longer in surgical...
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    Hi Jenny's Mom- A Cheneau brace is a TSLO...

    Hi Jenny's Mom-

    A Cheneau brace is a TSLO brace, so I am unsure why they would not fill the prescription. I am guessing that the Cheneau is not available where you are, and maybe that is the...
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    Hi, I am sorry your daughter is in so much...

    Hi,

    I am sorry your daughter is in so much pain. Has she had an MRI? If it were my daughter (and my daughter has had this), I would get full spine and brain MRI.

    :) Brooke
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    Valerie, You are very inspirational and know...

    Valerie,

    You are very inspirational and know how to make the best of something that is not easy to deal with. Thank you for your post!!

    :) Brooke
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    Braced Teens

    When my daughter was younger, she would hardly speak about her scoliosis at all. Right before she was braced, she met another girl who had been wearing a brace for one year. This made all the...
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    Hi Mamamax, I don't know what Power Schroth is...

    Hi Mamamax,

    I don't know what Power Schroth is compared to regular Schroth. Were you able to read about it somewhere online ?

    :) Brooke
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    Hi Mamamax, The girls at Scoliosis Rehab, from...

    Hi Mamamax,

    The girls at Scoliosis Rehab, from my experience (been several times) always wear bathing suit tops or exercise bra-type tops with shorts or leggings. I have never seen a girl fully...
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    "And it is unfortunate, there are many young...

    "And it is unfortunate, there are many young children who are at great risk of curve progression, who are following the advice of their doctor or some other scoliosis practitoner, who will never know...
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    Chris, Thank you for your thoughtful reply. I...

    Chris,

    Thank you for your thoughtful reply. I really wish the best for your daughter.

    :) Brooke
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    No bitterness, just believe that both surgeons...

    No bitterness, just believe that both surgeons and alternative purveyors in scoliosis treatment do not know all there is no know about this disorder, which is why there are options. Some options work...
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    Just because a claim isn't a published case, does...

    Just because a claim isn't a published case, does not mean it cannot be substantiated or is untrue. Just because I mention successes does not mean that I am unaware of, or hiding the failures. I am...
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    Pooka1: I am not mistaken regarding any of the...

    Pooka1:

    I am not mistaken regarding any of the four cases I previously mentioned (and I know there are more from reading this forum). I keep in close contact with all three scoliosis patients'...
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    Bracing/exercise

    I do not think it is fair to assume that exercise or bracing will not help at this point. While beginning bracing with a 48 degree curve may not be ideal, I know of four kids, females between the...
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    While Scoliosis Rehab Inc. in Wisconsin advocates...

    While Scoliosis Rehab Inc. in Wisconsin advocates for the Rigo-Cheneau brace, they do NOT make, sell or profit from this brace, nor have they ever. The above information is untrue.
  16. Schroth East Coast

    Marc Moramarco in Massachusetts-excellent: http://www.drmoramarco.com/

    Christine Sharkey in Massachusetts-excellent: http://www.yogaforscoliosis.com/teachers/christinesharkey.htm
    -or-...
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    In my daughter's case, no one ever said, or even...

    In my daughter's case, no one ever said, or even remotely suggested that Schroth would cure her scoliosis. I have never heard of any Schroth patient receiving this advice. So, really, hearing this...
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    I have mild lumbar scoliosis, and also do Bikram....

    I have mild lumbar scoliosis, and also do Bikram. It helps my back pain, but I do think fair warning should be given to anyone choosing Bikram. The teachers tend to push students, which has sent me...
  19. I know of this chiropractor, and fear he will...

    I know of this chiropractor, and fear he will give Schroth a bad name. I am not the only person who is concerned about this (I know who he is). While your experience was clearly not good, and really...
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    My grandmother had what must have been a curve...

    My grandmother had what must have been a curve easily over 100 degrees. She had it her whole life. Never treated. She did however work full time until she was 90, and passed away at 94!

    I have it...
  21. Thread: Vitamin D?

    by bas2101
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    It appears that they tested all the girls' bone...

    It appears that they tested all the girls' bone density first, and then indicated who progressed later.

    As far as it being just one more factor to consider in the mix, I am sure there are others...
  22. Thread: Vitamin D?

    by bas2101
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    The 2008 study found that girls with progressive...

    The 2008 study found that girls with progressive AIS had higher rates of osteopenia, among other factors. They are suggesting that osteopeina be added as 1 of 5 factors in progression prediction.
    ...
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    My daughter is supposed do wear her brace 22...

    My daughter is supposed do wear her brace 22 hours/day. Since she adheres to this almost all of the time, I am never concerned when she takes it off for longer periods, say for school dances,...
  24. Thread: Vitamin D?

    by bas2101
    Replies
    37
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    41,186

    Vitamin D?

    What is known in terms of Vitamin D deficiency and scoliosis? This is what I have found, but just wondering what any one else knows.

    In a 2005 study: osteopenia is suggested as an important risk...
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    Something more than the shape of vertebrae must...

    Something more than the shape of vertebrae must be going on with some scoliosis patients. In my daughter's case: high curve at young age (40 degrees at 8), heavy rotation, progression (68 degrees by...
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