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  1. Spinal cord injury recovery and healing continues...

    Spinal cord injury recovery and healing continues on and on and can happen years after the injury.......never lose hope.....every day counts...

    I take it they want you up and moving all the time...
  2. You might consider the album cover attached below...

    You might consider the album cover attached below for a tatoo.....The “Lean into it” album by Mr Big explains everything. I have always thought of the scoliotic spine as a vertebral train wreck....
  3. Susan Thanks for the update.....good to hear...

    Susan

    Thanks for the update.....good to hear about your improvement. One day at a time.

    I am amazed at how powerful kyphosis is....and it sure did happen up high in your spine.

    The ideas...
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    Rohrer, you have known all along that something...

    Rohrer, you have known all along that something was happening to you.....and the dropfoot, falling, twitching, dizzies,weakness, fatigue etc are all signs of things that are extremely difficult to...
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    Just wanted to say Hi and welcome to the...

    Just wanted to say Hi and welcome to the forum.....

    Others should chime in soon.....

    Ed
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    Becky I had a forward crash over a large...

    Becky

    I had a forward crash over a large boulder when I was 10 months along (camping) and instantly figured I destroyed my spine. Its funny how and why this happens when we walk on eggshells for...
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    Sharon You mention “Thing” and I’m thinking...

    Sharon

    You mention “Thing” and I’m thinking Addams family... If you remember, Thing was a hand and didn’t have a spine. Scoliosis is therefore impossible with things.

    On that line of thought,...
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    Baroness, This is also another chair I...

    Baroness, This is also another chair I own.....which is an option.....It’s a little heavy but comfortable.

    Chairs are like beds, you have to go to the store and sit on them or lay on them for a...
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    Hi Nan! Hope things are well in Utah and the...

    Hi Nan!

    Hope things are well in Utah and the back is good!

    Sitting is a science for us.....even though I have that backpack chair, I also like variety in chairs....provided they offer some...
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    I have bought quite a few different types of...

    I have bought quite a few different types of portable chairs through the years.......

    This one is my current favorite.....It has lumbar support and shoulder slings and is adjustable through the...
  11. Wow Gail, $2200 is nuts. I didn’t realize...

    Wow Gail,

    $2200 is nuts. I didn’t realize that a bunch of years has passed, and insurance rates have pretty much doubled under Obamacare. I guess “we” all have to make damn well sure the...
  12. Most of us have some sort of rib hump since that...

    Most of us have some sort of rib hump since that comes with the rotation that happens with scoliosis. With todays modern hardware, they do have the ability to reduce our humps through de-rotating or...
  13. Thanks for the update Irina... There are many...

    Thanks for the update Irina...

    There are many of us that are concerned and thinking about Susan. I hope she gains strength quickly.....

    Ed
  14. Hi Meagan Welcome to the forum! Just...

    Hi Meagan

    Welcome to the forum!

    Just wondering where you were done in 1994? Was that in San Diego?

    Ed
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    Glad to hear things went well Jackie.... Hang...

    Glad to hear things went well Jackie....

    Hang in there

    Ed
  16. Susan Glad to hear you didn’t have to travel,...

    Susan

    Glad to hear you didn’t have to travel, its quite an ordeal if not walking.

    We are rooting for you!

    Hang in there

    Ed
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    Wow! Such good news! Deep breaths.... Ed

    Wow! Such good news!

    Deep breaths....

    Ed
  18. Susan, If you are ok sitting in a chair all day,...

    Susan, If you are ok sitting in a chair all day, I would fly. Can you maintain with the pain?

    Fly Portland to San Jose......arrange for a wheelchair transport van in Portland and in San Jose. They...
  19. Ohhh Susan, your brother is soooo right, take it...

    Ohhh Susan, your brother is soooo right, take it one day at a time.....Sigh....

    I was there for my dad who had ALS years ago.....and many of the thoughts that my father had were conveyed to me at...
  20. I noticed this.....but is has been 17 months for...

    I noticed this.....but is has been 17 months for Susan.

    Its so hard to tell with the human body being so complicated.....it seems its always something new.

    When Richard Pryor was diagnosed...
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    What I mean is that you will see constructs like...

    What I mean is that you will see constructs like mine without cross connectors and some with one or a few. Companies might recommend a cross pc for certain parameters, with the surgeon making the...
  22. “Temporary paralysis of fibromyalgia”........ ...

    “Temporary paralysis of fibromyalgia”........

    Wow, Susan....

    Any new developments? What are the docs saying?

    Ed
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    Jackie, its good to see a plan in place....... ...

    Jackie, its good to see a plan in place.......

    I have read about cross members in the past but cant remember why and when they use them. Maybe Linda would know? I have never seen any discussions...
  24. Jackie and I are on the same page....I also knew...

    Jackie and I are on the same page....I also knew someone with Guillain Barre.....and they also recovered....

    Hang in there Susan, Its going to be all right......this is just a temporary setback.
    ...
  25. No, I was thinking more like Blue Coral. ...

    No, I was thinking more like Blue Coral.

    Susan, what do you think is going on?

    Ed
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