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  1. Hi I am curious who the Dr's are you have seen...

    Hi
    I am curious who the Dr's are you have seen as I too live in Orange Cty, CA. My son is 13 and has seen Dr Skaggs at CHLA for many yrs now. Cole has had 10 surgeries as he was born with severe...
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    Shilla surgery

    Has anyone heard of this new procedure that attaches dual rods to the spine and the rods seem to extend as the child grows so that no expansions are needed like the veptr or growing rods??? It is...
  3. Thread: Shoulder Pain

    by mom2cole
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    oops me again, I just noticed you said surgery...

    oops me again, I just noticed you said surgery was end of May. Do you have it real often or just on and off? I think it may take many months to completely heal up from such invasive surgery. Did...
  4. Thread: Shoulder Pain

    by mom2cole
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    2,959

    Hi Megan- I have no advice but wanted to say...

    Hi Megan-
    I have no advice but wanted to say that My Son, Cole, also has had shoulder pain since his fusion w/hdw surgery on July 24th. We saw the Dr last wk but we both forgot to mention the...
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    Hi Lisa So glad the appt went well, I got your...

    Hi Lisa
    So glad the appt went well, I got your PM's and going to repsond but just noticed these posts and saw how you said Skaggs told you not to make wearing the brace your main focus in life. ...
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    PT for post fusion?

    Hi
    I dont know about any PT's in Northern CA but have just started wondering if my son should have some physical therapy now also. He just had final fusion surgery with rods inserted a few wks ago...
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    Cole is home from fusion/hdw surgery!

    Hi
    Just wanted to let ya all know we got to come home yesterday, 5 days after the surgery. The surgery itself took only 5 hrs as they thought could be 7 hrs long. He was off the vent by the time...
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    My son just got home today from having final...

    My son just got home today from having final fusion with two new rods this past tuesday and he wore hospital gown while there but today put on a t-shirt. I helped but he was fine putting hands thru...
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    Thanks Renee. Even tho all kids experiences are...

    Thanks Renee. Even tho all kids experiences are different it still helps to hear how others who are about the same age and having a semi similar procedure done have recovered,etc.. I cant recall...
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    Thanks Joanne. We may very well still be at the...

    Thanks Joanne. We may very well still be at the Hospital on Aug 2nd so maybe we can meet. I am pretty sure it is the 6th floor that Cole will be on after he leaves ICU so feel free to come find us...
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    Final Fusion July 24th

    Hello
    My son, Cole, is scheduled to have final fusion surgery with hardware July 24th and I would like to hear about surgery/hospitalization/recovery time info for other kids Cole's age-he is 13 yrs...
  12. Hello My son who is now 13 yrs old had Halo...

    Hello
    My son who is now 13 yrs old had Halo traction at 5 yrs old. He did the traction in the Hospital for 4 wks then had surgery then went home with the Halo on (no traction this time)for another...
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    Hi I totally understand your reasoning on...

    Hi
    I totally understand your reasoning on choosing Skaggs (younger but very experienced) compared to older. Both Skaggs and Tolo are well renowned who travel the World giving lectures and training...
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    Oops just realized you already said you live in...

    Oops just realized you already said you live in Tustin Ranch. I was rereading your info on current Dr and he sounds very good also. I have heard UCI to be a good place also. You may end up just...
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    Hi Lisa Good question, I guess I should have...

    Hi Lisa
    Good question, I guess I should have clarified that more on the switch. Dr Tolo operated on Cole with Halo and semi permanent rods surgery then after a couple yrs Cole's curve continued to...
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    Hello again Lisa- Just to answer your question...

    Hello again Lisa-
    Just to answer your question regarding Shriners L.A. and CHLA, NO they are not the same Hospital/place. CHLA is Childrens Hospital Los Angeles located at Vermont and Sunset near...
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    Hi Try not to beat yourself up over not getting...

    Hi
    Try not to beat yourself up over not getting your daughter into the Dr sooner or not noticing,etc.. sooner. It sounds like you both have been thru the ringer this past year (& I am so so sorry...
  18. Hi- Sounds like you are pretty happy with your...

    Hi-
    Sounds like you are pretty happy with your decision so far and that is good. We will have to keep in touch to see if at the Hospital the same time. In regard to the Hospital having anything to...
  19. Hello again- Not sure if you saw my reply to...

    Hello again-
    Not sure if you saw my reply to your Dr post but I did so hence the reason why I say hello again. LOL! I wrote a long reply to you about Dr Skaggs as that is who my 13 yr old son goes...
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    Hi My son has gone to Dr Skaggs for 6 yrs now...

    Hi
    My son has gone to Dr Skaggs for 6 yrs now and before that to Dr Tolo at CHLA for a few years (Tolo is director in charge of ortho and Skaggs is Asst Director). I read your other post and will...
  21. Thread: UCLA DOCs

    by mom2cole
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    Hi- My son used to go to UCLA and we saw Dr...

    Hi-
    My son used to go to UCLA and we saw Dr Oppenheim for years. Dr O operated on Cole with fusion twice-once at 18 months and then again at 3 1/2 yrs old. We were very happy with him and no...
  22. Thread: growth rods

    by mom2cole
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    I just sent you a PM to answer your questions on...

    I just sent you a PM to answer your questions on the PM you sent me.
    Stacey
  23. Thread: Final Fusion?

    by mom2cole
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    Final fusion now scheduled for July!

    Spencers Dad-
    I never replied to your last post but we did see the Dr this past Monday to fully discuss in detail the surgery. He spent alot of time explaining things to us and we decided to go...
  24. Thread: growth rods

    by mom2cole
    Replies
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    Hi My son goes to Dr Skaggs and has the rods...

    Hi
    My son goes to Dr Skaggs and has the rods that are similar to Veptr. He has had them for almost 6 yrs now. I highly recommend Dr Skaggs and CHLA. Let me know if you have any specific questions...
  25. Thread: Final Fusion?

    by mom2cole
    Replies
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    3,320

    Spencers Dad, thank you so much for the...

    Spencers Dad, thank you so much for the information . May I ask why your Dr wanted Spencer to have this full fusion now at his young age? Cole is already fused from T4 - T10 (done when he was much...
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