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  1. Replies
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    That's caused by issues in your neck. Did you...

    That's caused by issues in your neck. Did you tell Dr. Lenke about those symptoms? Tell some doctor. Ed can advise on this.
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    Rita I have been reading along with your posts. ...

    Rita I have been reading along with your posts. I think what Susan wrote is some very good advice.

    There is some communication breakdown here. It sounds like he did see something on x-ray and in...
  3. Thread: Doctor in LA

    by Pooka1
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    Just curious but I thought all surgeons have...

    Just curious but I thought all surgeons have lawsuits against them at some point. That's the way this works. It doesn't necessarily reflect on them. They don't all lose these suits.
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    It is a fabulous idea that the patient can...

    It is a fabulous idea that the patient can ratchet the device but I don't see how they know how far to bend. Is it always to the limit? I wonder when a point is reached where no matter how much the...
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    In one of the talks, I think it was Newton, he...

    In one of the talks, I think it was Newton, he said that he had a skeletally mature patient with a large curve who wanted to be tethered and not fused. He either turned her away or finally convinced...
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    In re her Cobb after tethering, I agree it looks...

    In re her Cobb after tethering, I agree it looks to be north of at least 90 degrees. And it looks like the screw heads are closer on the bottom part in the later radiograph so I wonder if the tether...
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    What an amazing girl. If anyone can replicate...

    What an amazing girl. If anyone can replicate Tonibunny, maybe she can. What a huge loss that was.

    I was a little surprised to hear her say her tethered spine was stiffer than her 110 degree...
  8. I don't want to get too far off the topic of...

    I don't want to get too far off the topic of Shriners taking blood money from animal abuse but it has to stop. I am trying to help get this word out. Shriners is a good organization that has helped...
  9. Thanks for that post, Ed. Well said. I...

    Thanks for that post, Ed. Well said.

    I support Wildlife SOS based in India. These guys think BIG. They didn't just want to save some dancing bears in India (a cruel thing used by very poor...
  10. Shriners Circus won't perform in Pittsburgh!!!

    https://pittsburgh.cbslocal.com/2019/06/13/shriners-circus-not-performing-in-pittsburgh/?fbclid=IwAR3K5Y4CaJighN-q750_2_RCKUkHjVsK7FEnZUzIAno6nvpdZPTEgMuVB2c





    Shriners will lose $150,000...
  11. Thread: My niece

    by Pooka1
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    I think I found the point of confusion... you are...

    I think I found the point of confusion... you are using compensatory curve to mean a structural curve that was previously non structural. I am using it to mean a non structural curve. Both my...
  12. PSA... this is the Facebook tethering group... ...

    PSA... this is the Facebook tethering group...

    https://www.facebook.com/groups/ScoliosisTethering/

    There are a bunch of ones with "tethering" in the name but they are run by chiros who are not...
  13. Thread: My niece

    by Pooka1
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    How EXACTLY is ASC different than tethering? It...

    How EXACTLY is ASC different than tethering? It looks and sounds like the same based on this page with the exception of surgical access point.
    ...
  14. 8 year results on tethering to be presented at the SRS meeting in September

    I am reluctant to post about vertebral body tethering because I think people should go to the Facebook page on it (not the chiro pages) but Braun is going to present some "long-term" (8 year) results...
  15. Thread: My niece

    by Pooka1
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    I actually did laugh out loud at this! Although...

    I actually did laugh out loud at this! Although it isn't technically funny.

    My husband goes to the DR several times a year on business and often stays at resorts on the weekends. I told him to...
  16. Thread: My niece

    by Pooka1
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    I can't look at the FB site because it is closed...

    I can't look at the FB site because it is closed and I have no reason to join. Instead I read Spine articles, read SRS and IMAST and POSNA abstracts, and watch recorded meeting presentations.
    ...
  17. Thread: My niece

    by Pooka1
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    8,997

    Forgot to address this. "Newton is...

    Forgot to address this.

    "Newton is completely impartial regarding VBT now- ( motives not known)"

    i don't understand what you are saying here. Motives??? His motive is trying to help kids...
  18. Thread: My niece

    by Pooka1
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    8,997

    It seems like this is really trying to thread a...

    It seems like this is really trying to thread a needle by getting a kid with just the right amount of growth left... too much and there is over-correction. Too little and it will not work. That is...
  19. Thread: My niece

    by Pooka1
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    8,997

    If it has got to be better than fusion then why...

    If it has got to be better than fusion then why are they studying it and why is fusion still the gold standard? It sounds like it will pan out for a small minority of kids but we won't know that for...
  20. Thread: My niece

    by Pooka1
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    As far as I know, functional and compensatory are...

    As far as I know, functional and compensatory are entirely synonymous.

    Tethering does not generally straighten the non structural lumbar as much as fusion. That is why they are measuring the non...
  21. Thread: My niece

    by Pooka1
    Replies
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    8,997

    Hey Ed, I totally agree. These tethering kids...

    Hey Ed, I totally agree. These tethering kids are in uncharted territory. Those surgeons giving talks continued to say fusion was still the gold standard. Newton is turning away 4 out of 5...
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    Hey Kara, Thanks for contributing to the...

    Hey Kara,

    Thanks for contributing to the forum. Your experience will help other people know what to expect.

    Sharon
  23. Thread: My niece

    by Pooka1
    Replies
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    8,997

    They don't talk in terms of chrono age. They...

    They don't talk in terms of chrono age. They talk in terms of amount of growth left as far as I can tell.

    It seems like many kids will simply miss the window. I get the distinct impression that...
  24. Thread: My niece

    by Pooka1
    Replies
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    8,997

    In re complication rate, I think Newton was...

    In re complication rate, I think Newton was saying about 40% IIRC and I may not. Another guy had a much lower complication rate though.

    In re needing to fuse after failed tethering, think one guy...
  25. Thread: My niece

    by Pooka1
    Replies
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    8,997

    I watched all the IMAST and SRS talks from the...

    I watched all the IMAST and SRS talks from the meetings last year on tethering plus a few others on other subjects.

    Here are some things I recall from those talks...

    Newton says he turns away 4...
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