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  1. Replies
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    Dear Fifa - I am so sorry you are going through...

    Dear Fifa - I am so sorry you are going through all these problems. Some do and some don't -- and you just never know. The one thing to keep thinking of is that you will get through this. And I know...
  2. Thread: need advise

    by Susie*Bee
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    I find this all very interesting, as I'm not...

    I find this all very interesting, as I'm not fused to the sacrum but have some of the same difficulties as Linda. I think it is the age factor and arthritis in my knees and hips. I don't have a...
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    Dearest Fifa-- I have been following along and...

    Dearest Fifa-- I have been following along and read with horror at the mistreatment you received from the hospital when they dismissed you way too soon. I cannot believe it! When you are feeling...
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    Thanks for the suggestion but I didn't start a...

    Thanks for the suggestion but I didn't start a new one because Rohrer set this up (see bold) for others to use also in the initial post. I just put part of that post here so you can see.

    Yes,...
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    Here are what parts of my EMG report said if...

    Here are what parts of my EMG report said if anyone is interested:

    -Right and left peroneal and tibial motor nerve compound muscle action potentials were severely reduced. Conduction velocities...
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    Dear Marjorie - I just retired... so this year I...

    Dear Marjorie - I just retired... so this year I can sleep in if desired. (hooray!) But yes, I did find that my energy level decreased very much after my surgery. It took me a good 3 years to...
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    Has anyone heard from Rohrer lately? I am...

    Has anyone heard from Rohrer lately? I am concerned. As far as my CMT, I have definitely been confirmed with it through my mother's genetic testing, my bloodwork, and EMGs, etc., with my new...
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    From the IV solution. Sometimes they give you a...

    From the IV solution. Sometimes they give you a super IV -- Ti-ed could tell you a little about that. But it is heavy duty stuff. I have a really low metabolism so it doesn't take much for me to gain...
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    Mine was an 8 hour posterior surgery (the surgery...

    Mine was an 8 hour posterior surgery (the surgery itself) and I developed an ileus that lasted 5 days. NPO including no ice chips. The IV must have been very strong stuff, as I was not hungry and...
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    Oh Fifa, I am so sorry for this terrible...

    Oh Fifa, I am so sorry for this terrible accident. Of course I'll pray for your father and mother and the whole situation. You are in my prayers. May He bring you peace and strength as you head into...
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    New thread...

    I'm definitely not Ed, but I can help you get started with beginning a new thread... You go to the main forum page (click on forum) and it will show you all the subcategories. Then you find the one...
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    Just some thoughts thrown in to muddle you a...

    Just some thoughts thrown in to muddle you a little more...

    I could eat dinner the night before, but before 6:00, and with the knowledge that I had to do a selfie enema soon afterward in the...
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    Fifa-- it worked great. We will love hearing from...

    Fifa-- it worked great. We will love hearing from you. You are almost there! How exciting! Just think about all of us who went through if you should feel discouraged at some point. We scolis are...
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    Well, I am going to try this once more, to help...

    Well, I am going to try this once more, to help bring up Rohrer's (and another) threads on dystonia... they start with the most current and go back to when she was first describing her problems....
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    Thanks-- and same to you, Jess. It's going to get...

    Thanks-- and same to you, Jess. It's going to get much colder here in the midwest also. Brrrr. And we are at the exact line that edges the eastern/central zone (but are eastern) so it gets ridiculous...
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    I stand corrected. I thought you were talking...

    I stand corrected. I thought you were talking about the CMT. I apologize for not having searched further back and for misunderstanding. I, too, have been diagnosed with CMT so have that on my mind. I...
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    There have been others who have written in the...

    There have been others who have written in the past on CMT, but I don't think that is what you are referring to. Here are three who started threads using CMT:
    ...
  18. Yes, thank you so much for letting us know how...

    Yes, thank you so much for letting us know how she is doing. It sounds like all is well and what a great daughter you are to be there with her and being so supportive. We appreciative your taking the...
  19. Aha! That's whose name I could not think of! So...

    Aha! That's whose name I could not think of! So glad you checked, Chris, and added all that info.
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    Susan, your physical therapist in the hospital...

    Susan, your physical therapist in the hospital will teach you to logroll. It is basically to sit at the edge of the bed (and gauge how far your head needs for room to go to the pillow), use your hand...
  21. Susan (and others) For some reason her name won't...

    Susan (and others) For some reason her name won't come to me at the moment, but the lady who was so reluctant to have surgery for quite awhile and then did-- and was then so glad, from Chicago, had...
  22. Best wishes, Peggy. I'll be praying for you. Soon...

    Best wishes, Peggy. I'll be praying for you. Soon all this waiting will be over and you'll be "on the other side" -- ready for the recovery time!!! Hugs! And you too, Tamena.
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    I just googled forteo and fusion and came up with...

    I just googled forteo and fusion and came up with some talk on other boards. You might want to include your scoliosis surgeon's input. Maybe someone else has better advice...
  24. Susan, it seems so long ago you were asking about...

    Susan, it seems so long ago you were asking about the initial surgery and how anxious and yet optimistic you were. My, how much water under the bridge has passed by... and then debris that has...
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    Yes, I remember the wake up test and it was fine....

    Yes, I remember the wake up test and it was fine. Don't worry about it. And yes, Ed, I had all the wiring or whatever and there was a neurologist watching everything also. It was just one more thing....
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